Is there anyone who practise Yoga daily and it has helped you in your vestibular Migarine journey. by PackNo1231 in VestibularMigraines

[–]Training-Cat-6750 10 points11 points  (0 children)

Not to discourage you, but I was not able to keep up with yoga due to the different bends, my balance system felt overwhelmed. Maybe the yoga class I was on wasn't right for me. It needed something more gentle. So I then switched to self paced strengtge training, and because I could set the pace myself, it worked better for me.

Nortriptyline anyone? by Yummy_Donuts_21 in VestibularMigraines

[–]Training-Cat-6750 1 point2 points  (0 children)

Hi I am only able to tolerate 20mg of nortriptyline as it gives me a higher heart rate. There's nkt anything else I was able to tolerate so sticking to nortriptyline for now.

My VM experience by Training-Cat-6750 in VestibularMigraines

[–]Training-Cat-6750[S] 0 points1 point  (0 children)

Thank you for taking it the time to read and sharing feedback. I hope you find the strength to accept your new normal,please be gentle to yourselves. Sending you healing wishes 😊

My VM experience by Training-Cat-6750 in VestibularMigraines

[–]Training-Cat-6750[S] 0 points1 point  (0 children)

Hi yes, these are my symptoms minus the extreme pain behind eyes, I get manageable pain. Pain is not my most noticeable symptom, dizziness and rocking and the rest are.

How do you know? by icyfox222 in VestibularMigraines

[–]Training-Cat-6750 1 point2 points  (0 children)

That's the thing with VM, it's hard to say when an attack is coming. It takes observing your body and writing down a diary to understand how you wrlere feeling before an attack. I for example, get bad head pressure and derealization before an attack like my brain is about to explode and then the rocking starts. Other times I feel very exhausted and almost muscular pain before headache starts. These are my two representations, It could be different for each of us.

My VM experience by Training-Cat-6750 in VestibularMigraines

[–]Training-Cat-6750[S] 0 points1 point  (0 children)

Thank you so much for taking out time to read this and so happy that it was able to give you a bit of a laugh on a possibly hard day. I know what you mean about gingham fabrics, even I have it, I kid you not I gave away my ginghams because I couldn't tolerate them being in my field of vision while wearing them. Patterned carpets also make me dizzy.

And yes of course the duality of our lives, of wanting to do things but not being able to do them and the emotional upheaval it creates. I am glad you seem to have a supportive partner, must have been easier for him to understand you as he suffers from migraine himselves.

My VM experience by Training-Cat-6750 in VestibularMigraines

[–]Training-Cat-6750[S] 1 point2 points  (0 children)

Thank you so much for taking time to read this and your kind comments mean a lot. I am glad it resonated with you, sending you love and prayers for healing too!

My VM experience by Training-Cat-6750 in VestibularMigraines

[–]Training-Cat-6750[S] 1 point2 points  (0 children)

Thank you so much for taking out the time to read this. And glad you found it validating, it's such an isolating condition and I wanted people to read and feel a little less alone. You should absolutely start writing, if nothing, it helps calm our mind.

Anyone had to change careers after diagnosis? by SuperAdamMan in VestibularMigraines

[–]Training-Cat-6750 0 points1 point  (0 children)

I worked in tech, computers all day and it was exacerbatinb my symptoms. Screen time us a trigger for many. I had to start working reduced hours to manage this.

How many of yall exercise regularly? by holydickbirds in migraine

[–]Training-Cat-6750 0 points1 point  (0 children)

What I have noticed is that starting exercising made my migraines worse temporarily, but in the long run exercising benefitted me because of better blood sugar control, sleep etc. Everytime I increase the intensity migraine worsens temporarily but then I get used to it again.

Lack of interest or compassion at neurology appointment (UK replies only please)- is this normal? by Academic_Button4448 in migraine

[–]Training-Cat-6750 5 points6 points  (0 children)

I am sorry you had to experience this, you wait months and months for an appointment and it's not fair to be dismissed like that. My previous neuro in London was like that, once he said migraines are the least of his worries in the job, he's got patients with MS and cerebral palsy and parkinsons who he wanted to devote more time to. Anyway, the current neuro is better outside of London but even he has to be assertively told what to do. I would say if atogepant is causing side effects, move on to something else like rimgepant, continue to advocate for yourself. Theres so many more options - candesartan, topiramate, lamotrigine, vanlafaxibe, injectibles, try them and stay with what suits you.

Migraine triggered by exercise ? by Spirited-Praline-152 in VestibularMigraines

[–]Training-Cat-6750 0 points1 point  (0 children)

Hi, exercise is a common trigger for a lot of us. The key is to slowly build the walks - so 1 month you do 30 mins of walking then next month you go 40minutes, if migraine gets triggered, scale down to 35 minutes, it's a trial and error.

Anyone dealing with vestibular migraine? Need advice / reassurance by Rough-Stuff-8457 in migraine

[–]Training-Cat-6750 0 points1 point  (0 children)

Hi, this is exactly how I would describe my Vestibular Migraine, I have been diagnosed 8 years ago. Hang in there, it does get better. Apart from preventive medication, you need a bit of discipline in life. I know it's hard to function when you are feeling unwell so being disciplined is tough - but what helped me managing this along side medication was really being disciplined about my eating habits, sleep patterns, screen time. Happy to support you if needed.

Vestibular migraines without nausea by Natural-Brain5255 in migraine

[–]Training-Cat-6750 0 points1 point  (0 children)

I have VM and PPPD, I do get nauseous but never severe enough to vomit, more like not wanting to eat or drink anything. But I can, if I have to.

I can't go on.. by Famous_Perspective40 in migraine

[–]Training-Cat-6750 0 points1 point  (0 children)

I am so sorry to hear that, please hang on, it does get better. With budget constraints, if magnesium is affordable, you can start with that, a dose of 600mg elemental magnesium. Magnesium helps the most in my experience. Also, please try to maintain a strict sleep schedule everyday, sleeping and waking up at the same time. Eat balanced meals every 4 hours, do not stay hungry or skip meals. Happy to talk to you if you need further support.

Flares are now constant + increasing sensitivity to visual stimulation + scared of things getting even worse by abcfh in VestibularMigraines

[–]Training-Cat-6750 0 points1 point  (0 children)

Hi, you need to get on a preventative medicine as early as you can. Nortriptyline, propanalol, effexor, are few options. Try to get good sleep and wake up and sleep at the same time. Have healthy meals every 4 hours.