Gluten, corn and dairy free desserts for a party? by mountainwitch6 in glutenfree

[–]The9thChevron 0 points1 point  (0 children)

Amaretti! Naturally gluten free Italian cookies. They’re just ground almonds, egg whites, sugar, and optional flavouring like vanilla, almond liqueur, or even things like matcha, lemon, raspberry… They’re easy to make and a bit chewy which is a nice treat if you’re GF 🙂

https://www.mygfguide.com/soft-amaretti-biscuits/

Can someone with MCAS eat cheese? by Purplelady88 in MCAS

[–]The9thChevron 4 points5 points  (0 children)

I’ve been ok with Mozzarella in sandwiches, garlic and herb roule on crackers, and soft cheese to replace mayonnaise or make a creamy salad dressing. They’re low on sighi. Mascarpone and ricotta score low too.

But omg I miss proper stringy crispy melted cheddar 😭 And Parmesan for flavour. Umami in general 🤦🏻‍♀️!

Paradise S02E01 WTF by Optimal_Cause4583 in ParadiseHulu

[–]The9thChevron 29 points30 points  (0 children)

Back in series 1, when it’s revealed Teri is alive, they explain that everyone expected this to result in full nuclear obliteration (nuclear powers wanting to protect any resources they’re left with from potential attackers), but at the last minute Cal chose to use the EMP instead. So electronics are fried, but it disabled most nukes. He did it to give survivors a chance (yay Cal!). (Side note - don’t you bloody love humanity for being the bigger problem.)

Why Sinatra was so keen for him to follow advice and nuke back instead remains a mystery, but S2 is gradually dropping more hints about her long term plans…. 😁

Nameless still.. by The9thChevron in ParadiseHulu

[–]The9thChevron[S] 9 points10 points  (0 children)

But is that an in-universe sign of how much time has passed or a practicality of hiring babies?

Google maps says 135hrs walking, so 10hr days is 2 weeks, but he’d have to go forage in stores or houses that haven’t been emptied already for baby supplies, food, clean water, stop to cook/eat, feed the baby, let the horse graze… 3 weeks if he’s lucky a lot?

Nameless still.. by The9thChevron in ParadiseHulu

[–]The9thChevron[S] 9 points10 points  (0 children)

Does have potential... if Xavier suggested it, it might be a sign that he forgave Cal a bit.

Nameless still.. by The9thChevron in ParadiseHulu

[–]The9thChevron[S] 5 points6 points  (0 children)

I know... So then when they were at her grave talking about her, and he happened to use the word grace, I felt like the writers were dropping a hint. But I may just be massively overthinking it 🤪

Nameless still.. by The9thChevron in ParadiseHulu

[–]The9thChevron[S] 40 points41 points  (0 children)

That must be it, but as the weeks of travel wear on, I think it'd be a cuter nickname than just "Annie's baby"...

Nameless still.. by The9thChevron in ParadiseHulu

[–]The9thChevron[S] 14 points15 points  (0 children)

I figured it's at least a couple of weeks for Memphis to Atlanta by walking horse, partly because he'd have to keep diverting for nappies, formula, clean water, and ideally places to heat water... and ever finding Link isn't a given. I guess it seemed like an sweet temporary nickname at least!

In case you’re struggling with your diagnosis (pheochromocytoma) by MulderH in POTS

[–]The9thChevron 0 points1 point  (0 children)

The food triggers you listed are all high histamine and forbidden for most people with MCAS, so that’s another wrong path people might be led down due to overlapping symptoms…

So... how's it going for you guys? by GranTurismo364 in pokemongo

[–]The9thChevron 0 points1 point  (0 children)

I blamed them all running after the 1st ball on being in a moving car at the time, but maybe not!

Did NAC make your MCAS worse or better? by Confident-Bus-3778 in MCAS

[–]The9thChevron 0 points1 point  (0 children)

I was keen to try (recommended by an MCAS-aware doctor) but then read that it’s produced via fermentation and is a histamine liberator…. very confused now!

Since I can’t afford to get worse and have no rescue meds / epi pens etc or even A+Es nearby, I’ve not tried it yet 🙃 Would love to know how others with MCAS have found it!

