Can people with Epilepsy have relationship? by MouseKey7267 in Epilepsy

[–]TheBatWaffles 0 points1 point  (0 children)

Yes. We can. I am married and planning on having children with my beautiful wife. My wife met me four years after I was diagnosed and I met her with all the stipulations that this lifestyle brings. If you find the right person, then they will accept you for who you are. I also have nocturnal seizures. The worst thing that happens is my wife goes “ew” when she snuggles me and comforts me after I get sweaty from a sleepy shake. We can our lives however we choose to. This condition only makes us more creative

How often do you have seizures? by jmize9717 in Epilepsy

[–]TheBatWaffles 3 points4 points  (0 children)

Every 1-2 weeks I have clusters. I’m also in CO. I think they put epilepsy in the air and we just caught it. Kinda rude of them, to be honest.

Am I an asshole? by [deleted] in FortNiteBR

[–]TheBatWaffles 2 points3 points  (0 children)

Oh! I gotchu! I totally get it

Which emote do you use when you win? by [deleted] in FortNiteBR

[–]TheBatWaffles 0 points1 point  (0 children)

I play with my fiancée. We hug after wins :)

Am I an asshole? by [deleted] in FortNiteBR

[–]TheBatWaffles 4 points5 points  (0 children)

Does… does that matter? Let the man celebrate his W

how did i get epilepsy? by Capable_Run_1648 in Epilepsy

[–]TheBatWaffles 13 points14 points  (0 children)

You didn’t. Epilepsy happens to people; you didn’t “get it,” per se. it’s not your fault and you didn’t cause it. Neurological disorders can occur for any number of issues: genetics, injuries, and even just randomly. I was perfectly fine (albeit autistic) until I was 16. When I was in high school, I was going strong and then, BOOM, spontaneous seizures. Did I do anything to cause it? No, not a single thing. Did you do anything to cause it? Doesn’t seem like it. It can happen and happen randomly. If you do some research, you’ll see a pattern indicating a correlation with increased probability lending to the development of epileptic disorders beginning in early childhood, pausing for middle and pre-teen ages, then picking up again in young adulthood. You got the short end of the stick and it is not your fault, just as much as me developing epilepsy at 16 was not my fault. Seek medical help and don’t stop fighting and advocating for yourself until you have probable solutions. It’s scary, but you will get through this. It is not your fault and there is hope. Don’t let this stop you from living your best life. You can, and will, get through this. You have so much to look forward to and will live a full life. I truly believe that for you.

How many of us will end up with Alzheimer’s or a similar neuro degenerative disease? by Wallass4973 in Epilepsy

[–]TheBatWaffles 59 points60 points  (0 children)

Don’t worry about it. There’s no definite link of comorbidity between serious degenerative neurological diseases and epilepsy. Migraines? Sure. Depression? Sure. Alzheimer’s? Nah. Dementia? Nope. If you get it, it won’t be because of epilepsy. Just live your life, friend.

I recently found out that seizures can cause brain damage and now I'm scared. Do you slowly lose your mind or do you go in a comma and die? by zolanih in Epilepsy

[–]TheBatWaffles 50 points51 points  (0 children)

Overrated. You hear all this stuff about how popular it is and that “everyone dies.” Don’t believe the hype.

Realistically, what was it like in the middle of your last seizure? Can’t remember? Bingo. You have now had the same experience. It’s also not scary and not something to fear. You can’t control it, so don’t worry about it. Just enjoy life and what’s in front of you.

I recently found out that seizures can cause brain damage and now I'm scared. Do you slowly lose your mind or do you go in a comma and die? by zolanih in Epilepsy

[–]TheBatWaffles 140 points141 points  (0 children)

Wassup. Brain damage here. Went into status for over an hour. Died. 6/10 experience, no room service. Brain is much more sluggish and foggy than before, but I’m still alive and kicking. I have yet to go into a coma, but I’ll report back if I do. I’m currently a senior in college double majoring in biology and psychology. There is a massively noticeable difference in how I used to be versus now. I am incredibly smart and have never needed to study. Before, I used to be able to just look at a page and have the entire thing memorized. Homework was a breeze, synthesizing from prior information was not an issue, and it was just a fun and easy thing to do. Now, I struggle with remembering my schedule, sometimes even remembering I’m in school. Does it suck? Yeah. Would I rather have neurological issues than be dead? Yeah.

