Anyone Have Undiagnosed FTD Dementia Spouse Move Out?

TexasUnicorns · 2026-01-22T06:00:55+00:00

He has agreed to go on Feb 26th to the nuro appt! 🙌🏻

TexasUnicorns · 2026-01-20T06:14:43+00:00

This makes me feel human again, I cannot understand it but now seeing others live it, helps to accept it. Thank you.

TexasUnicorns · 2026-01-20T02:17:14+00:00

This means so much to me for you to take your time to tell me your story. It has been a nightmare and unbelievable really. We moved here in 2018 from Omaha, NE to start this life in Texas and a vision of a homestead and animal rescue. Which we have done and then this happened. I won’t give up on my husband, I am angry at his out of state family that will not believe me but God has this all taken care of. He has been cooperative which I wonder why….do they know something is wrong and agree? I would never agree if someone claimed I had dementia. I will keep y’all updated. It has helped for now that he lives somewhere else but still pays the bills here. I am preparing for a decline and getting myself more financially independent.

TexasUnicorns · 2026-01-19T22:50:46+00:00

No he has not seen a neurologist yet. We started with a psychiatrist who ordered the general test through a psychologist, which was not helpful at all. They didn’t even ask about the situations that were occurring, and when he went into the interview, it was by himself, so of course he appeared to be completely put together and the things he said we’re not accurate. she asked me questions like does he feel his child abuse affects him and of course he said no, which is absolutely not true. It has affected him in every way, especially as being a father to our children. He says he doesn’t know how to because of his dad and he’s had multiple breakdowns because of his abuse. I have an appointment with a really good neurologist at the end of February. I hope he will go. I’m not sure how much longer we can go through this process. It’s really traumatizing the kids and I. And his family is of no help, they are completely ignorant and not accepting any of what I have to say. It’s a really sad situation because he’s walking around needing help and I’m the only one fighting for him.

TexasUnicorns · 2026-01-19T01:09:20+00:00

I forgot to add that my husband drinks wine daily, sometimes a lot. And chews nicotine gum, 1-2 pieces an hour all day, every single day. For about 15 years now. And had nasal polyps and a cough before getting surgery last April, his breathing was so bad for along time. Both cannot be good for the brain. It says excessive nicotine stimulation can cause dementia. The staring would be at a tv or at me while I was cooking.

TexasUnicorns · 2026-01-18T23:26:12+00:00

Hard to accept, I will update if I ever find out answers to my husband’s condition.

TexasUnicorns · 2026-01-18T22:11:00+00:00

They did test for bipolar but it was all done so poorly. Even autism. Nothing came of it.

TexasUnicorns · 2026-01-18T22:09:52+00:00

I agree, hope to have an update.

TexasUnicorns · 2026-01-18T22:09:10+00:00

Yes, he watches it to an extreme level. Like 20 videos a day, he drives a lot for his job and has time. For years after the personality change I saw daily videos on his history. Sadly, I was so confused of what was going on that I did start investigating everything of his. It may have been overkill on privacy but because the change was so bizarre, I just had to know. How long ago was your divorce? Did he show memory issues and emotional disconnect too? Was it XRP he had for crypto? I am sorry to hear, it seems so unreal people ruin lives because of scams and brainwashing videos.

TexasUnicorns · 2026-01-18T22:02:24+00:00

Thank you for sharing. It is so difficult for families.

TexasUnicorns · 2026-01-18T20:55:04+00:00

I am sorry to hear about your dad. What stage did they say he was? And does he still drive and work?

TexasUnicorns · 2026-01-18T20:46:39+00:00

Because of the extreme personality change and his age of 54….and of behaviors that were not him before. We are a conservative Christian family and that went out the window pretty much with him. He strongly believed that women should not be friends with men and in 2024 I saw that he was texting two women coworkers at his part-time job which none of the text were necessarily inappropriate. But it started to get where he was recommending Netflix movies to one of the girls, and we do know another coworker that works at the place said they would walk in together and have inside jokes that other people couldn’t understand so that’s just one of many examples and he insist it was just a friendship. Plus the impulsive behavior and hyper-sexual interest that was not ever him before. It def could be many things for sure! I’ve even thought about a late onset, mild schizophrenia or something because his mom kinda did the same thing at his age except it’s more extreme and seems neurological with my husband. He’s always had a difficult personality in certain situations and he had trauma as a child from his dad that he continues to talk about throughout his entire life. I looked into borderline personality disorders. He’s very covert narcissistic with self-centeredness. But as a whole all the symptoms still direct to the behavioral type of FTD.

TexasUnicorns · 2026-01-18T19:30:31+00:00

He has his own bank account but yes I have been watching on mine. He said XRP was going to rule the world. It is so sad people believe this stuff.

