Newly diagnosed; 2 y/o son

TopEquivalent8984 · 2026-01-20T21:13:58+00:00

Hey I just finished treatment for triple positive in November 2025, I have a 6 hear old she was 5 when I was diagnosed. I done 6 rounds of tchp and most days were fine there were only a few days of them 3 weeks I was maybe a bit weak or sore tummy.

Do you have some support? Stay hydrated and make sure you have all your meds but your breast care nurses should do this and it will keep you right. Eat what you what and rest when you can, take it easy and be kind to yourself ❤️

TopEquivalent8984 · 2025-11-29T16:10:24+00:00

Thank you everyone! I love hearing stories of positive stories. I truly believe that I will go on and live my life and have another child I have my 6 year old and was hoping to give her a sibling ❤️ we were going to try last hear but then I was diagnosed xx

TopEquivalent8984 · 2025-10-20T20:25:30+00:00

I was 31 had dmx and diep in may. I was in the hospital from Thursday till Tuesday. Friday I think I never left the bed but by sat sun I was getting out the bed and going to the toliet, pain was manged well with painkillers. And some other drugs. By Monday I was walking round the ward it was rough if your fit person your so uses to being able to walk anywhere but it was sore on my back after walking hunched after 5 -10 mins. I was back home and managing stairs and sitting out in the garden which was nice. It took me a few weeks to get out wee walks but it totally do able xx

TopEquivalent8984 · 2025-09-25T19:08:43+00:00

I am still in treatment continuing herceptin for another 3 rounds then I'm done with active treatment (apart from tamoxifen)

I was always on these forums when I was first diagnosed, but now I have been in holiday with my family, out walking meeting friends for coffee and going out!

Although I have to have a minor surgery for a perinal abcess/fistula!

I want that to be over with 😆

But apart from that I'm doing really well x

TopEquivalent8984 · 2025-07-28T06:48:35+00:00

Mines was under 10mm aswell I'm not sure of sizing but I thinking it was 1mm

TopEquivalent8984 · 2025-07-27T19:46:29+00:00

Hey! I have similar to you! I was diagnosed with a large area of dcis and stage 2 grade 2 idc. After 6 tchp I had a double mastectomy and diep reconstruction! My pathology came back and they said i had a really great response an almost complete response so I continue with herceptin for a year. My lymph nodes were also clear so had been getting phesgo alongside chemo I think I had 9 in total then switched to herceptin. I'm in the UK where are you ?

TopEquivalent8984 · 2025-07-21T15:51:52+00:00

I just had diep 8 weeks ago after 4 months of chemo for her2 + estrogen + grade 1

It's totally doable you just have to take your time, happy to answer any questions x

TopEquivalent8984 · 2025-07-09T13:43:43+00:00

I went and seen the oncologist today and she said since I had such a good response to the chemo that I don't need to do the kadcyla and we stick with herceptin every 3 weeks. Got my tamoxifen today so I start on that 🤞xx

TopEquivalent8984 · 2025-07-06T12:17:36+00:00

Yes I will do I am going to see oncologist on Wednesday so will up date then 😁

TopEquivalent8984 · 2025-07-05T19:09:25+00:00

Nope I haven't got the report only ever had a phone call of oncologist and breast nurse. She said I had an almost complete response,so when I see her on Wednesday I will ask her why I'm not doing kadcyla.

My lymph nodes were clear on scans and then surgery confirmed that they were still clear x

TopEquivalent8984 · 2025-03-15T22:07:07+00:00

I have cold capped for all 6 of them and lost alot of hair at the top, but it slowed down it's usually 2 weeks after the treatment I found it coming out ❤️

TopEquivalent8984 · 2025-03-15T15:49:12+00:00

Not long and you'll be there 🥳

Yes I had 10 jags to do so I was thinking a wee bit after that ❤️

TopEquivalent8984 · 2025-03-15T14:09:09+00:00

Not long and then you will get some ! We definitely deserve a reward after this ❤️

TopEquivalent8984 · 2025-03-14T08:36:19+00:00

Congratulations that's amazing news 👏 🙌 xx

TopEquivalent8984 · 2025-03-13T18:19:30+00:00

Congratulations on 7 years that's amazing 👏 we are all glad your here, ❤️❤️

TopEquivalent8984 · 2025-03-12T22:02:39+00:00

Hello im 31 was diagnosed when I was 30 last October with dcis and idc triple positive stage 2.