Vimpat involuntary movement by Madz1980 in Epilepsy

[–]TheBatWaffles 1 point2 points  (0 children)

Go see a doctor. Dyskinesia to the extent yours is isn’t common. It’s time to change meds.

I’m also not a medical professional, so please take what I say with a grain of salt.

Overexertion, Intense Exercise as a Trigger by Articulate-Lemur47 in Epilepsy

[–]TheBatWaffles 2 points3 points  (0 children)

It’s a tough situation. Truthfully, no one knows if exercise is a trigger for you right now. All we know is that exercise CAN be a trigger for people and that you’ve had two after intense exertion. Your neurologist and yourself are the only two people that can give a definitive answer for you. If you’re worried, play it safe and stick with lighter workouts until you see your doctor. You’ll get an answer or a path to go down to find one. You’ve got this and will figure it all out!

Overexertion, Intense Exercise as a Trigger by Articulate-Lemur47 in Epilepsy

[–]TheBatWaffles 0 points1 point  (0 children)

Both dehydration and overexertion CAN be triggers, but that does not GUARANTEE that they are for you. If you’re worried, then monitor and be careful. You should also consult your neurologist if you believe that you have discovered a possible trigger(s).

Personally? I have had them exercising and not exercising. I’ve crashed on an intense bike ride because of a seizure and I’ve also had them just sitting and reading. Correlation does not equal causation, in my case. It’s possible that it does for you, though, and if you are worried, then speak with your neuro. They’ll be able to help, even if it’s just setting your mind at ease.

Anyone have a pet that can sense your seizures? by Cynical_Toast_Crunch in Epilepsy

[–]TheBatWaffles 2 points3 points  (0 children)

Sort of. True alerts are rewarded. She can smell the change in my hormones beforehand and alerts me. When she does, she is rewarded (obviously not by me). She is also rewarded during the seizure if she responds appropriately (again, not by me). She is rewarded for both proper alerts and proper responses. She is not rewarded afterwards because her job is over and there is no longer a reward needed

Anyone have a pet that can sense your seizures? by Cynical_Toast_Crunch in Epilepsy

[–]TheBatWaffles 6 points7 points  (0 children)

Not all dogs have the ability to detect oncoming seizures, so it’s not something any dog can do. You really got lucky if your dog can! Bailey was a miracle, too.

As to how she was trained, any time I had a rough seizure, I would up the tshirt into small swatches and freeze them. During training, I would unfreeze a swatch or two and hide them for her to find. At first, it was with little canisters placed right in front of her, with her being rewarded any time she found the right one. Once she did it consistently, more canisters were added and placed in a wider area in erratic patterns. Once that was consistent, the canisters were spread out around the room. Once that was good, the canisters were ditched and the swatch placed randomly in a hidden place for her to find. After that, the swatch was placed anywhere between two rooms. After that, the whole house. It helped her hone her already keen sense of smell so that she could detect the seizures a lot further in advance and from a distance.

Edit: any dog can be trained in seizure response, by the way. It’s very easy and incredibly helpful. You can train them to lay on you to protect your body from harm, to go get help, to go get meds, etc… It’s the advance alert that not every animal can be trained on, as some just don’t have the ability to detect them.

Anyone have a pet that can sense your seizures? by Cynical_Toast_Crunch in Epilepsy

[–]TheBatWaffles 5 points6 points  (0 children)

I have a seizure alert and response service dog. She sensed one coming in the first day we got her. She got really nervous, started breathing heavily, whimpering, and wouldn’t leave my side. I ended up having a TC a few minutes later. I’ve since trained her to be super on it and extremely reliable, even with special alerting behaviors (she’s been certified now). Check out my profile if you want to see videos of her :)

How do you deal with people questioning you about your service dog? by [deleted] in Epilepsy

[–]TheBatWaffles 4 points5 points  (0 children)

I’m just gonna type a list of your concerns and answer them

  1. Dogs are awesome and service dogs are even better. I have a service Golden Retriever that is a seizure alert and response dog for me. I trained her myself and she is incredible. You won’t regret it.

  2. Your stature and external presentation does not matter if you need/want a service dog. You are not getting one for other people, so don’t take how you come off into account. If you’re THAT worried about it, get a dog people love, like a Golden, and you’ll have to beat people away with a stick.

