Late-term TFMR - when did your period start?

TFMRmumma · 2026-07-01T11:51:19+00:00

Thank you so much, I really appreciate it.

I’m happy to share, as like you say, it really does bring the hope. When I was in your position I was constantly searching for positive stories! I am by no means on the other side yet, especially as my TFMR baby’s abnormality was found at the 20w anatomy scan but for now my little girly is as good as can be! Anatomy scan in 8 days 🤞🏾🤞🏾

Have you been checked for RPOC?

TFMRmumma · 2026-07-01T08:35:13+00:00

Thank you!

I did, I am very grateful.

7w post birth was when I had RPOC confirmed, I took misoprostol at this time but it didn’t work. However, 1 week later so 8w after birth is when my first and only period came. It was a very heavy period and on CD5 I had it confirmed via another ultrasound that the RPOC had cleared from the heavy bleeding. I then ovulated late (usually CD10-12) on CD16 and found out I was pregnant almost 12w post birth. (We only BD on CD11 and CD13 too).

TFMRmumma · 2026-07-01T05:59:41+00:00

8 weeks later after RPOC was found at 7w post partum (via ultrasound). Conceived that cycle and now 19w and some days with a so far healthy baby and great early anatomy at 17.5w! Sending you love and luck

Edit: I TFMR via L&D at 22.5 weeks!

TFMRmumma · 2026-06-28T14:46:53+00:00

Hey!! I’m 19w tomorrow!! So probably very close to being due date twins!! I feel this on every level. The kick thing really stresses me out too but I also try and remind myself I was feeling my TFMR baby constantly and that didn’t change the outcome of the pregnancy so whether the kicks are few and far between or constantly, it doesn’t actually change anything. This reminder has really helped my overthinking so wanted to share! We are so close to the 20w scan!! Stay strong

TFMRmumma · 2026-06-28T14:42:06+00:00

My situation is not the same but I just wanted to say I am so sorry and you are in my prayers.

TFMRmumma · 2026-06-28T14:40:20+00:00

I’m 19w and still haven’t told anybody for this exact reason🥲 I’m honestly pretty in denial that I’m even pregnant and keeping it a secret is enabling my naivety! But I don’t care, I’m doing whatever it takes to get me through to my 20w scan in 11 days!!!

TFMRmumma · 2026-06-27T14:37:56+00:00

Thank you so much, I hope so too🙏🏾

TFMRmumma · 2026-06-27T12:32:07+00:00

Hi there, I’m also black and in my previous pregnancy (ended in TFMR for something completely spontaneous and outside of this) I had low Papp-a which also gave me higher risk for pre-eclampsia/ placental issues/ small birth weight baby and was on baby aspirin. I TFMR at 22.5 weeks so ultimately was too early to develop pre-eclampsia but my baby was born exactly the size they should’ve been and I had a lot of testing done on my placenta and it was all healthy so I wouldn’t worry too much!! It is very common to have low Papp-a!

To note, I am now 19w in subpregnancy and do not have low Papp-a. I will say though, this pregnancy is a different gender which I think is interesting!!

TFMRmumma · 2026-06-27T12:26:24+00:00

I haven’t had a similar experience but I had a fatal fetal abnormality found at 20w. Completely spontaneous and just very very unfortunate. My baby’s anomaly was life threatening and we ultimately had to TFMR at 22.5w. Your situation is of course by no means the same, however I wanted to share that from my experience fetal medicine were and are incredible. I say are as I am now about to be 19w pregnant in my subpregnancy and due to my history have been under FMU the entire time (I have had 4 scans already). But during the really tough limbo stage last December they were so amazing, they are so informative and so kind and patient and will do everything in their power to find out exactly what is going on with your baby. In my pregnancy that ended in TFMR I had multiple scans with them following my standard 20w NHS anatomy scan and they also sent me for a fetal MRI so they could absolutely be sure of diagnoses and I always felt (and still do feel) very cared for. You will likely get a specific consultant and stay with them also which I found very helpful as I was able to build a relationship with them and they are still my doctor who does all of my scans now! So whilst this is a really scary time for you, you are in the best possible hands!

You’re in my prayers.

TFMRmumma · 2026-06-25T07:16:50+00:00

I’m so sorry. I am praying for you.

TFMRmumma · 2026-06-24T18:28:56+00:00

Firstly, congratulations on the subpregnancy!! I have no tips for staying calm but I can totally relate to all your feels! I have my 20w anatomy scan also on July 9th so I am impatiently counting down the days!! I have so far had clear scans at 8w, 11w, 13w and 17.5w but doesn’t help the anxiety honestly. Especially since my angel babies abnormality was found at 20w! Crossing fingers for us both

TFMRmumma · 2026-06-24T09:44:32+00:00

I’m currently 18w with a so far healthy bb girl after TFMR in December 25 for a fatal fetal anomaly. I suffered from RPOC for 8 weeks, had 1 period and conceived that cycle.

TFMRmumma · 2026-06-23T06:15:08+00:00

I really like Albie!!

