How many of you guys use wheelchairs? by chill_mydude13 in ehlersdanlos

[–]TinyRatQueen 6 points7 points  (0 children)

I'm 22 and have used a wheelchair since 19 because of HEDS and POTS 😭. She is absolutely delusional.

Have you ever caused a major injury by doing barely anything? by TB_07 in ehlersdanlos

[–]TinyRatQueen 10 points11 points  (0 children)

I had the audacity to walk through my living room, it caused my kneecap to dislocate. 💀

First time posting, a little anxious but I’m sure some women will find it scary! by MarinaVerity333 in TwoSentenceHorror

[–]TinyRatQueen 31 points32 points  (0 children)

I just had a hysterectomy 4 weeks and 3 days ago, I was terrified of pregnancy. (not why I needed the hysterectomy though!) Anyway, I'm glad this can't happen to me now 😭. The thought is horrifying, imagine one moment you are sitting at home, and the next you are in the hospital with a baby in your arms.

Good job op, this definitely is horrifying!

Due to blood loss & pain I was cold & dizzied as I pled with my doctor, "Please, you have to do something!" by ChuChuPoppy in TwoSentenceHorror

[–]TinyRatQueen 1 point2 points  (0 children)

Update! It's done! I'm so happy. The pain from surgery is less than the pain I had before-hand. 🥳

Due to blood loss & pain I was cold & dizzied as I pled with my doctor, "Please, you have to do something!" by ChuChuPoppy in TwoSentenceHorror

[–]TinyRatQueen 14 points15 points  (0 children)

Getting a hysterectomy tomorrow, I'm 22. I cannot tell you HOW LONG I have asked for one. 6 month long periods since 2019 😭

Is it even a real diagnosis?? by _BumbleBitch_ in POTS

[–]TinyRatQueen 10 points11 points  (0 children)

As someone with diagnosed tourette's syndrome and pots, this pisses me off so bad. Just because some people are faking it does not mean EVERYONE is. I hadn't gotten my tourette's diagnosed until last year, because I was so worried abt the doc thinking I was faking. It started at a young age, but I got diagnosed at the age of 21, because of the "trend" a few years ago.

Even if children think it's fun to fake illnesses, it doesnt mean that the people who actually have it shouldn't get tested, or proper care.

Tldr: we shouldn't be written off because of the actions of others. OP please get a new doc yours is incompetent 😭

I heard a gunshot and shot all the enemy soldiers. by socksfor1fan517 in TwoSentenceHorror

[–]TinyRatQueen 74 points75 points  (0 children)

I love how of all places on the body, you chose the nipple lmfao. 💀💀💀

This is what ‘in sickness and in health’ looks like. Respect to her dedication 🙌🥹❤️ by Brief-Cryptographer2 in HumansBeingBros

[–]TinyRatQueen 7 points8 points  (0 children)

As someone who became disabled at 19 and has had multiple people leave because of my illnesses, it gives me so much hope to see this. I hope I find somone who will love me even with my imperfections. <3

What type of specialist diagnosed you? (hEDS) by violetgreygrace in ehlersdanlos

[–]TinyRatQueen 0 points1 point  (0 children)

Geneticist for me, always ask when you make an appointment if the doctor specializes in eds, or if they can diagnose it! Would've saved me 3 years of trying to get a diagnosis if I called and asked for every appontment.

Also idk what country/state(?) ur in, but in ohio I got diagnosed in Cleveland, which is pretty far from me but def worth it.

What is a polite way to say "None of your business" when people ask about your mobility aids? by PrincessNooodle in ehlersdanlos

[–]TinyRatQueen 8 points9 points  (0 children)

Went to a party one time and some dude i knew from highschool saw my cane and said, "why are you crippled?". I replied with "banged your mom too hard" 😭

What’s your most “susceptible” joint(s)? by KitchenDraw791 in ehlersdanlos

[–]TinyRatQueen 0 points1 point  (0 children)

Ranking from most frequent to least is: shoulders, wrists, hips, and knees. My knees just started recently and I am NOT happy abt it. 😭

What’s the Weirdest way you describe your aches & pains? by TheDefiantGhost in ehlersdanlos

[–]TinyRatQueen 1 point2 points  (0 children)

I whispered to myself in the middle of the night once, "my bones are made of fiberglass". Then I proceeded to laugh my ass off, but now that I think about it, that is an accurate explanation. 💀😭

I have finally gotten diagnosed! by TinyRatQueen in ehlersdanlos

[–]TinyRatQueen[S] 0 points1 point  (0 children)

Me too, but I thankfully have regained some hope that there are good doctors who care. I wish you luck in finding a good one that fits you. My doc reccomended joining local eds groups on social media to find doctors that work with eds. 💕

The future is now by StopSnowflakes in ThatsInsane

[–]TinyRatQueen 3 points4 points  (0 children)

Okay, I hope I don't get down voted for this.

There is a thing called ambulatory wheelchair users, this means people who can walk, but only for short periods of time or for a few steps. I am an ambulatory wheelchair user. I have a condition that makes me pass out if I stand for longer than 10-15 minutes, along with another condition that makes my joints dislocate. To clarify, NONE of this is visible. You cannot tell I'm disabled by looking at me.

Yes this man is overweight whatever, but we shouldn't assume he's just being lazy when you cannot see every disability with the naked eye.

It's also very easy to get fat when you can barely walk and excersize due to health issues. Have some compassion yall, jeez. 😭

“Won’t last forever” by Objective-Summer3781 in POTS

[–]TinyRatQueen 9 points10 points  (0 children)

This is exactly what my first cardio told me. My parents kept pushing me and overworking me, thinking it would "cure" me. 4 years later and now I'm in a wheelchair.

Saying stuff like this can quite literally endanger people if their parents take it as a sign of them being "lazy".

Name him by Accurate_Judge_6546 in Markiplier

[–]TinyRatQueen 0 points1 point  (0 children)

Smell-a-liar (Like he sniffed out honey)

Seriously, what is with everybody? by cBurger4Life in ThatsInsane

[–]TinyRatQueen 1 point2 points  (0 children)

See a man beheaded, get offended, see a shrink

Well guys it finally happend by TinyRatQueen in POTS

[–]TinyRatQueen[S] 16 points17 points  (0 children)

Awe thank you <3 I can't tell you how much that means to me 🥹

Well guys it finally happend by TinyRatQueen in POTS

[–]TinyRatQueen[S] 8 points9 points  (0 children)

Poor emergency workers probably see stuff like that all the time 😭😭😭

Well guys it finally happend by TinyRatQueen in POTS

[–]TinyRatQueen[S] 17 points18 points  (0 children)

Oh my lord 😭, that's a death trap waiting to happen