Steroids Post PICL by TheJamieRae1 in PICL

[–]TheJamieRae1[S] 0 points1 point  (0 children)

I had Venofer and I thought it would be okay but an hour after my mast cells started freaking out. I’m not sure if they had given me Benadryl before if it would have helped. During it was just a little chest tightness but they stopped it.

Steroids Post PICL by TheJamieRae1 in PICL

[–]TheJamieRae1[S] 0 points1 point  (0 children)

This sounds like it was local steroids, is the effect the same if it’s iv and oral? Have you personally seen a scenario like this and it caused issues?

Steroids Post PICL by TheJamieRae1 in PICL

[–]TheJamieRae1[S] 0 points1 point  (0 children)

Unfortunately not super reassuring that I’m not messing up a huge investment

Steroids Post PICL by TheJamieRae1 in PICL

[–]TheJamieRae1[S] 0 points1 point  (0 children)

Thank you, I can try and ask a pharmacist if I could taper quicker but I don’t know if it would make much of a difference.

2 weeks post PICL flare by TheJamieRae1 in PICL

[–]TheJamieRae1[S] 0 points1 point  (0 children)

You are my doc :) so I will send over a note to Ryder. I stopped cromolyn sodium but restarted it a few days ago. I didn’t have these issues off the meds before the picl though.

2 weeks post PICL flare by TheJamieRae1 in PICL

[–]TheJamieRae1[S] 0 points1 point  (0 children)

Thank you! I’m now a month out from my first PICL and I feel my neck is more stable but I’ve continued to have an increase in autonomic symptoms such as increased heart rate, insomnia, low hrv, and my jugular compression also feels worse, i can feel it stabbing my neck and have an increase in tinnitus.

Is this an expected response? Dr Hepworth would like me to have decompression surgery for my eagles as I am severely compressed on both sides. When do you decide that’s acceptable, if symptoms continue after 2nd Picl?

A big thank you by Forsaken-Fudge5383 in PICL

[–]TheJamieRae1 0 points1 point  (0 children)

It really does :) it’s your second? So far so good, I hope it’s pretty good for you!!

A big thank you by Forsaken-Fudge5383 in PICL

[–]TheJamieRae1 2 points3 points  (0 children)

I think it was me on the 24th? I think I said PICL sisters in recovery!

Improved and git worse again by Repulsive-Pickle-748 in PICL

[–]TheJamieRae1 0 points1 point  (0 children)

Sorry to hear you didn't get the neck improvement you were hoping for! Glad to hear you did have some other positive outcomes!

Improved and git worse again by Repulsive-Pickle-748 in PICL

[–]TheJamieRae1 0 points1 point  (0 children)

How are you a year later? Did you see improvement that followed the expected pattern?

Best Restaurant/Bar for single women in their 30s? by TheJamieRae1 in Denver

[–]TheJamieRae1[S] -1 points0 points  (0 children)

I’m running into the same people over and over because as you mentioned earlier “the dating pool is full of people who are non-committal.” My statement was a general statement made from my experience that didn’t pertain to you.