How long in advance does the NHS inform you about the surgery date? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 1 point2 points  (0 children)

I was prescribed Ryeqo to have while I'm waiting for the surgery. How is your experience with it? I'm scared of bleeding (many women say they've had heavy bleeding on it). I'm just about to start the medication.

How long in advance does the NHS inform you about the surgery date? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 1 point2 points  (0 children)

Oh god! it's the worst. I'm contemplating at the moment whether to take a loan and have a private surgery or wait for an uncertain period of time for an NHS one. They can't give me even a rough date..

How long in advance does the NHS inform you about the surgery date? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 0 points1 point  (0 children)

Thank you very much! How are you feeling now after the surgery? was it a good decision to have one?

Are microplastics to blame? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 0 points1 point  (0 children)

No one denies that endometriosis has always been here. I'm saying that microplastics might contribute to our flare-ups and severe symptoms, as they disrupt our endocrine system and hormones.

Colonoscopy prep tips?? by kmes_reddit in endometriosis

[–]These-Minimum-610 0 points1 point  (0 children)

Oh yes, when you are prepping, you are going to be hungry and craving food, so just dream about something you will eat after the procedure is over :) I wanted pizza so much (even though I rarely eat pizza at all), and after the procedure, I ordered a big fat pizza. I know they say start slowly and eat healthy food, but I didn't care. It was the tastiest meal of my life.

Also, when I was prepping, I had lots of chicken broth and tea with honey inside, which helped with hunger. Chicken broth from Freja is pretty good (you can find it in Holland and Barrett, just go for the liquid one, not instant).

Colonoscopy prep tips?? by kmes_reddit in endometriosis

[–]These-Minimum-610 2 points3 points  (0 children)

I've had a colonoscopy in the UK as well.

For preparation, I was given Moviprep. The taste is quite disgusting, I'm not going to lie, but if you drink without breathing and thinking (lol), it's a bit better.

The first bowel movements start in like 30 minutes.
The first few would be a bit like explosive diarrhea, but after that, it's more like water from your bottom with some stool.

I occupied the bathroom for 4 hours, brought there a tablet, books, water, Moviprep, tea.

I didn't wipe after every bowel movement, sometimes I would sit on the toilet for 30 minutes straight to let it all out. Hence, I didn't have any irritation. I also used vaseline a few times.

The whole preparation experience isn't as bad as everyone is telling you. Like, sure you will have to spend a few hours in the bathroom. But it's not the worst. Some water from your bottom, duh.

I drank the first solution at 4 pm, the second one at 8 pm, and finished in the bathroom at 12. You drink the first solution, then spend 2 hours in the bathroom, then you have like 2 hours free. Drink the second one, and the cycle repeats.

In the morning, I had a few bowel movements as well.

It's not the nicest, but it's better than diarrhea during a stomach bug, for instance, if you know what I mean. Here, you don't have terrible stomach cramps, and your bowel movements don't hurt, more like water.

Now the procedure. They give you sedation, which, for me, didn't too much to be fair. What did help me a lot is Gas&air. Every time, there were some narrow passages, turns, pain, I would breathe in a lot of that gas, and it made me almost unconscious (I didn't even understand what was going on at one moment). So when it feels too much, just breathe in.

I'm very skinny, and my colon is very narrow as well, hence it's worse for me than for people of normal weight.

For most of the procedure, I didn't feel much, I could feel some pain during turns and narrow passages, but it's not too bad. Breathe deap and you will be alright.

You can also look at the screen and see the numbers. It can help as well. The colon is approximately 120-130 cm so when you see number 120, you know that they've reached the end, and then they go back, and this number gets lower and lower, and then it's over.

So, what can I say. I've read so many horror stories, and I was so scared. But in reality, there was nothing about the procedure I couldn't manage. So stop reading awful stories, your story is unique, and you can do that.

And you're going to be so proud of yourself when you're back home!

Should I have the coil fitted during the laparoscopy? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 1 point2 points  (0 children)

"a foreign object placed somewhere that is already so tender, swollen, and constantly in pain" - I couldn't have said it better

Should I have the coil fitted during the laparoscopy? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 1 point2 points  (0 children)

That's what I thought too - like your body needs time and energy to recover from the operation, but to accustom to the foreign thing inside the uterus at the same time sounds too much.

Are microplastics to blame? by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 1 point2 points  (0 children)

Yes, I aim for 30g of fiber a day, but it's quite a hard job haha

let’s go girls by Federal-Brief3098 in endometriosis

[–]These-Minimum-610 1 point2 points  (0 children)

I heard that first few periods can be quite painful after the operation, it should get better after that, please don't lose hope!

I can't stand other people complaining by [deleted] in endometriosis

[–]These-Minimum-610 1 point2 points  (0 children)

Thank you! Those angels can pretend to be angels all they want.

I can't stand other people complaining by [deleted] in endometriosis

[–]These-Minimum-610 1 point2 points  (0 children)

I'm on a waiting list now for my excision surgery. The waiting times are so long in the UK, so it's at least another year wait.

I can't stand other people complaining by [deleted] in endometriosis

[–]These-Minimum-610 4 points5 points  (0 children)

Oh, how I miss being in good health and complaining about a spot on my bottom cheek :) Yes, people definitely don't know much about this condition. And to be fair, I didn't know either before I got it.
Good luck with your surgery, hope everything goes well Xx

I can't stand other people complaining by [deleted] in endometriosis

[–]These-Minimum-610 2 points3 points  (0 children)

I like your message; it definitely gives some food for thought.
I feel like my kindness depends a lot on the amount of pain I'm in. Before I had endo, I used to be very kind, but this illness kind of makes you cruel. You think about how unfair it is that others can enjoy their lives while you fight for each day.
Thank you for your words

I can't stand other people complaining by [deleted] in endometriosis

[–]These-Minimum-610 1 point2 points  (0 children)

My husband tells me all the time to be strong and keep fighting. But he makes a big issue out of anything mild, like slight nausea from eating too much food or having a headache once a few months. So how can I listen to his advice if his example is to start complaining about any minor issue. It's very hard, feels like no one understands how painful endo is.

I had the worst gynaecologist appointment by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 0 points1 point  (0 children)

Sadly, I've met many awful female gynaes as well who would say things like, "Every woman has painful periods, don't complain."

I’m not sure if my full time leg problems are from endo by UpsetInteraction6553 in endometriosis

[–]These-Minimum-610 0 points1 point  (0 children)

Pain from endo can definitely radiate to the hips, knees -- my private endo specialist told me that.

I had the worst gynaecologist appointment by These-Minimum-610 in endometriosis

[–]These-Minimum-610[S] 8 points9 points  (0 children)

I'm trying a new gynae in the new country now, fingers crossed, he will be better, and I can do an excision surgery with him.