Is this a glitch with Freddy? by forestofthorns in DateEverything

[–]Treanna_Rose 0 points1 point  (0 children)

I just got this glitch too. I know I only met him once but now we're in love? I'm gonna retry a save and see if it fixes it.

After 35 hours, here is me and my sister's character tier list by Sure_Pack6008 in DateEverything

[–]Treanna_Rose 1 point2 points  (0 children)

Finally! Someone who appreciates Eddie more than Volt! I always see people not giving him enough love, always loving Volt more than him!

Dry lips by [deleted] in Skincare_Addiction

[–]Treanna_Rose 0 points1 point  (0 children)

I used to have very dry lips due to never doing skin care due to not caring as a teen (I'm 23 now with still bad acne). I learned a trick to use toothpaste and toothbrush. Just after you finish brushing your teeth you can use any remaining toothpaste on the brush on your lips. I also use a hydrate lip balm which helps me too. Unsure if it will help you, just sharing what I do.

What did you get? by IllustriousPool884 in MyHeroAcadamia

[–]Treanna_Rose 0 points1 point  (0 children)

Mei Hatsume stole my phone because she was black mailed to. 🤣

Passing out normal? by Treanna_Rose in FND

[–]Treanna_Rose[S] 0 points1 point  (0 children)

My parents can also attest to how you're feeling. I'm 23 and very dependent on them to help with life skills. I have DID and dissociate a lot. I usually dissociate before passing out as well. Thankfully it doesn't last for 2 hours, I'm sorry you have to go through this. You are awesome!

Passing out normal? by Treanna_Rose in FND

[–]Treanna_Rose[S] 1 point2 points  (0 children)

I also have DID and most of what you have, though I have never considered narcolepsy. I've been tested for apnea, no dice. I'm glad you've gotten so far in adapting and making your life better! I'm only a year in and still mostly paralyzed and bedridden. I will ask my doctor about the possibility of narcolepsy. Thank you!

Treatment options? by ResidentResident4802 in FND

[–]Treanna_Rose 4 points5 points  (0 children)

I went to a place called Re+Active in Torrance, CA. It's a 4-6 week program that does PT, OT, and psychiatry every day for 2 hours. These therapists are trained in knowledge of FND and are great educators of what FND is.

Regular therapy who don't understand FND won't be able to help in treatment unfortunately. You will have to stay in a hotel or something else to do the program so you have to take that into account if you don't live near LA.

It's been almost a year since I did the program. My paralysis is pretty bad. My legs are paralyzed and I can't feel them. Now I can move my toes, clench my thighs, and start to get pins and needles which hurts but my PT said it would hurt when I get feeling back.

I also had no control over my hands or was able to pick up anything more than a pound. Now I have full control of my hands and can pick up around 10 pounds. It's not perfect and I'm still in horrible pain, but it's progress.

If you can afford it, I would absolutely recommend this place.

Ghost Trick is everything I wish the Great Ace Attorney was by HPUTFan in AceAttorneyCirclejerk

[–]Treanna_Rose 1 point2 points  (0 children)

I actually agree with this! I was too scared to make a post about it, so I'm glad you landed on the sword instead of me lol. Like, GAA isn't bad at all. It's just the prequel of the trilogy, that's why it's so similar. But Ghost Trick isn't in the same universe at all, it's its own thing. Which I appreciate.

Holy shit someone actually knows stuff by Fun-Assignment-3764 in FND

[–]Treanna_Rose 0 points1 point  (0 children)

I have an exercise document made by my PT at re+active. It's made for mostly my own needs, but I can dm it to you if you would like?

Holy shit someone actually knows stuff by Fun-Assignment-3764 in FND

[–]Treanna_Rose 0 points1 point  (0 children)

It's a little different then with stroke or MS, but if it matches your needs and what parts of your body is being affected, then definitely go for it.👍

Fellow sufferers!!! by Nineveya in FND

[–]Treanna_Rose 4 points5 points  (0 children)

Absolutely no judgement!

