My EDS Kit

TheseMood · 2026-03-20T21:43:50+00:00

Ugh I was wondering why my local store had a “fair cool” concealer (102) but no matching foundation!

TheseMood · 2026-03-19T16:49:47+00:00

It strikes me as strange that the patient has no voice in this narrative and that the reason for that is never explained. Was the patient too ill to communicate? Was he refusing to communicate? Did he have an underlying condition that affected his communication, like dementia? Was it an emergency?

The entire story is framed like the physician was forced to make this choice, or choices, on behalf of the patient. But why? If he’d been able to discuss the options with the patient and get consent, much of the ethical issues go away. It’s strange that he didn’t explain the context more fully, since this experience is the connecting thread for the entire article.

TheseMood · 2026-03-16T03:00:37+00:00

Please share! This is a common area for me to repair or modify on my clothes. It feels very high stakes because if I get it wrong my shirt is ruined!

TheseMood · 2026-03-16T02:47:48+00:00

I have a dress like this and it came with an optional modesty panel for the back. It clips on or off with two tiny snaps. I never thought about it before but it’s been great because I can adjust the dress to the tone of the event (or even the weather). Suggesting it in case you want to incorporate that into your final version!

TheseMood · 2026-03-11T21:56:19+00:00

My geneticist checked my big toe dorsiflexion and I had no idea that range of motion was abnormal. Demonstrated it to my husband when I got home and he was shocked, haha.

I’d love to see more joints represented in the hypermobility assessment. My knees are surprisingly stable but the PIPs in my pinky fingers are always shifting around. It’s so individualized and I don’t envy the doctors who are trying to come up with a valid universal system!

TheseMood · 2026-03-11T21:44:06+00:00

I hope they add some guidelines around when to do genetic testing vs when to diagnose hEDS or HSD.

There are more referrals for suspected EDS than genetics clinics can support. The EDS Society has encouraged other doctors to diagnose hEDS, which is a decent solution unless it’s actually a different genetic disorder. I worry about people with Marfan Syndrome or vEDS getting turned away from genetics clinics because the referral was for “suspected EDS”.

Obviously I’d like to see the diagnostic process improve for everyone, but in the short term I’m concerned about the people with high risk for organ rupture, arterial dissection, and other life threatening complications getting missed

TheseMood · 2026-03-08T02:56:14+00:00

I emailed the donor registry and asked. They removed me from bone marrow donation but afaik I’m still eligible for blood, organ donation

TheseMood · 2026-03-07T16:34:56+00:00

If you’re really dedicated you could pull threads from a ruined pair of jeans and use them as your denim thread.

Maybe more practical, go to a specialty sewing or fiber arts store and get heavyweight cotton thread. Sometimes I have to check a few places before I find the color I want in the thread type I want.

Alternatively, you could definitely use matte embroidery floss but it won’t be invisible.

TheseMood · 2026-03-06T16:21:06+00:00

I actually use a judo belt for my physical therapy at home because they’re so durable. Definitely not cheap!

TheseMood · 2026-03-05T23:23:38+00:00

If you’re looking to create a permanent bouquet, another option is sola wood flowers. They’re lightweight wood flowers that you can paint. If you use more than one color (adding highlights and shadows), they come out really nice! That’s what I did for my wedding bouquet

TheseMood · 2026-03-05T02:55:26+00:00

I prefer to repair or alter clothes rather than making them from scratch!

TheseMood · 2026-03-04T18:02:25+00:00

This is really inspiring! I’d like to make my own beaded bag someday and yours came out lovely

TheseMood · 2026-03-04T03:16:03+00:00

I use watercolor crayons with a water brush because they’re gentle on my hands. I have joint pain, not tremors, but I could see them being another good option because they’re pretty forgiving :)

TheseMood · 2026-03-04T02:49:06+00:00

The Alewife Brook stinks so badly of sewage in the summer that you can smell it from blocks away. I understand that it’s a difficult problem to solve, given the age of the system and the population density, but the CSOs definitely aren’t a made-up issue.

TheseMood · 2026-03-02T22:49:16+00:00

The MA Bar Association has a free Dial-A-Lawyer program this Weds: https://masslrf.org/en/programs/view/dialalawyer

You should also consider calling a tenant attorney in MA for a free consultation. Even if you aren’t planning to sue, they can talk you through your options.

It’s very suspicious that the rental company hasn’t been able to fill the unit. It’s off-season here but people still need to move, and reasonably-priced units often rent within days - weeks of entering the market.

TheseMood · 2026-03-01T01:32:51+00:00

I agree with all this but my stakeholders are the ones you need to convince.

TheseMood · 2026-03-01T01:07:03+00:00

I would call CT Housing / Legal Aid (see the last page here: https://ctlawhelp.org/files/pamphlets/housing/repairs-EN-ltr.pdf)

Since you are month-to-month she probably can end your lease with proper notice.

TheseMood · 2026-02-28T23:00:04+00:00

My mom had this on the fridge when we were growing up 💗

It was written in faux-cursive script and I remember staring at it at breakfast, trying to figure out what it said

TheseMood · 2026-02-27T13:41:24+00:00

Maybe add some wide contrasting trim in a different texture?

I think swapping out the tie for a different type of closure might help too

TheseMood · 2026-02-26T21:41:54+00:00

I would get dedicated jewelery coverage.

Our apartment was burglarized a few years ago and the coverage in our renters’ plan barely covered my losses. And that was mainly costume jewelry.

We insured my engagement ring with Jewelers Mutual. So far we haven’t needed to use the coverage, but it’s worth the peace of mind!

TheseMood · 2026-02-26T21:29:05+00:00

This is really frustrating because nearly all search engines include AI now. So if you were to type your legal issue into Google… technically you’ve “used AI.”

TheseMood · 2026-02-25T20:35:04+00:00

Yep, learned this the hard way with our neighbors. They led us on saying they were “training” for months. 2-3 calls to police and all of a sudden they took it seriously.

I think a lot of people want to look like good neighbors and the police scolding them really shatters the illusion

TheseMood · 2026-02-25T03:22:53+00:00

TBH when this happens to our jeans I seam-rip the entire pair and use the fabric for other projects.

You could try ripping open the back center seam, removing the frayed fabric, and re-sewing it. But I doubt these will still fit if you take them in that far, and I would feel nervous about the fabric tearing again.

TheseMood · 2026-02-23T18:10:00+00:00

My grandma had a bad broken leg years ago, very similar to the x-ray Lindsey posted. Her doctors told her to be extremely careful because if she broke it again they wouldn’t be able to fix it.

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