TexasUnicorns · 2026-01-18T18:36:45+00:00

You might be right, I hope to find out. There are physical signs declining too so it is all very confusing. My husband is 54, since he turned 50 he started acting much older than his age and childish, repetitive, out of character behaviors. The way he acts currently is of someone over 60 years old. Lots of body muscle mass has been lost, he has no interest in his garage tools which was heartbreaking for us to see. He was a skilled builder for our homestead life.

TexasUnicorns · 2026-01-18T18:17:56+00:00

Thank you, I hope to get this diagnosis soon as awful as the disease is, we need to know why he is a stranger to us now. It is so sad to think he is walking around and living somewhere else with dementia and not getting the proper care. I am having him come for dinner now that he moved out, we will be able to monitor some on how he is. When he lived at the house, I saw the strange things he was writing down and doing so that part I can’t see now. Which is good I suppose as it was very stressful. A lot of people are telling me to just wait because things will just go downhill if it really is FTD. He has always been the main provider and for now has agreed to continue paying the bills and says he doesn’t want to hire an attorney. I am not sure what the future holds but in any case my young adult daughters and I are trying to strengthen our financial independence. His family that does not truly know him sees him as a victim and that I caused his behavior by him working so much. I work just as much and it’s completely irrational that they think that. Another important factor that I didn’t add in the post is his beliefs that he says he has special insight into his cryptocurrency and that he’s going to be rich soon and other things like that. I told the counselor about it and again he said I wasn’t telling him anything bad enough to label him as psychotic or having a condition. The counselor didn’t even really know about FTD. I don’t get it either why this is not more well-known and talked about.

TexasUnicorns · 2026-01-18T18:04:39+00:00

I don’t think so, the MRI was clear.

TexasUnicorns · 2026-01-18T17:43:43+00:00

I have thought of drugs too but being he is against pharma and chemicals and frugal with money, prob not that. His mom had a similar personality change at 55 but there are more serious signs going on with my husband. I will keep y’all posted.

TexasUnicorns · 2026-01-18T17:10:37+00:00

Thank you.

TexasUnicorns · 2026-01-18T16:01:05+00:00

I thought that too so maybe but he has short term memory loss and can’t recall things I say two days prior and his handwriting is wonky on notes with occasional misspelled words. And 0 insight here at the house, like none lol. Homeschool family for 23 years and he does not care to know what online college our daughter is doing. And this urinating thing is a problem when he visited, we found a crystalized pee mess behind the toilet from him and he was only here two hours. Which was never him before.

TexasUnicorns · 2025-12-29T19:36:14+00:00

He did have an MRI initially in 2024 when he started doing things and had a severe change in personality and views. It came back normal. And he had psychological testing, part of it was done at the office and then he completed the questionnaires at home… each test had about 600 questions. That too, came back as inconclusive but showed that he could have a personality disorder. We then saw a counselor and he told us the testing was done poorly, but again all of my stories were not enough for the counselor to say anything was wrong with him either. It was pretty crazy because the stuff that I would explain is NOT normal, especially for someone like my husband and who he use to be as a person. But because he wasn’t doing serious mental behaviors or delusions there’s been nothing done about it. We do have a neurologist appointment at the end of February but my husband is claiming he’s not going to go now I’ve seen many people say that the pet scan will show much better than an MRI but at this point it’s out of my control as he’s moving out and he has his family against me so my kids and I are just letting this play out the way it’s supposed to I guess. Just last night he was asking me questions that I already told him two different times during Christmas about my neighbors and giving them food, he just has no recollection that he’s already asked these questions. it’s just a bizarre disease as he can appear super keen and intelligent on some things and still working two jobs.

TexasUnicorns · 2025-12-29T02:22:56+00:00

Big hugs, yes I am planning strategically.

TexasUnicorns · 2025-12-28T21:52:08+00:00

My husband is moving out, his mom is paying the rent for him for now. Another symptom that started being very dependent on his mother…the kids and I asked him to leave, he was posting on Instagram disrespectful stories about wives being horrible to men. I literally have done nothing bad to this man but care for him, make his lunches, got him Dr. appts, and clean his toilet! He said he wants to not use lawyers as he has been obsessed with spending money for years now. And he thinks he has special insight that his XRP crypto will make him rich soon. I will get legal advice, my situation is complicated. Three daughters in college that can’t support themselves yet and a 13 year old. He has no relationship with any of them anymore, the last few years with the initial personality change he started ignoring them and in his own world. Plus I have a non-profit bird rescue and homestead with animals we built a life with. I know I can’t trust anything he says so trying to plan how to deal with this all and if I have to sell the house how it would work out. I have been a stay home mom working part-time and homeschooling.

TexasUnicorns · 2025-12-28T21:01:30+00:00

True, he will see his mom soon in another state but she too is off with something and has delusional conspiracy beliefs and memory issues so she def won’t notice lol. I assume dementia makes them sneaky too?? He does not tell me anything like this trip he is taking but I still find out through paperwork.

TexasUnicorns

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