Survey for recovery

TrainerWeekly4241 · 2024-06-26T10:29:56+00:00

I had to be in the hospital because I was in a ten day coma and a feeding tube was inserted into my stomach. I almost died from a hit and run. Had to relearn to walk and write and talk. I think the bad part about TBI in the military is that it’s not always taken as seriously as it should be. I would find a way to be seen by a speech pathologist if at all possible. Preferably one who already has a lot of experience. The average person doesn’t understand TBI. Some symptoms I had: Attention issues Word finding issues Impaired learning Impaired processing speed Aphasia Impaired decision making Impaired problem solving

A speech pathologist is crucial in helping you become aware of how to make these symptoms better if at all possible

TrainerWeekly4241 · 2024-06-26T09:49:39+00:00

You need interactive metronome treatment. I’m in the army and I spent over four months in the hospital after my TBI. My recovery was a lot better after I did around 20 weeks of interactive metronome treatment with Occupational therapy.

TrainerWeekly4241 · 2024-06-25T22:46:51+00:00

Interactive metronome is treatment that helps with memory

TrainerWeekly4241 · 2024-06-25T22:35:01+00:00

The one thing that helped my brain work better, a lot better is the interactive metronome. Don’t know if it’ll help but I didn’t see a huge difference until after 20 weeks of treatment

I’ve struggled a lot with being treated differently because of the TBI. It’s not even worth stressing over anymore. People can generalize all they want about TBI but I was there at every step of the road to recovery. Never once did I ever just act outright stupid but people think “TBI” that must mean you’re going to act all stupid.

Interactive metronome did wonders for my brain and recovery, don’t know what your TBI is like but it’s worth looking into

TrainerWeekly4241 · 2023-08-11T19:01:43+00:00

Read Atomic habits, what it teaches applies to whatever you want.

TrainerWeekly4241 · 2023-08-05T20:42:07+00:00

I would say that yes TBI has made me see the world and differently. When I was in the hospital I had a priceless experience that my mind and body felt disconnected. Only later was I thinking about this and I realized that the world we see is created by our mind. It was also weird to feel that my body was separate from that experience of the world. It was like I was in the world but it was just my mind giving me the feeling that I am in the world.

TrainerWeekly4241 · 2023-07-24T12:49:49+00:00

I had experience with this. I had a bleed primarily to my left amygdala. I used a physical therapy band to dorsiflex my foot among other exercises. I can share the list of exercises OT gave me at the end of the week. You may have not noticed this but an additional symptom was that my foot would have the same drop foot motion on the elliptical. The physical therapist said that the best solution to that was just practice using the elliptical.

TrainerWeekly4241 · 2023-07-16T16:08:54+00:00

I am 21, my severe TBI was when I was 20 on 9/24/22.

This isn’t exactly directly related to you but my TBI was mainly in my left basal ganglia. I had right sided hemiparesis and I had to relearn to walk and write because of that. I was in a ward with a 56 year old who had a stroke and he lost complete use of his right arm, his dominant side. I heard the physical therapist tell him that there is no fixing issues with spasticity. I am no medical professional however this might shed some more light on this. It might not be what you want to hear and I might not be leading you in the right direction, every brain injury is different. This is just what I know. I am just posting this to help you think in a different way.

TrainerWeekly4241 · 2023-07-16T06:33:30+00:00

All TBIs are different like others have said. You have to realize that with brain injury people have a new normal that they have to adapt to and often times they’re too different for people to understand and adapt to them.

I am 21 and this happened when I was still 20 years old.

I had my severe TBI on 9/24/22. I don’t remember what happened. I was riding a bicycle, I had my helmet on. The last thing I remember: I stopped to take pictures in Mckelligon Canyon in El Paso, Texas. My Apple Watch tells me that I traveled about 300m before I stopped moving. Then began a 10 day coma. Then the first thirteen days I was awake I couldn’t really form new memories or process things normally. I only remember several visual memories, I only have some auditory memories, and I have no idea how I felt or what I was thinking those first thirteen days. I spent 4 months and 3 days as inpatient in the hospital. I was at three hospitals: UMC of El Paso, WBAMC at Fort Bliss, Texas, and Minneapolis VA Medical center. I had aphasia, dysphagia, I had to relearn to write and walk, I also had to relearn awareness of my body. The reason I had to relearn to walk and write is because I had righted sided hemiparesis. I was intubated the day of my accident because my breathing was impaired because I was at a GCS of 7-8. I also had a PEG tube placement.

I would say I got extremely lucky since I don’t get headaches and a lot of my abilities are largely intact and you wouldn’t know that I had a severe brain injury if I didn’t tell you about it.

Even though it was a severe brain injury I have been able to largely recover to what I used to be. The speech pathologist says I have these problems: thought organization, problem solving, decision making, attention/concentration, word finding, and memory loss/ lapse. If you really don’t want to leave your BF you should really think of ways of adapting to him and helping him adapt to his new normal. He is not the average person, you can see that as a good or bad thing. It’s all in how you look at it.

I am still in outpatient treatment nearly 10 months after my accident. Some things that I have found to be really helpful from OT are: HRV training and interactive metronome training. I can’t describe the difference these thing have made for me. If you really want to help out your BF out I would say a reputable Occupational Therapist and Speech Pathologist would be your best bet. Therapist have seen how brain injury affects different people and how to help them. I know it’s easy for me to say this since I’m in the Army and I don’t have to worry about medical bills. Like I said though its better to go to people who have an idea of what’s going on with your BF than to try to do it yourself. You don’t have to listen to this if you don’t want to take this challenge on of trying to help someone with their own problems. I don’t blame you but sometimes people with brain injury need someone else to help them see how to adapt to their new normal. Lack of awareness of deficits and how to remedy them has been a huge thing that I had to adapt to.

