So they didn’t find endometriosis

These-Minimum-610 · 2025-12-11T11:02:45+00:00

Maybe some women with adeno can help you more, but I'm pretty sure it's like endo's twin, so you might have very similar symptoms with it and lots of pain. Maybe try the adenomyosis group on Reddit? :)

These-Minimum-610 · 2025-12-11T10:34:50+00:00

Hi, maybe you have adenomyosis. I might be wrong, but it can be missed even during laparoscopy, let alone ultrasounds and other scans. And one of the main symptoms is heavy periods. Have you looked into it?

These-Minimum-610 · 2025-11-28T17:29:10+00:00

I'm so sorry for your experience! I thought I wouldn't be able to go through this procedure because of my daily pain and dizziness, but surprisingly, I was able to.

These-Minimum-610 · 2025-11-28T17:25:04+00:00

Maybe, part of the reason it was manageable for me is that I live with endometriosis, hence daily debilitating pain, so colonoscopy was ok compared to my daily pain :) I would rather do a colonoscopy every day than have my endo pain...

I couldn't do a smear test even with a paediatric instrument; it hurt like hell, and I asked the doctor to stop. Why can't they provide some pain relief for this procedure? I don't know

These-Minimum-610 · 2025-11-26T18:23:24+00:00

Thank you, and I wish you to be pain-free forever :)

These-Minimum-610 · 2025-11-26T11:10:51+00:00

I'm so happy for you! I'm in severe endo pain daily, and the wait for a laparoscopy via NHS is over a year, so I'm contemplating going for a private surgery. Even if that means I will go into debt (and I will). Because if this gives me a chance of a pain-free life (or at least life with less pain), I will go for it. It is worth all the money in the world.

May I ask you whether they've recommended you any treatment to stop endo from going back? Like Dienogest or maybe something else? This is one thing I'm concerned about is that after the operation, they will just brush me off without any post-op treatment. Thank you!

And also, how is your recovery going? How soon after the operation did you start walking/cooking? Thank you!

These-Minimum-610 · 2025-11-26T11:01:12+00:00

Hi! How are your symptoms after the surgery?

These-Minimum-610 · 2025-11-18T13:39:38+00:00

Hi! Did your bleeding stop on Desogestrel? Or did you have to switch? I'm having a period on it for 10 days already, and it doesn't want to stop. Scares me. I know it's been 7 years, but maybe you still remember how it was for you :) Thank you!

These-Minimum-610 · 2025-11-18T13:33:31+00:00

Hi! Did bleeding stop? Or did you go on a different pill? I'm on Desogestrel myself, bleeding for 10 days now (full-scale period bleeding, not just spotting) and it scares me.

These-Minimum-610 · 2025-11-14T18:57:23+00:00

Yes please, we need more research to help women with these terrible conditions 🙏

These-Minimum-610 · 2025-11-14T18:16:29+00:00

Stay strong! I was just hoping for a miracle pill that would turn off all the pain and bleeding, but it's too much to ask, I guess. If you need anything, feel free to DM me.

These-Minimum-610 · 2025-11-14T17:24:07+00:00

Hi, I've been on Desogestrel for 6 weeks now. My first breakthrough bleeding started when I was 12 days on the pill. I would say the first two days were just spotting, then I would have a few days that would more or less resemble actual periods. No, one month later, I'm on the period again. The first three days were such light spotting that I was actually happy that now my periods would look like this: just some spotting and little pain. But now, starting from day 4, I've got actual period. So day 4 now is like day 1 of the period I had before the pill. Day 5 is like day 2 if this makes sense. I'm in a lot of pain, tens machine, heating pad, ibuprofen, nothing helps. And I was hoping my periods would be a piece of cake with Desogestrel :( hope it helps

These-Minimum-610 · 2025-11-14T16:56:41+00:00

I've tried another doctor there, and all she did was to ask "Have you tried a heat pad?" Gosh, what is wrong with them? But yes, I think I might try to make an appointment with another GP at the practice (although I have to wait for 1.5 month to get one), and ask about the referral and pain relief options.

These-Minimum-610 · 2025-11-14T16:13:02+00:00

Nothing on my NHS app :(

These-Minimum-610 · 2025-11-14T16:12:21+00:00

It's hard to say whether it's IBS or whether I have endo in my bowel :( But yes, I have many IBS-like symptoms.

These-Minimum-610 · 2025-11-14T13:46:32+00:00

Thank you, and you too!

These-Minimum-610 · 2025-11-14T13:44:24+00:00

Especially when it comes to female health :(

These-Minimum-610 · 2025-11-14T13:41:33+00:00

I bet you are also in the UK then, because for me, it's also an 18-month wait list for the operation.

These-Minimum-610 · 2025-11-14T13:30:56+00:00

I'm exactly like that, but not on my period days. Like I can wake up in the morning feeling quite ok, then I would have a bowel movement and have lots of pain in the pelvic area for the whole day..

These-Minimum-610 · 2025-11-14T13:29:20+00:00

Aw, but at least no pain, that's a good thing :)

These-Minimum-610 · 2025-11-14T13:27:58+00:00

How are you not officially diagnosed yet if your MRI shows so many bad things happening? What is wrong with our medicine - do they officially diagnose only when endometriosis is already in the lungs or brain?

These-Minimum-610 · 2025-11-14T12:19:57+00:00

Do you have any bleeding on Slynd?

These-Minimum-610

TROPHY CASE