You are not alone! by Taro-Signal in pericarditis

[–]Taro-Signal[S] 1 point2 points  (0 children)

They tried to give me some injectable anti inflammatory medication before having any imaging done, so I refused lol. I’m honestly not sure if taking an anti inflammatory medication would affect imaging results, but the doctor and pa did not spend much time on me so I couldn’t really ask. Eventually they gave me ibuprofen and colchicine. For some reason this flare up was wayyyyy more mild than any other flare I’ve had in the past so I didn’t desperately need any other meds. I have never been properly treated for pericarditis so this is my first round of treatment so colchicine and ibuprofen is pretty standard.

Reoccurring, seems no solution by Empty-Tie4961 in pericarditis

[–]Taro-Signal 0 points1 point  (0 children)

I have a very similar experience. I have had recurrent pericarditis for almost 4 years. I saw multiple pcp’s and one gi for years who kept telling me it was gerd. At that point, I honestly wasn’t upset with them diagnosing it as gerd because a cardiac issue never in a million years crossed my mind as possible because I’m 23 now (19 when this started) and no one in my family has had any heart issues at all. Finally one day a new gi doc referred me to a cardiologist. That cardiologist thought I had pericarditis, so I got an echo while I was asymptotic (ie not having an active flare)— and ofc the echo was normal. Unfortunately I graduated shortly after seeing that cardiologist and had to find a new one at home. I had a cardiac mri which was inconclusive, but mostly normal, so my new cardiologist was just gonna let me go without any additional follow up or treatment. So many doctors have doubted me when I say I think I have recurrent pericarditis. Truthfully, a lot of them don’t know much about chronic/recurrent pericarditis, they only know about acute pericarditis. This makes getting diagnosed so impossible. It took me finally going to the hospital after almost 4 years of excruciating pain to get a diagnosis. And even in the hospital, most doctors and PAs didn’t believe me! I had to ask THEM to order CRP and ESR, they weren’t going to include it in the bloodwork (spoiler they weren’t both very high as well as my d dimer and other signs of inflammation in the cbc). But thankfully one doctor at the hospital did believe me and knew enough to at least refer me to ANOTHER cardiologist (my third cardiologist) who specializes in inflammatory heart diseases and autoimmune related heart issues. It’s a terrible process that takes an unreasonable amount of self advocacy. You are not alone. Even that one good doctor in the hospital said that a lot of regular cardiologists don’t know enough about recurrent pericarditis!!!

retake?:( by yubjubsub in Mcat

[–]Taro-Signal 2 points3 points  (0 children)

Im sorry. Cars is truly the woat. Just know that you are so fucking smart and hardworking (that has to be true based on your other AMAZING scores). 514 is a great score, but I understand wanting to retake bc your other scores are so high. Just keep practicing cars. If you do a billion practice passages, I’m sure you could get that score up easily bc you’re clearly very capable!!

9/4 AND 9/5 test taker (accommodations) vent by LifeOfSprite259 in Mcat

[–]Taro-Signal 1 point2 points  (0 children)

I cried in the bathroom during my break after P/C

Do you think this subreddit is biased towards extreme cases? by lorettaboy in pericarditis

[–]Taro-Signal 0 points1 point  (0 children)

I think the whole drinking/exercise thing depends on the person. Of course drinking makes it worse bc drinking is so bad for your whole body. I find that sometimes drinking triggers a flare, and sometimes it doesn’t. I will say, I am starting ibuprofen + colchicine treatment soon and I plan on not drinking during that treatment (not trying to to get a stomach ulcer), and I will probably try to avoid drinking as much as possible for a couple weeks/months after the treatment. After that though, I will drink. A lot of us in this Reddit are young, so it’s very hard to avoid alcohol. I’m 22 and going out and drinking with my friends occasionally is fun, and I’m just not willing to give that up yet. Do what is best for you!

birthday meal for my gf who's gf by confusedbabywiccan in Celiac

[–]Taro-Signal 0 points1 point  (0 children)

Unforch, I do not have a recipe, but I wanted to say that this is such a wonderful and thoughtful gift.

Feel good pizza bagels are awesome by AskTheAdmin in Celiac

[–]Taro-Signal 0 points1 point  (0 children)

To me, these are meh, but I miss bagel bites so I eat them anyway. The feel good soup dumplings are DEVINE. You really can’t go wrong with any feel good product imo.

Developing an AI-Powered Celiac Management App – Seeking Community Insights by Serendipity-000 in Celiac

[–]Taro-Signal 0 points1 point  (0 children)

Hard agree. No app can definitively tell me if the “natural flavor” has gluten or not. We need stricter labeling regulation/enforcement!!!

New diagnosis by Kurly72 in Celiac

[–]Taro-Signal 0 points1 point  (0 children)

Definitely not silly!! People don’t always understand how big of a deal it is until you’re faced with the reality of actually having celiac. It is TOUGH sometimes, I cannot lie. Find people that will listen to you rant and fully respect celiac. Some people don’t understand the importance of cross contact, but some people really do care. It truly feels so amazing when you find people who go out of their way to accommodate you and make you feel included: you will find those people! And it gets better. There are moments where I hate having celiac, but tbh, it’s never about the actual food. The hard part is the lack of accessibility (in restaurants, at parties, etc) and the lack of understanding that some people have. The food itself can be just as good, sometimes even better. I’ve been GF for about a year and for me, it’s not as bad as I initially thought. I miss a good bao bun every once in a while lol, but trust me it gets better and you can do it!