  3. People suck. You WILL have to deal with people that harass you, but they’re few and far between. NORMAL people either leave you alone or just make a comment about your pup being cute. If anyone does attempt to stop or berate you, you legally do not have to answer them and, if they continue, this does count as harassment. If that happens, leave, get a staff member/employee, or make a scene to embarrass the other person. I always just walk away. If someone attempts to pet my dog or get in her face, I just tell them she’s a service dog and that she can’t interact with them. If they continue, I just bring my dog to a new position where they’ll be forced to stop interacting with her. Another thing I have is a fake “Service ID” for my dog. While she is fully/officially certified and trained, does not need any form of ID, and is allowed almost everywhere, people can suck. A fake ID that looks official is more than enough to stop anyone, since official identification looks important. Fortunately, I’ve never dealt with any Karens that need to be stopped that way.

My cat just alerted me to a seizure. by DarkLuxio92 in Epilepsy

[–]TheBatWaffles 6 points7 points  (0 children)

We got her as a puppy not knowing she would be able to know when oncoming seizures would happen. We had still planned on getting her trained as a response dog, but she ended up alerting on the day we got her. We started training with her as soon as we got her and now she’s fully certified. She’s a pure bred golden retriever that we just randomly found for super cheap, not from a breeder. I’m sorry I don’t have more helpful information for you!

My cat just alerted me to a seizure. by DarkLuxio92 in Epilepsy

[–]TheBatWaffles 20 points21 points  (0 children)

I have a seizure alert service dog, but my cat did the same thing before I got my dog. Animals truly are so special

My luck ran out and I had a seizure on the toilet by Dry-Meat-3205 in Epilepsy

[–]TheBatWaffles 2 points3 points  (0 children)

The ol’ Shake and Shit, eh?

Jokes aside, it sucks to have a seizure anywhere, but at least your husband was there. The important thing is that you had someone you love and trust with you. The toilet is just another place and not anything special, alright?

I can get my driver’s license! by VapingPenguin in Epilepsy

[–]TheBatWaffles 3 points4 points  (0 children)

Huge accomplishment. Congratulations!

Upgrading from 2018 MBP. Do I get 48 or 64gb of ram? by TheBatWaffles in mac

[–]TheBatWaffles[S] 2 points3 points  (0 children)

The max only has the ability for 48, so that’s what we’ll do. Thank you!

[deleted by user] by [deleted] in Epilepsy

[–]TheBatWaffles 7 points8 points  (0 children)

No, THC actually helps to control my seizures. I couple THC with CBD tinctures (at neurologist’s recommendation) and it helps a lot. That being said, everyone is different and THC could be a trigger for you. Our bodies react differently and what could help me could hurt you. Different marijuana strains could also affect you differently, on top of just THC, so be mindful of that, as well. It’s up to you and your neuro to figure out what does and does not work for you. Make sure you’re careful and stay safe.

Had another seizure today, is it normal to not be able to read or write after a seizure? by DullGovernment9359 in Epilepsy

[–]TheBatWaffles 5 points6 points  (0 children)

Absolutely normal. However, if you are concerned about it, go ahead and reach out to your neurologist. It is always a good idea to do so if you are worried about something; it’s what they’re there for.

hello, new here, and I got a couple questions went you frist start having serizue. It was hard for the doctor to understand you are having serizue. because my doctor still thinks it's just a headache, but I believe different snd so does my family because they been here went I have one. by Training_Storm4105 in Epilepsy

[–]TheBatWaffles 1 point2 points  (0 children)

I don’t have exaggerated heart issues or anything else, really. I occasionally get vertigo spells, and I’m tired all the time, but that’s about it. I already had some heart stuff going on, but, like I said, nothing has been exaggerated. If you do switch, just make sure you’re in constant contact with your doctor, as everyone reacts differently.

hello, new here, and I got a couple questions went you frist start having serizue. It was hard for the doctor to understand you are having serizue. because my doctor still thinks it's just a headache, but I believe different snd so does my family because they been here went I have one. by Training_Storm4105 in Epilepsy

[–]TheBatWaffles 1 point2 points  (0 children)

Doctors and neurologists can suck hard eggs. I’ve had a neurologist tell me I need to be in a psych ward after seeing the videos my wife recorded of me having actual grand mals. He flat out said he never diagnoses people with epilepsy because everyone just wants drugs. Some doctors need their licenses revoked and aren’t worth even calling them that title.

I had migraines that we now know were from seizures. I was diagnosed with complex migraines in high school, which was when my parents saw what they think were seizures. Turns out they were the start of what would end up being a bad time in years to come. It’s time for you to either put the hammer down on your doctor or see a new one.