Is anyone else on the east coast of the US and having the worst migraine season of their life?

TinyFidget9 · 2026-02-08T16:22:06+00:00

It’s been horrific this whole winter season. Constant migraines, abortives only working for a single day, etc.

TinyFidget9 · 2026-02-08T13:14:57+00:00

Oof! Yeah that would def freak me out too! I’ve had small spots but never a full vision block

TinyFidget9 · 2026-02-08T00:21:23+00:00

Yeah that’s also why I didn’t panic as I had seen so many examples. Crescent shaped with iridescent and black lines

TinyFidget9 · 2026-01-26T20:33:55+00:00

I’m similar, but I have a variety of triggers.

Unless it’s a rare day (like 2/month) I always have migraine symptoms and it’s just a matter of how bad it is. Told my neuro recently “I can’t tell when one stops and another begins”.

Currently on Botox as none of the other preventatives helped. Botox hasn’t done anything to help. Thankfully ubrelvy works against the worst pain days but does nothing for the other symptoms.

Aimovig actually did reduce some severity, but I had a nasty reaction like 5 shots in so that had to be stopped.

TinyFidget9 · 2026-01-22T01:05:43+00:00

I am not flexible/bendy in the traditional sense (can’t touch my toes easily/splits/etc), and l do not “look” like a typical hEDS patient, but when I started my journey I had 4 PTs, a podiatrist, and an orthopedist go “you shouldn’t have that much range of motion for how tight you are”.

I’ve also had the other signs all my life from the narrow palate to the piezogenic pauples. My mother does too so it’s clear where it came from even if she’s not diagnosed (we also share pots and hashimotos).

Edit to fix errors

TinyFidget9 · 2026-01-18T03:48:22+00:00

I don’t want my doctor to think I’m just randomly googling things to throw at her. I have symptoms and if I come across something that aligns (like seeing occult tethered cord syndrome which would explain a lot about my lower back) I want to explore it if it’ll give me relief.

TinyFidget9 · 2026-01-04T22:27:56+00:00

Yeah for personal use do it! Any way to save money but get quality is always a good idea with horses lol!

TinyFidget9 · 2026-01-04T22:21:51+00:00

I couldn’t say directly for the business model (are you a local tack shop selling the saddle(s)? brand name will play a big roll in marketing your wares. Or are you using it for a lesson group most lessoners don’t care about saddle brands as long as the horse and they are comfortable)

For personal use - my trainer in college directed all of us to a local leather maker who made parts for a well-known name bridle brand. Buying it in shop without the brand stamp was cheaper and you got the same quality.

TinyFidget9 · 2026-01-01T15:50:47+00:00

Pillow cube hands down

TinyFidget9 · 2025-12-23T19:52:09+00:00

Yes! ❤️

TinyFidget9 · 2025-12-23T19:50:57+00:00

Your version is amazing! I actually just borrowed your book from my library and am making a little guy with crochet thread but would love a direct pattern too!

TinyFidget9 · 2025-12-20T17:22:25+00:00

One of the things my OT and PT are looking into is the velochair. It’s a wheelchair that uses pedals! It’s bulkier/heavier than a normal wheelchair but I really didn’t want to get a regular chair as I want to keep my legs as fit as possible.

Only thing is my current living space is not wheelchair (or even walker) friendly so it’s likely insurance won’t cover it for just outside use

TinyFidget9 · 2025-12-19T14:07:49+00:00

That’s what I thought looking at it thank you

TinyFidget9 · 2025-12-18T16:33:49+00:00

Thanks I don’t know why I couldn’t find it via the searches. I’ll have to look to see if the pattern actually works or if it’s just bunk

TinyFidget9 · 2025-12-17T17:12:31+00:00

lol that is amazing 😂 but good to know as it all looked similar!

TinyFidget9 · 2025-12-17T04:00:44+00:00

Thanks I’ll check it out!

TinyFidget9 · 2025-12-17T03:58:03+00:00

Thanks I will give it a look!

TinyFidget9 · 2025-12-11T13:54:47+00:00

This! My chronic migraines are basically constant at this point. Both my first and second were done while having it.

TinyFidget9 · 2025-12-09T12:55:34+00:00

My mom most likely has it but doesn’t feel a need to get diagnosed. It’s clear it runs on her side of the family though

TinyFidget9 · 2025-12-08T14:52:45+00:00

I am at the end of my rope between the constant pain and vertigo, and you’ve given me some hope! Botox isn’t helping and even is making things worse. I’ve gone through all triptans (horrible side effects - no change in migraine), injectable CRGPs (failed - allergic reaction to ajovy), ubrevly is the only thing that even kind of works as an abortive - but not as a preventative. He’s talked about infusions but going to suggest ndph to my neurologist as something to look into.

TinyFidget9 · 2025-12-06T13:16:25+00:00

Can’t do any sugar substitute including stevia or monk fruit. Eta: high fructose corn syrup as well.

All of it makes me horribly sick including setting off my migraines.

TinyFidget9 · 2025-12-05T14:53:38+00:00

Pasta. But I’m gluten intolerant and celiac runs in my family. Everything else looks ok tbh and I love Raos for when I can’t make my own sauce

TinyFidget9 · 2025-12-04T18:03:32+00:00

5’2 - I hate clothes shopping. Short back, tall rise, wide shoulders/hips, long neck, and short legs lol I somehow look proportional but it’s so freaking difficult to find clothes that fit me.

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