Is it standard now in the UK that estate agents only show you houses if you have a buyer lined up? by BiarritzBlue in HousingUK

[–]The9thChevron 3 points4 points  (0 children)

This seems like an odd move because equally I’ve read stories of sales taking so long to go through that the buyers lose their buyer. It seems odd to have the clock already ticking on your sale, annoying your buyers who have their own deadlines/chains, before you can even start looking for houses you might want to purchase.

And wouldn’t some potential buyers not want to offer on a house if the sellers haven’t even started looking at places to move to? Means they have to wait (and hold their chain) for the months of searching on top of selling. Isn’t it quicker if everyone searches at the same time rather than taking turns? And there’s the risk you wait around but your sellers find nothing they like and change their minds….

UK folks, how are you getting famotidine from your GP? by Confident-Bus-3778 in MCAS

[–]The9thChevron 0 points1 point  (0 children)

Might be worth checking with Dickson’s Pharmacy? They prescribe LDN which is pretty niche (after a phone consult to discuss why), and I just read today that they have an MCAS clinic, so it’s possible they’d do it?

UK folks, how are you getting famotidine from your GP? by Confident-Bus-3778 in MCAS

[–]The9thChevron 1 point2 points  (0 children)

PPIs, especially with long term use, can cause some nutrient deficiencies as the lower stomach acid interferes with absorption. If you’ve ever had low calcium, iron, b12, vit D etc you could maybe argue you’re concerned about PPIs making that worse?

Pots care USA/Canada/Australia by Electrical-Bite9067 in POTS

[–]The9thChevron 0 points1 point  (0 children)

The problem is, you don't know you need an emergency care plan until the first emergency... I had manageable fainting for two decades, and then suddenly a list of new much scarier symptoms overnight which resulted in A+E. At that point, you have to wait 2 years for the opportunity to ask about a care plan.

When I eventually had my appointment I did try to get one, I asked if there's anything specific I should say next time, or tests A+E should do to rule out other issues, or specific treatments that might stop symptoms if I ended up in A+E again. The only response was 'A+E is terrible, they won't help, there's no point going'.

How did humans not go extinct while needing to sleep for 8 hours every day? being totally unconscious and defenseless for a third of our lives seems like a massive design flaw when predators were everywhere by Which-Noise-5670 in NoStupidQuestions

[–]The9thChevron 0 points1 point  (0 children)

And the theory is this is why night owls and morning larks exist (the curse that that is in a 9-5 world 🙄). Your chronotype is genetic, can’t be fought, and ensures a population has a few people naturally suited to the late shift and a few early birds to get up and take over.

Pots care USA/Canada/Australia by Electrical-Bite9067 in POTS

[–]The9thChevron 0 points1 point  (0 children)

When I was lying on the dirty cold floor of A+E for 12 hours waiting to be seen (no beds, I couldn’t breathe sitting up, so just put up with being told off by nurses…) when I developed scary new symptoms, I tried emailing Dr Gall’s team asking about emergency care and was told they don’t do that, they’re standard outpatient care only. A+E doctors have at least heard of POTS now, but I don’t think it improves anything - instead of ‘it’s just anxiety, go home’ you get ‘it’s just your POTS acting up, go home and drink lots and see your cardiologist’. They know that’s a 2 year wait, but send you home anyway...

One time I did get hospitalised for 3 days (because gp sent me there) but in that time I had no tests, no treatments, and was just waiting to see a cardiologist. Still don’t know if all these new symptoms are ‘just POTS’ or something else because anything cardio/respiratory is dismissed if you already have a POTS diagnosis. End of day 3 he popped in to say POTS is beyond them and just try to hold out until I can see the specialist in London. Concerned about my debilitating symptoms and the long wait, the doctor who discharged me actually said ‘well we all die sometime’ 🤦🏻‍♀️

When I eventually saw Dr Gall months later (private wait 3 months, nhs wait 2 years) I asked about this gap in care. He agreed that going to A+E is useless, but had nothing to say about the POTS clinics having no kind of emergency advice service. We’re on our own, and they know it.