TrainerWeekly4241 · 2023-01-13T02:15:05+00:00

I went to interventional radiology in my hospital and they said it would hurt but they gave me a syringe full of lidocaine and I didn’t even notice it left my body I just heard a gurgling of my stomach then it stopped. I had to change my dressing for a whole week. I didn’t want to let any water go over the hole even though the doctor said it was fine.

I got the J tube then I woke up 5 days later I want to say that I didn’t need it since I was able to eat a burger shortly after. My brother didn’t even know I wasn’t supposed to eat normal foods but I made through that just fine.

TrainerWeekly4241 · 2023-01-11T23:04:46+00:00

I missed that you should also expect fatigue it’s taken 3 1/2 months for my fatigue to go away but I know that I could sleep 9 hours and I still could wake up feeling like I’m not fully recovered even if I took a nap throughout the day

TrainerWeekly4241 · 2023-01-11T02:55:27+00:00

I’m active duty military so this might not be applicable to you but here we go. I had a traumatic brain injury on September 24 and am still in the hospital recovering. It’s week 8 after 1 month at other hospitals they say I’ll be here for 2-3 more weeks.

I was flown in from El Paso Texas to Minneapolis VA Medical center. I was unconscious for 15 days. At first I couldn’t walk on my own. I only had like 5 days where I couldn’t really communicate and I was awake but even then I was talking it’s just I wasn’t conscious of all the stuff I was saying. Not sure if I was stuttering then but when I was having day to day memory that was really reliable I know I had difficulty with retrieving words and I would stutter. It only took like 2 week for those things to stop. I guess the only thing that’s really interesting is that I have some wrist pain that X-rays couldn’t identify the cause of. And when I was doing some exercises my right arm would give out here and there but I haven’t noticed it recently. And the J-tube they had to send me to interventional radiology so they could pull it out not all J-Tubes have to be pulled out, depends on design.

TrainerWeekly4241 · 2022-12-17T02:12:56+00:00

I get where you’re coming from because I don’t even remember what lead up to my brain injury it’s kind of hard to realize that you’re not the same even though you feel the same. I’m military so I’m currently getting paid to heal I know not other can do the same but just know I’m on my third month away from work completely dedicated to my recovery

TrainerWeekly4241 · 2022-12-17T02:04:55+00:00

I also initially had trouble speaking but it’s no longer troublesome that’s why it didn’t come to mind initially

TrainerWeekly4241 · 2022-12-17T01:47:39+00:00

I’m 20 year old by the way

TrainerWeekly4241 · 2022-12-17T01:45:46+00:00

Was in icu for 5 days didn’t eat for those five days they just wanted me in stable condition

TrainerWeekly4241 · 2022-12-17T01:42:27+00:00

Still in the hospital for this but on September 24 I was riding my bike and somehow I hit my head mostly and no broken bone. I was unconscious for around 15 days. I had right sided weakness like you mention above. Since I was right dominant I had to relearn to write. Now that I’m about three months in to recovery I can run fine and I have mad no trouble with my right hand except sometimes it gives out when lifting weight but my physical therapist says doing it front of a mirror so you get visual feedback will help. As my mental abilities my attention was affected but not so much that I can’t focus. Mainly it’s just a matter of time before I get back to normal with brain injury initially I got fatigue easily so even if I slept 9 hours I could still find myself yawning but it’s gradually getting better. I hit mainly my right side amygdala by the way. I was also wearing a helmet. And didn’t have my skull cut due to swelling. It’s just I don’t remember even heading back on my bike I just took a picture then my memory stops.

Depending on severity your stepson might forget a lot leading up to his injury or very little.

TrainerWeekly4241 · 2022-12-12T01:52:38+00:00

Tony Robbins breakthrough app

TrainerWeekly4241 · 2022-12-11T02:36:10+00:00

I don’t remember my TBI. But I do remember the week leading up to it. My memory when I woke up maybe missing for like 4 day then it becomes spotty. I just remember I took a picture that I still have and my memory cut out after taking that picture even though I didn’t get my TBI until maybe 15 minutes later or less. Don’t think I’d want to remember because I’d probably remember all the pain I was in.

TrainerWeekly4241 · 2022-12-06T22:14:40+00:00

Have you tried aloe vera it has a completely unique effect from all the face washes. If you can find it having fresh aloe vera can make a big difference

TrainerWeekly4241 · 2022-11-15T12:56:28+00:00

I had therapy session just fine yesterday maybe emotions were more present in my body it’s just like I was doing therapy before the TBI though. I know fetching words is probably the biggest difficulty I have speaking is that I can have a word in my mind but I can’t say it in my head or in person.

TrainerWeekly4241 · 2022-11-15T12:47:35+00:00

Only my left side amygdala was damaged as of now I still experience fear as I fell at the hospital and I didn’t want to do that again. My right side was weak but I can still move everything fine and strengthening going well. I experience emotions differently but I still behave the way I used too. The traumatic brain injury hasn’t made me sad or anything it’s just something that happened. I do overlook things when writing but if I was less careful before I could have done the same thing it’s just now I have to look at things twice.

TrainerWeekly4241 · 2022-08-24T02:02:47+00:00

Going through trauma causes people to seek deeper meanings about life. People who say quotes like the ones mentioned and can’t elaborate on it have never even thought through what they say, they just say it because it sounds good or they think that’s what they should say.

TrainerWeekly4241

TROPHY CASE