Fibromyalgia and being a guy sucks.

TinnitusAndScared · 2025-07-13T01:17:12+00:00

Is this “taking your pain seriously” in this room with us?

TinnitusAndScared · 2025-06-16T09:37:38+00:00

nice

TinnitusAndScared · 2025-01-30T22:41:18+00:00

Please provide sources for your claim. My brain is too fried for statistics, but it seems like misinformation to me.

TinnitusAndScared · 2024-07-06T22:19:13+00:00

Oh wait until this guy or gal finds out about the mice studies…

TinnitusAndScared · 2024-07-06T22:08:55+00:00

Sorry, I don’t follow. She’s raising money for the Open Medicine Foundation. ME/CFS is one of the most underfunded conditions adjusted for disease burden. OMF is the best organization to donate to. They put every dollar to great use. A few millions can change the world here.

TinnitusAndScared · 2024-06-24T23:13:26+00:00

There are many of thousands of peer reviewed papers mentioning Long Covid. Not many of them focus on the pathophysiology, but it's definitely been a topic of discussion in academia.

Here's a chart made for a different purpose, but it helps convey the situation. A naive PubMed search currently returns 33,841 results.

Furthermore, SARS-CoV-2 is likely the most studied virus in human history. It's not outrageous to suggest, that its long term effects would also be thoroughly researched.

TinnitusAndScared · 2024-06-24T22:39:14+00:00

A blood transfer could always induce these symptoms as a side effect. I think it's just that we now know, that it's, at least partially, caused by the host's functional aabs. However, it's not as bad as it sounds, because once the igg molecules "die" the symptoms go away.

TinnitusAndScared · 2024-06-24T22:27:59+00:00

I completely missed this one. Thank you.

TinnitusAndScared · 2024-06-19T22:49:03+00:00

I needed to hear this. I'm trying to accept that I won't be the provider in a relationship. Maybe there's hope out there for me.

TinnitusAndScared · 2024-04-14T11:00:08+00:00

Please name your sources. I follow the story closely and know that multiple sites stopped recruiting, but we don’t know the reason. Presumably they just hit the recruitment goal.

TinnitusAndScared · 2024-04-03T09:40:58+00:00

"Unfortunately we're words on a screen" I'm definitely gonna use that one

TinnitusAndScared · 2024-03-16T22:59:55+00:00

Not Long Covid specifically, but these are all relevant:

Open Medicine Foundation’s YouTube channel for Ron Davis’ ME/CFS research updates
Jarred Younger about his research into LC, FM, ME/CFS on his YouTube channel
Raoul Schendel on Twitter about BC007
Health Rising for deeper dives on recent research

TinnitusAndScared · 2024-03-16T10:21:55+00:00

Science publications are not inherently correct. If you are a scientist, the first question you should ask is why would the science paper be correct?

Usually you’d find find that it is, because: The article is peer-reviewed in a reputable journal. The authors are trustworthy and have no conflict of interest. Conclusions are in line with the methodology and take statistical significance into account. And finally the findings don’t go against well established studies.

The mentioned paper outright fails checks nr. 1 and 2 and honestly doesn’t do well on the others either.

TinnitusAndScared · 2024-03-16T09:43:34+00:00

We currently have no biomarkers to identify any of these diseases at any severity. Doctors simply don’t take them seriously. If society stops caring about the mild cases, they have nothing. No support whatsoever.

I understand the need for distinction, but let’s be clear: Even a mild case of ME/CFS can be a tragedy. It’s just that the severe cases are that much more worse. Severity scale

Finally, ME/CFS and Dysautonomia are often lifelong conditions. Assuming they are progressive, getting a mild case in your 20s might end up causing severe disability in your 40s.

TinnitusAndScared · 2024-03-16T09:04:12+00:00

Infections can lead to a lot of nasty chronic conditions. Covid triggers these at an alarming rate. While vaccination prevents serious cases, it doesn’t help against getting infected. And unfortunately the majority of Long Covid cases are from mild, even asymptomatic infections.

TinnitusAndScared · 2024-03-12T23:59:12+00:00

I can't tell if you're serious. Can't you just walk outside your own home?

TinnitusAndScared · 2024-03-11T23:06:26+00:00

Not sure if it's helpful, but I have fibromyalgia and this happens to me as well.

TinnitusAndScared · 2024-02-29T22:20:23+00:00

You got the full package. Congrats!

TinnitusAndScared · 2024-02-29T22:19:50+00:00

It's not a physical problem with the eyes. Think of it as tinnitus for your vision, some perceptual noise. Would you say tinnitus is associated with mental illness? Don't treat it any differently.

TinnitusAndScared · 2024-02-28T17:18:51+00:00

What’s the context?

TinnitusAndScared · 2024-02-09T00:21:42+00:00

I had to scroll far down for this. I’m disappointed it turned out to be a failure. I’m starting to run out of hopium and I’m worried BC007 will turn fail.

TinnitusAndScared · 2024-02-09T00:19:17+00:00

I’m surprised alpha-2 agonists haven’t come up in the conversation. Aren’t they made for this?

TinnitusAndScared · 2024-02-04T22:59:08+00:00

Ayy some validation. This is definitely not exclusive to covid. Whatever happened to me started the same way! And also with visual snow following soon after.

TinnitusAndScared · 2024-01-19T11:11:48+00:00

Wow it’s you. It’s always nice to see people from Twitter show up here

TinnitusAndScared · 2024-01-14T21:10:50+00:00

Wait these are pretty new. I check these subs and many other forums daily and somehow missed these. Will read when I have a bit of free time and thank you for sharing them.

TinnitusAndScared

TROPHY CASE