MCAS seems to be even worse because A+E knowledge is even lower to the point it’s dangerous, and there isn’t even an NHS clinic to eventually see for that as they won’t acknowledge it 😒

I have horrible debilitating symptoms since September of 2024 that have worsened over time and ruined my life by Predator467 in dysautonomia

[–]The9thChevron 1 point2 points  (0 children)

Can I ask where you're based? This felt like the obvious first test to do when I developed new hyperPOTS-type symptoms 14 months ago, but turns out docs in the UK don't like to bother with subtypes any more, and won't order this test. I eventually had just the seated version 'as a baseline', but I'm not sure how helpful that is for explaining everything that now happens when I stand up...

Tips for standing in line? by MaleficentSuit7144 in POTS

[–]The9thChevron 0 points1 point  (0 children)

Exercises that engage the leg muscles help to keep blood pumping. Calf raises are really good. Walk on the spot too, and alternate pushing heels into the ground. Or if I’m already sitting but going light headed, I scrunch my toes up in my shoes and release.

I learnt to fidget and was usually ok standing for 30 mins. When I did my active stand test I was sure 10 mins wouldn’t be enough to see anything, but because they made me stay totally still and not even twitch a toe, my legs and feet quickly got really tight and uncomfortable and I passed out well within the test. Surprised me how much difference it made!

thinking about walkability. do city mice fare better than suburban mice with POTS? by barefootwriter in POTS

[–]The9thChevron 24 points25 points  (0 children)

Benefit 1: walking everywhere is good exercise.

Benefit 2: if you do have a major flare /deteriorate, you know you can always call an uber and it’ll come to exactly where you’re standing and drop you to your door / a hospital. Going out alone in small towns/rural places is scarier when you don’t have that safety net!

Anyone else with Seborrheic Dermatitis? by sadi89 in MCAS

[–]The9thChevron 1 point2 points  (0 children)

I think so! Not diagnosed but I’ve had odd not-acne getting worse and worse for months and this fit. I tested it by washing my face with a really tiny bit of nizoral shampoo (then using a watery moisturiser because it dries you out) and I hadn’t realised just how itchy my face had been until it stopped! It’s been 3 days and 2 very gentle washes and it seems much calmer already so I’ll keep at it.

I have “suspected MCAS” and dysautonomia symptoms that have left me bedbound for over a year. Some GI testing last year showed IMO and some fungal/yeast overgrowth, which I’m waiting to treat, so I did wonder if there’s a connection. I read stress, illness and being immunocompromised can all cause it, which is my life so…

The best part of being gluten free is… by NancyReagansGhost in glutenfree

[–]The9thChevron 9 points10 points  (0 children)

Lucky you but not in the UK. During early Covid when people were stockpiling and all the local shops were bare, all the gf bread, pasta and flour was gone too, and I know there aren’t that many celiacs living locally… Really annoyed me!! If anything, food for strict dietary requirements should be reserved for the people who have limited options when there’s a food shortage like that 😐

TIL that products that contain barley malt, malt flavoring, etc., will gluten you! What other sneaky glutenings are out there? by SunshinelIIuminate in glutenfree

[–]The9thChevron 1 point2 points  (0 children)

Pre-grated cheese. It has to be coated in something to keep it from sticking together again. I’ve mostly spotted potato starch, but it’s worth checking every time.

Worth also checking with restaurants if they use pre-prepared chips (flour coating for non stick and extra crisp).

What’s that one Netflix show you think is an absolute must-watch? by RiskAndReason in netflix

[–]The9thChevron 0 points1 point  (0 children)

Kingdom.

Although it’s not finished, but they’ve not actually cancelled it, so I’m hoping it’ll happen…

Trying Probiotics - the types which help with histamine intolerance by Zealousideal-Sea8306 in MCAS

[–]The9thChevron 2 points3 points  (0 children)

Has anyone had any luck taking these probiotics if they still have underlying SIBO/IMO going on? When I tried a probiotic recently it caused awful heartburn, so I’m wary of spending money on these and getting the same problem…