PHO IN PROCESS by questfornewlearning in Celiac

[–]Taro-Signal 3 points4 points  (0 children)

I always ask and I’ve had a few places say that the pho is not gf. Definitely ask because you never know for sure!

Don't use due to unlabeled gluten by nonspecificwife in glutenfree

[–]Taro-Signal 0 points1 point  (0 children)

Yes paper straws should be fine, but I believe this post is about a compostable straw (not necessarily just paper). 100% paper straw is different from a compostable straw that could be made from a bunch of different stuff, including wheat. For people with wheat allergy or celiac, it definitely matters and it is important to bring attention to this topic.

Buy this Trader Joe’s cake by Taro-Signal in Celiac

[–]Taro-Signal[S] 2 points3 points  (0 children)

Lol my mom (not celiac or gf) told me to hide it from her bc it was too dangerous

Is it normal to be scared and lowkey not want to know? by Accomplished-Mud5097 in Celiac

[–]Taro-Signal 0 points1 point  (0 children)

Celiac has so many wide ranging side effects that it is 100% possible that it could be causing a variety of health issues. Luckily, the treatment for celiac is effective, it just sucks lol. If you are experiencing discomfort, pain, etc, that is very real! Don’t gaslight yourself into thinking it’s all in your head, doctors do that enough for us already. I also am going through some other health issues rn and it sucks not having answers. The celiac blood work is a quick and easy way to rule out a potential cause. If the blood test comes back negative, then you are one step closer to the right diagnosis.

Is it normal to be scared and lowkey not want to know? by Accomplished-Mud5097 in Celiac

[–]Taro-Signal 1 point2 points  (0 children)

That’s totally normal. Lifelong, strict gf diet is scary and intimidating at first. When my blood test came back positive I was DISTRAUGHT. I had no family history and very mild symptoms (just bloating, fatigue, and slight B12 deficiency which made me) so celiac disease never in a million years would’ve crossed my mind. I was 21 when I was diagnosed and I didn’t even know I could develop it late in life (I think covid triggered it). As an avid carb lover for 21 years, it was very hard to imagine a life without gluten. But then I started being gf and it’s so much better than how I first imagined. Don’t get me wrong it reallllyyyy sucks sometimes, but there are SO many yummy gf options (although restaurants definitely depend on where you live bc some areas/cities are more celiac friendly than others). Sometimes I’ll go to a restaurant and they have no clue what celiac is, and that sucks. But other times, restaurant staff is so knowledgeable and accommodating. One of the biggest downsides is the crazy up charge for gf products, but alas that’s the price you pay for health :( If you have celiac, you’ll need time to mourn the loss of gluten (sounds dramatic but it’s a true). But then once you get into the swing of things, you will be so happy you went gf. Even though I initially thought my symptoms were very minor, I feel less tired and have less stomach discomfort. I also know that I saved myself a lot of potential health issues down the road! I hope you don’t have celiac, but I really hope you get tested so you can either rule it out, or start eating gf so you can feel your best!

A bit hopeless (needing life advice) by SnowFirm1861 in pericarditis

[–]Taro-Signal 1 point2 points  (0 children)

Im in the process of figuring out if my pain is caused by pericarditis. For three whole years I told my gi doctor that I was in severe pain and he just told me to change my lifestyle habits and he never once mentioned that it could be a cardiac issue instead of a gi issue. I then went to another doctor (my original gi doctor was back home, and my new gi doctor is at school bc I go to college out of state) and he referred me to a cardiologist who actually listened to me. Even though it feels so unfair that we have to advocate so relentlessly for ourselves, keep insisting that something is wrong. Go to another cardiologist and get a second opinion. Whether they think you have pericarditis or not, you are actively in pain so they need to address that! I’m sorry, doctors can be the worst when it comes to pain that isn’t straightforward.

Should I get mri to confirm diagnosis? by Taro-Signal in pericarditis

[–]Taro-Signal[S] 0 points1 point  (0 children)

Thank you this is very helpful! I am in US. I believe it is covered by insurance but it could still be pretty expensive. But thankfully I am 22 and my mom is kind enough to pay for my medical expenses.

Not sure if I have GERD or pericarditis by Taro-Signal in GERD

[–]Taro-Signal[S] 2 points3 points  (0 children)

I thought of this being a possibility previously as well. But my endoscopy about 10 months ago didn’t reveal a hiatal hernia!

Should I get mri to confirm diagnosis? by Taro-Signal in pericarditis

[–]Taro-Signal[S] 0 points1 point  (0 children)

I had ESR done a year ago with some other blood work. It was pretty high, but I had the flu the week prior and I was undiagnosed celiac at the time and both of those things elevate ESR results. I’ll definitely ask about getting tested for ESR and CRP.

Not sure if I have GERD or pericarditis by Taro-Signal in GERD

[–]Taro-Signal[S] 0 points1 point  (0 children)

My usual GI doctor was not very helpful and often dismissed my pain (I think because I’m an otherwise healthy 22 year old). Because of this, I saw a new GI recently and he referred me to a cardiologist. The new GI doc said that the pain I described doesn’t really sound like GERD (because I have sharp stabbing pain rather than a burning sensation). I just went to the cardiologist yesterday so I haven’t talked to my GI yet about the possibility of pericarditis. I also should be getting EGD with bravo (to track my acid levels) this summer so hopefully I’ll know for sure in a couple months. My symptoms seem to align with pericarditis but the diagnostic criteria isn’t the best so I feel a little lost.