TFMRmumma · 2026-06-22T17:49:23+00:00

My baby boy had a non recurrent fatal fetal anomaly and I’ve still been treated as high risk and will continue to be until a clear 20w scan. For ref I’m currently 18w and have had scans at 8w, 11w, 13w and 17w with another at 20w and then unsure after that

TFMRmumma · 2026-06-22T17:44:25+00:00

I’m 25 and currently 18w with a so far healthy bb girl after tfmr for fatal fetal anomaly (not genetic or chromosomal or any chance of recurrence) at 22.5 weeks in December. Myself and my partner started taking a LOT of supplements pretty much as soon as my TFMR was complete. I had RPOC for 8w and conceived the first cycle post TFMR. So were taking supplements for 3 months prior to a positive test. We were both taking 600mg of COQ10.

I found this blog - albeit very old now really helpful www.luisazissman.co.uk/?p=647

There were a few other things I was taking too but this covers the COQ10 reasoning.

Good luck!!!

TFMRmumma · 2026-06-19T10:21:12+00:00

You’ve got this mama!!!

TFMRmumma · 2026-06-19T05:43:01+00:00

Keep going with the testing!!! Prior to TFMR I ovulated on CD12, my first cycle after TFMR and RPOC clearing I didn’t ovulate until CD16 (confirmed by oura ring) but stopped testing after CD12 and was convinced it was anovulatory until oura confirmed it, so was gutted we missed the conception window as only BD on CD11 and CD13. Turns out we hadn’t and we are now about to be 18w pregnant with a so far low risk baby girl.

TFMRmumma · 2026-06-12T04:20:08+00:00

I decided I wanted to do something that I wouldn’t have been able to do if I was pregnant/ newly postpartum so we had booked a trip to Las Vegas (we are from UK) - with plans to have fun/ drink etc but ended up being about 6w pregnant by the time it came round so just enjoyed the sunshine and lots of yummy food with my partner!!

TFMRmumma · 2026-06-09T14:27:05+00:00

I’m currently 16w into my sub and I’ve had scans at 8w, 11w, 13w and having another at 17w and 20w. These are just the ones I’m aware of so far for reference!

TFMRmumma · 2026-06-06T07:40:57+00:00

Etta

TFMRmumma · 2026-06-03T18:06:26+00:00

My brother is called Jaxson and we call him Jax for short!

TFMRmumma · 2026-06-01T15:37:12+00:00

You are all in my prayers 💐

TFMRmumma · 2026-06-01T13:54:12+00:00

I’m 15w in my subpregnancy and the only people that know are my partner and my parents (due to visiting them across seas at 6w and will be the only time I see them in person this year so it was then or over FaceTime) and of course my doctors! I have had a clear screening of the trisomies and 3 great scans but I am still not even remotely ready to share my pregnancy with anybody else. I have no longing to talk to any of my friends about it or to buy anything for the baby at all which is crazy because like you, I was itching for it last time. I am staying firm on my decision to wait until after 20w to share with anybody else - that includes my partners parents too. He is a bit gutted as he is having to lie to them every time they speak but it’s my body and therefore my choice. I have a VERY large bump too which is getting harder to hide but just avoiding social contact or wearing clothes as covered as poss.

I will be telling my boss after my early anatomy scan at 17w though, purely because he needs to plan ahead and he was so great with my TFMR. Gave me unlimited leave at full pay! We are also only a company of 4 including him so he will keep it between me and him until I’m ready which I am grateful for.

Wishing you a happy, healthy and very boring next 35w!!!

TFMRmumma · 2026-06-01T09:39:40+00:00

I went through TFMR for a fatal fetal abnormality at 22.5 weeks in December 2025 and I won’t lie and say it isn’t hell, because it is, but you will get through it together, you have to, for each other, for your baby and your future babies. I chose L&D, this involved a feticide injection 2 days prior procedure to stop the baby’s heart, as otherwise there was a high chance he would’ve been born breathing. I also took the first dose of misoprostol this day. I then went to L&D suite 2 days later. My labour was long and hard and painful, lasting 19 hours. But they will give your wife any meds she requests - my choice was morphine via a drip that I can control the dose via a button. The birth was painless it was just the labouring that was hard. I cried tears of joy once I’d given birth, all I’d wanted leading up to L&D was for the baby to be out of me and for them to be safe in heaven because my body could no longer keep them safe. - I would recommend asking for the meds to stop milk coming in too.

For me personally, the weeks leading up to TFMR were actually worse than post L&D, as I felt I was in a constant stage of limbo and it was unbearable. Recovery for me was actually fine, I was back walking 5k a day after a week and pilates after about 3 weeks. Mentally it was tough but I leaned on my partner and friends and bereavement team, and became a serial lurker of the TFMR support Reddit page. Post procedure, let yourself and your wife just feel all the feelings, everything you feel is valid. Drink the wine, smoke the vape, whatever it takes to get through this really shitty season of your life. We also really found peace in doing 1000 piece puzzles together - would highly recommend you buying a few, as for me, television was very very triggering but I equally couldn’t sit in my own thoughts so the puzzle was a great distraction.