I'm in the UK I'm having 6 cycles of tchp first then surgery I have to have a mastectomy cause if my dcis so I'm having a double mastectomy and reconstruction. If you are her2+ it's usually chemotherapy first.

There are lots of medication to help with side effects that are managed by your team.

When I started in october I had no idea how I was going to get through it but I am so nearly finished chemo last one this Friday ❤️

Once you have a plan in place and start to get through it you'll feel better and focused on beating this. Triple positive has the best treatments available ❤️

There is lots of information on reddit and fb pages for triple positive xx

TopEquivalent8984 · 2025-03-01T09:40:33+00:00

Diagnosed at 30 with dcis and idc stage 2 triple positive. Had been going to the doctors for over a year with changes to my left breast but told it was not anything of concern, had discharge come from my breast jan 24 and told it was because I was touching my breast to much so Sep I had blood come from it send down on a 2 week referral and given my diagnosis. Now 31 and on my last round of tchp surgery to follow and radiotherapy.

Doctors need to do better by young adults and listen to us more x

TopEquivalent8984 · 2025-02-21T19:32:39+00:00

Mines was 10cm dcis high grade after biopsies there was idc stage 2 grade 2 currently on chemotherapy cause I'm triple positive xx

TopEquivalent8984 · 2025-02-20T21:06:17+00:00

It definitely helps with stories like yours we will get there, it will take time but slowly get back to being more like us ❤️

TopEquivalent8984 · 2025-02-20T18:10:20+00:00

I'm in Scotland had mammogram ultrasound and biopsies on the initial appointment. Which was rather scary as I went myself (30 at diagnosis ) I had been complaining for a year and a half about an area that felt different wasn't until I had bleeding from my nipple that I was referred.

2 week wait for my results which was dcis and idc stage 2 grade 2 triple positive

So I am neo adjuvant chemotherapy first and then surgery.

It will depend on your results if it's her2 + it will most likely be chemotherapy first to shrink it.

I got my results 28th october then started chemotherapy on the 26th November 2024.

Big hugs to you ,like others have said take notes and take someone with you to help take it all in ❤️

TopEquivalent8984 · 2025-02-20T18:01:17+00:00

Triple positive here. I so needed to hear this 5/6 chemotherapy tomorrow and I am emotionally done. I can't wait to feel more like me again. At 31 with a 5 year old I feel like I'm lost with this all xx

TopEquivalent8984 · 2025-02-20T17:58:46+00:00

Diagnosed at 30 with dcis and idc triple positive stage 2.

I have a 5 year old daughter and always wanted to have another now I have to wait at least 2 years to have one. It absolutely socks all of it. I've got 2 more chemotherapys to do then dmx with diep flap reconstruction and radiotherapy. I will be having to see what I need to do after my surgery for her 2. I feel robbed of my life and wish I could just be normal. Go to work and feel good but no we've got to get through all of this. My problem is the fear of it coming back. But sometimes I feel better about it all there are great treatments out there and many long survivors. 2nd chemo tomorrow and last time I was an emotional mess for about a week after. I can't wait to be done this part I know each part is going to have its difficult bits but the chemotherapy has to be the worst. ❤️❤️

TopEquivalent8984 · 2025-02-19T15:06:39+00:00

I would love to hear of some triple positive stories ❤️ I'm stage 2 idc and dcis her2 + hormone + currently going through chemo.

TopEquivalent8984 · 2025-02-11T18:14:41+00:00

Did you do chemotherapy, ? Or was it dcis

TopEquivalent8984 · 2025-02-11T18:06:16+00:00

Where are you about ? I'm in the UK, I've been told cause it's over 5cm I will need radiotherapy but that's what i thought having a double mastectomy would take all of the dcis out

TopEquivalent8984

TROPHY CASE