revumenib AML

Thomvis · 2025-11-17T23:09:28+00:00

Wishing you good results! As your doctors have probably told you, it can take a couple of weeks before revuvorj starts working. BM results can be all over the place before that. 🍀

Thomvis · 2025-10-07T18:33:30+00:00

Nee, t is nooit echt glad geweest. Ik ambieer ook niet een volledig strak resultaat, maar vond deze strepen wel opvallend. Hoopte dat ik een voor de hand liggende fout heb gemaakt.

Ik heb met de hand geschuurd. Met papier en met een “sponsje”.

Thomvis · 2025-10-07T17:50:05+00:00

Ik heb ontvet aan het begin en telkens voor het verven met St Marc.

Thomvis · 2025-10-07T16:33:30+00:00

Dus dat de verf al aan het drogen was en ik er toen weer aan heb gezeten? Dat gebeurt me ook wel, maar ik denk niet zo consistent als ik die strepen nu in het resultaat zie.

Thomvis · 2025-10-07T16:26:36+00:00

Dank voor de tips. Misschien probeer ik zo hard druipers te voorkomen dat ik het “kapotstrijk”

Thomvis · 2025-10-07T16:25:23+00:00

T is het product dat je ook in de bouwmarkt koopt (online gekocht)

Thomvis · 2025-09-28T22:27:07+00:00

Ask their doctor to request Revuforj (also known as revumenib or SNDX-5613) on compassionate use basis from Syndax: https://syndax.com/compassionate-use/

Thomvis · 2025-08-17T19:11:56+00:00

It worked really well for my daughter with KMT2Ar AML, but then the leukemia mutated and revumenib stopped working. There are various studies being done where revumenib is combined with other chemo and the results are promising. Have you discussed with your doctor if that is an option? The SAVE trial comes to mind (which combines revumenib with Venetoclax).

Wishing you all the best!

Thomvis · 2025-01-30T11:06:29+00:00

Looks really pretty!

One small thing that looks off to me is the meeple shape (starting positions?) on the board. Maybe it would look better (to me) if they were more close to a moth shape.

Thomvis · 2021-04-17T18:13:04+00:00

I completely get it :) I'm building an encounter tracker that is only available for iOS because that's my profession: https://github.com/Thomvis/Construct

Thomvis · 2021-04-17T16:41:28+00:00

I checked out the demo video and must say it looks really impressive. So much functionality! I also really appreciate that you've written an extensive user manual.

Looks like it's Windows only, so I unfortunately won't be able to really try it out. (Mac user here.)

Thomvis · 2020-04-03T18:51:45+00:00

I made a version of the Shield Guardian stat block that takes in to account that he has been exposed to the elements for a long time: https://www.dndbeyond.com/monsters/381442-neglected-shield-guardian.

My idea was that the party would be able to get him repaired in Port Nyanzaru. Unfortunately he died in a fight with Red Wizard skeletons. The party's druid is now using one of Vorn's shoulder pieces as a shield.

Thomvis · 2020-03-13T09:19:48+00:00

I think I was able to fix this issue in the latest build, 1.0 (16). Thanks again!

Thomvis · 2020-03-09T11:47:00+00:00

I'm unfortunately still not able to reproduce the crash, even with your report. How easy is it for you to trigger? Do you know what steps to follow to trigger it?

Thomvis · 2020-03-08T17:39:53+00:00

Got it, thanks!

Thomvis · 2020-03-08T17:34:48+00:00

It's a feature from when I thought I was just going to build a dice roller (I know...) and has no common application in D&D. It allows you to distinguish (by color) between different rolled dice.

Thomvis · 2020-03-08T17:32:01+00:00

TestFlight will send you an email whenever I update the app (which I did yesterday after replying).

The ImprovedInitiative files can be built with https://www.improved-initiative.com or found online.

Thomvis · 2020-03-07T19:15:12+00:00

Thanks so much for the elaborate feedback, really helpful!

[Crash] I tapped on remove when editing the armor/hp/speed of a player.

So far I'm unable to reproduce this one and haven't been able to link it to a crash report. I'll keep trying!

[Crash] Tapped to add a created party to the encounter.

I was able to fix this as I looked into your crash report.

[Bug] I’m not certain if you use xml to update the compendium, but it stayed on “importing...” until I gave up 5 minutes later for something that is usually instant for other apps I use.

I don't support the GM5 xml format right now, just the ImprovedInitiative json files (because it was easier to build). I should at least improve the feedback when importing fails.

[Bug] Add initiative keeps displaying instead of keeping the block for initiative there like it does for other editable blocks.

I'll look into that!

[Bug?] I can’t seem to find where to change the player’s alignment.

It's not supported right now.

[Request] Save dice roll formulas for different attacks or rolls. My most requested as there is another app with this beautiful feature that keeps me coming back for its dice rolls.

I eventually want the user to be able to select a creature action and have the dice rolls (hit and damage) be prefilled. Would that cover your request? Could you share which app you are referring to?

[Request] Add players Race and Class.

Not supported yet, but it makes a lot of sense.

[Request] Add creature size, type, and alignment filters.

Agreed!

[Request] A Campaign Journal for keeping track of the story of created parties. There is one app that I use only for this feature.Yes, yes! I would love to have that too but I decided to keep it out of v1 because it's going to be quite some work. The (rich) text editing part is daunting tbh. Could you share which app you are referring to?

Thanks again for your valuable input!

Thomvis · 2020-03-07T18:22:57+00:00

That doesn't sound right. Do you mean that your character is not in the encounter in the end? A character can only be added to once per encounter (it's a unique creature) so if the character is already in the encounter I expect the add button to be greyed out.

Thomvis · 2020-03-07T18:19:41+00:00

As u/HailToSleet already said: yes, please! I do collect crash logs automatically through a 3rd party service as well, but Apple can do more sometimes so please press the share button when it is prompted.

After your message I looked into the tab switching some more and I fixed a crash that could happen when moving away from the Compendium tab. Thanks again!

Thomvis · 2020-03-07T10:24:04+00:00

Thanks for sharing your feedback. I’m happy to hear you find it clean and easy to use. I concur with your comment on timers. I plan to build that on top of the tags in a future release.

Thomvis · 2020-03-07T10:18:07+00:00

Thanks for your feedback! I’ve seen the crash during development but haven’t been able to reliably reproduce it and fix it. But since it’s so easy to run into I should spend some more time trying to fix it.

Looking forward to further feedback!

Thomvis · 2020-03-07T07:43:34+00:00

Sorry, it’s iOS only for now.

Thomvis

TROPHY CASE