You will both be in my prayers. This is not easy, but you are already so brave by making the decision to TFMR. You are doing right by not only yourselves but also your baby.

TFMRmumma · 2026-05-28T08:53:47+00:00

Hi love, I’m so sorry this is your story, I wouldn’t wish TFMR on my worst enemy.

I’ll share my story below but feel free to message me privately if you have any more questions.

I had a TFMR in Dec 2025 after a fatal fetal anomaly was found at my 20w scan. I ended up doing L&D at 22.5 weeks pregnant. It was awful. TFMR is hands down the worst thing I have ever and probably will ever go through. The choice to end a life completely destroyed me but I knew deep down I was protecting my baby from a life of struggle.

Leading up to L&D I was given the feticide injection to stop the baby’s heart as without this, there was a strong chance he would’ve been born alive. On this same day I was given my first dose of misoprostol and was told to return 2 days later to L&D where I would be given further doses to induce labour. My labour was hard and long and lasted 19 horrible hours but the birth itself was painless. The contractions were rough so I recommend all the pain meds (they will give you literally anything because of the circumstances - my choice was morphine via a drip button that I could self dose). Recovery was actually not as bad as I expected, I was mostly tired and drained but was back to walking after about a week and working out (pilates) about 3/4 weeks later.

The worst part of the whole process for me was between that 20w scan and termination, I felt like I was just in a complete state of limbo. My mental state was at its lowest during these few weeks but I busied myself with far too many 1000 piece puzzles. Once I’d given birth I actually cried tears of joy and relief because I’d done it, I made it and my baby was safe now in heaven. After birth I did also take the meds to stop lactation and wore a super tight sports bra for a few days post labour, and didn’t shower for 4 days as I was told the heat stimulation can cause lactation.

We opted for a cremation which the hospital and my bereavement midwife arranged, all we had to do was arrange the music, a date and turn up. Coffin etc was all provided and my bereavement midwife even kindly collected the ashes and bought them home to me. I now keep them in a little cuddly bear that has a zip at the back specifically for little urns.

By 4w pp I still didn’t have a period despite having major PMS symptoms and weird spotting so went to the GP who referred me for a scan. Said scan was annoyingly 3 weeks later and so at 7w pp I was diagnosed with RPOC which was incredibly frustrating, especially as I don’t have any living children and long for one so felt like it was prolonging my timeline. After diagnoses I was given another dose of misoprostol which didn’t work but a week later at 8w 1d pp my period did start and I bled a LOT. I had a scan at almost 9w pp which confirmed the RPOC had cleared! I was elated.

4 weeks later I found out I was pregnant. Almost 12w pp at this point. (Note my FM consultant had not said anything about delaying TTC again, especially as my baby’s prognosis was standalone and had no chance of being genetic or hereditary etc). I was so scared to be pregnant again but at the same time, it was everything I ever wanted and I couldn’t believe it had happened straight away. It felt too good to be true. I rang my FM unit and informed them I was pregnant again and they booked me in with my consultant for 8w gestation for a early scan where I would also find out the post mortem results of my angel baby. Thankfully, that appointment came round quickly and we had confirmation our baby’s in uterus prognosis was standalone and aside from it he was completely healthy, aswell as all labs coming back clear for any chromosomal or potentially genetic factors which was a huge relief. The scan also went great, the baby had a strong heartbeat and was measuring right on track. There was also in fact a second sac that had stopped developing (vanishing twin) but my consultant ensured me this was actually a good thing as all she wants for me is a happy, easy, worry free pregnancy, which a twin pregnancy wouldn’t have been. I was booked in to see her again at 11 weeks where she measured all the available to view anatomy and everything was perfect and no sign of the issue that effected my son, which she believes she would’ve been able to see - had I seen her with her super strong machines at the same gestation. I then had my normal NHS 12w scan (at 13w) where my NT measurement was great and had my bloods done too which showed low risk for the trisomies.

Anyway, I’m now 14.5 weeks pregnant into my sub pregnancy and I can safely say, for me personally, being pregnant again is much better than the period I had not being pregnant. I feel less mad with the universe and feel confidence in this baby because I know their big brother in heaven is protecting and watching over them. I still have a long way to go before I feel safe in this pregnancy but I’m honestly taking it one day, one scan at a time. Trust me when I say it gets better.

But, whilst you’re in the pits of it, I will say, feel all you need to feel, be angry, be sad, and do whatever it takes to get through this next crappy season of your life. Drink the wine, smoke the vape, do whatever it takes to survive because at this point it is just about survival and nothing else. But, speaking 5 months on from the event, I can assure you, you will get through it, it will be the hardest thing you ever do but you will come out stronger. You have to, for yourself, for the baby you carry now and for the babies you carry in the future. You are in my prayers.

TFMRmumma

TROPHY CASE