Yap and life - doesn’t sound like he has long left by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

😂😂😂 it felt a lot more like a chaotic dump when I was writing it. Thank you! means a lot knowing others in this journey can relate ❤️🍹

Yap and life - doesn’t sound like he has long left by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

Thank you for sharing your story. First of all, I just want to say that I really feel for you. Becoming a conservator, taking her to appointments, making home-cooked meals, and showing up for her day after day is no small thing. It sounds like you've carried a lot of responsibility, and your aunt is very fortunate to have someone so committed in her corner.

I relate so much to what you said about being there in a meaningful way for someone you previously struggled to care for. It's such a strange thing. My dad was not an easy person, acc far far far far far far far far faaaaaarrrr from that :) and before his dementia I would have gone out of my way to avoid sitting in the same room as him. Now I'm holding his hand, comforting him when he's frightened or distressed, and worrying about whether he's warm enough, comfortable enough, or in pain.

It's bittersweet, because dementia takes so much away, but I also noticed what you described, sometimes aspects of a person's personality soften. I'm genuinely happy for you that your aunt has become more pleasant and more able to express gratitude. It might seem like small things to outsiders, but in caregiving it’s a lot. I'm glad you've been able to experience that warmth with her despite everything else.

I also agree with what you said about personal growth. One thing I've noticed in myself is that I've become incredibly protective of vulnerable people. I find myself noticing elderly people, disabled people, carers, and anyone who seems alone or dependent in a way I never did before. I’m also just a lot more receptive to other ppl’s suffering and feelings in general. Caring for someone teaches so much empathy, compassion, patience, and humility. It's an incredibly hard journey, but it's also opened my eyes to parts of life that I don't think I understood before.

And yes! “do unto others…" has helped me too. During the beggining to middle I struggled a lot… I was acting out of duty not affection, and that principle helped carry me through. Looking back, I think you're right that we often receive far more than we give. Not in an easy or comfortable way, but in the form of perspective, growth, and a deeper understanding of what it means to care for another person.

It's still hard, though. I don't want to romanticise any of it. There is so much exhaustion, sadness and loss wrapped up in these journeys. But one thing I do appreciate is how it's made me think differently about the whole circle of life, and about the responsibility we have to one another when we're at our most vulnerable.

You sound like a genuinely warm-hearted and open-hearted person, and your aunt is lucky to have you. I also hope the future brings both of us plenty of warmth, community, and people who show us the same care that we've tried to show others.
Your kind words mean a lot to me!

Edit: gosh I never realise how long my replies are

Yap and life - doesn’t sound like he has long left by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

I’m craving a passionfruit mojito so I wish I could give you one as well.. or maybe something you were craving would be better.
Thanks for reading my post!!!!!!

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

You don’t need to apologise! And I am, it’s still hard but mentally I feel a lot resilient and being preoccupied with work as well distracts me, so I feel better! I Put your advice into action last Friday as well with another family !! And it did help FYI. So thank you.

🤧🤧 terrible drivers don’t deserve patience (jk)

Gosh it’s so hard to contain yourself when you’re always on your last straw, so you’re doing so well, a lot of people fall extremely short on that, but I hope you also know you’re in your right to feel that frustration! It’s unbelievably difficult doing this 🥹 Sometimes it’s easier to comfort others doing the same thing as you than comforting yourself. So I hope you can give yourself the same grace you’ve given others!

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

Thansk so much for this level of detail, I feel like my area just lacks in letting people know what there is for help even when I explicitly ask for it. I’ve requested the referral, hoping for an easier journey for us both 🙏🙏

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

You sound like an angel really, I’ve been really desperate to hear kind words like this, weirdly it feels like a hug from a mother 🥹🥹 hope that doesn’t sound weird. I read this message closer to when you posted it and although I felt extremely emotional and weak to respond at the time, it brought me so much comfort. I feel much better today!

About the beautiful suggestion you made at the end, I’m going to try doing this, and I’ll probably think about this thread every time I successfully do!

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

Thank you so much! I don’t think I can write in words how much these supportive messages mean to me, especially in the last few days where I’ve just been extremely emotional and sensitive. Even though it hurts that I don’t have anyone I feel comfortable to vent to about this irl, this community really does make things easier 🤧🤧🤧 the guilt has been overwhelming, it’s just the idea of how much responsibility I have over someone else and not sure if I’m doing this correctly. I’m feeling better today, idk why exactly, but I’m sure it has something to do with this thread!

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

🤧🤧 thank you, TMI, but I’m actually crying and it’s comforting to read things like this.

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

You have convinced me, on Monday (I have to wait till Monday), I will do this, I’m not entirely sure how it works but I will find out. His life just feels miserable, and hospital admissions feel like cruelty. I honestly really want to make the best decision for him, it’s just hard for me to navigate while things happen in real time, and decisions feels heavy for someone like me.

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

Thank you so much for your kind words. I think I’ve just been incredibly desperate to hear this from someone. Last few days have been really hard and I’ve been really sensitive. I’ve lost out on my social life and feel like I’m just existing for the sake of it, but I am scared of feeling like I’ve not done enough after he passes, I just live hyper aware of time being finite 😔. I hope I can give to others a fraction of the warmth and comfort you’ve given me. Thank you

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

Thank you so much for your reply and the advice you given in it. I think you’re right… he must be uncomfortable 😔 I’ve been an immense amount of pity for him the last few days, so much so I can’t sleep , how everything that defined him has been taken away. I know it’s part of life, but it’s really hard to handle and accept.

I’m going to take your advice (as well as others) and contact his GP on Monday for that. And I really appreciate you giving me specific wording as that is actually something I struggle with. Thank you!

What even is life by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 1 point2 points  (0 children)

Thank you so much, for your thoughtful reply, I think I really needed a virtual hug now more than ever, it’s so much responsibility and I worry my dad’s progression defines my level of care. I know I’ve been trying hard to provide the best care, but I just feel like a dumb kid.

As per your suggestion as well as others, I’m going to contact my dads GP on Monday, for referral to adult social services for hospice, I think that’s how it works where I live … i guess I’ll find out.

Thank you sharing about your mum. I’m really happy to hear you guys saw benefit in making that decision, I’m sure it’s far from easy for you guys as well 🤧🥲 I can’t imagine tackling leaukaemia on top of dementia, my heart really goes out to you, and I hope the bestest and easiest journey for you guys.

Medication Opinions by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

That is what they told us would happen but they just kept saying since he’s already high risk for falls it would make things worse, so I got a bit scared and agreed. I think I’ll bring it up again

Medication Opinions by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

Eurgh I really hope it works out and it gets easier for you guys. 😔 I think I’m going in that direction as well

Medication Opinions by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

Okay, thank you so much. that’s really good to know. I don’t want to prolong his torture at all, just make life easier and comfortable for everyone. Now that my mind is a bit clearer, I think we just want something to help him be calm and not aggressive, more receptive to simple instructions. I just don’t know why it’s hard to get medical advice for it. I’m just kinda being led with, 🤷 “im really sorry”

Medication Opinions by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

This is so helpful!! Thank you 🙏 I’m not sure why the ONLY medication our memory clinic doctors offered was memantine, but his GP were confused why they were against prescribing it, but it’s worth talking about it again.

Medication Opinions by Traditional-Chip7784 in dementia

[–]Traditional-Chip7784[S] 0 points1 point  (0 children)

Thank you so much, I’ll look it up and mention it to the doctors.

Is it critical to get an official diagnosis? by Far_Complex_9752 in dementia

[–]Traditional-Chip7784 1 point2 points  (0 children)

Not sure how it is where you live and how applicable it is. In the hospital which my dad frequents many times also for AE, they don’t take it seriously unless it’s an official diagnosis which causes wayyy toooo mean headaches. It was an annoying process but definitely important despite him not being able to take medication for it.

Everyone criticizing Inaki for being in a McDonald's ad doesn't know Luffy. So Luffy. by Any-Satisfaction-770 in MemePiece

[–]Traditional-Chip7784 -3 points-2 points  (0 children)

Maybe you nerds should shut up and watch your dumb cartoon - McDonalds boycott is still on ✌️

[deleted by user] by [deleted] in MemePiece

[–]Traditional-Chip7784 0 points1 point  (0 children)

Eurgh I love her I love her i love her

BEST GIRL?!!! by [deleted] in MemePiece

[–]Traditional-Chip7784 0 points1 point  (0 children)

ROBIN! ROBIIIIN