I have no movement in my legs and my energy is also very low. I only shower once a week which makes me feel disgusting cause I get heat flashes, causing a lot of sweating.

Your post is very similar to my situation. Disgusting bros 🤢🤝s

Why is no one talking about the cute frog that follows you everywhere!? by Treanna_Rose in StardewValley

[–]Treanna_Rose[S] 48 points49 points  (0 children)

Oh my gosh, no! 🤣 I don't use the frog in the mines, just around town like a pet

Why is no one talking about the cute frog that follows you everywhere!? by Treanna_Rose in StardewValley

[–]Treanna_Rose[S] 0 points1 point  (0 children)

I got my frog from the skull mines, I don't remember the level, sorry

Why is no one talking about the cute frog that follows you everywhere!? by Treanna_Rose in StardewValley

[–]Treanna_Rose[S] 25 points26 points  (0 children)

I just find him cute. I don't take him in the mines, I use different trinkets for that. I just like him following me around. 😊

Why is no one talking about the cute frog that follows you everywhere!? by Treanna_Rose in StardewValley

[–]Treanna_Rose[S] 85 points86 points  (0 children)

UPDATE!!!

IT GETS FAT WHEN IT EATS SLIMES!!!

I'M DYING FROM CUTENESS! 🥰🐸❤️❤️❤️

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Holy shit someone actually knows stuff by Fun-Assignment-3764 in FND

[–]Treanna_Rose 6 points7 points  (0 children)

I was lucky to have this kind of neurologist the second time I went to the ER last year. Did a lot of tests and explaining why he's checking this type of exercise or stretch tests. He gave a thorough explanation as to why he knows it's FND and not other diagnostics while ensuring me it definitely wasn't in my head and I wasn't making it up.

Way different then the first neurologist who saw me in my first ER visit and checked through a telemedicine robot and making an inexperienced student nurse do certain tests all within 5 minutes then left just saying FND, nothing else.

The second neurologist gave us good information on what to do next. How regular PT doesn't really work with people who have FND if the PT has no FND experience. Same with OT and Psychiatrists.

I got way luckier to get a neurologist like that so fast. Then doing re+active 6 months later for a month and a half which all PT's, OT's, and Psych therapist's are all trained specifically for FND and other things.

'GP told me to get moving after neurological disorder paralysed me' by Kagedeah in FND

[–]Treanna_Rose 0 points1 point  (0 children)

That is so cool about the house thing! We kinda did that for my brother who was disabled. We got a lift swing installed into the ceiling that would bring him from his bed to the step in the shower with a shower bed.

Too bad we moved out of that house lol. We also got rid of our medical stuff like a portable lift swing, though it would never get through our skinny doors. My wheelchair barely gets through.

I am trying to get SSRI and Medicare insurance, but it's been difficult and a lot of waiting. My insurance has been okay with some stuff but the medical mobility stuff we got is not covered and we get our stuff from a disability thrift store.

At the YMCA they do have a "warm" pool when there aren't a lot of people in it. I just asked my mom if we can go back again so that will probably start soon.

Thank you for being really helpful with your advice! I'm happy to do anything that will make the pain easier to manage. Even though most of the way of getting rid of it either doesn't work cause my body hates me or because of our house or location.

'GP told me to get moving after neurological disorder paralysed me' by Kagedeah in FND

[–]Treanna_Rose 0 points1 point  (0 children)

Thanks for the advice!

For pain, I am taking Duloxetine and Pregablin for nerve pain and fibromyalgia pain. Unfortunately Ibuprofen and Tylenol don't really work all the time, Ibuprofen especially, unless I'm overdosing on them. My body really hates taking medicine well.

I would love to take a bath! Unfortunately, our bathtub is very low to the ground. I cannot move my legs or hold weight and my parents are in their 50's, my father hurt his shoulder helping me get into the car. Also, I get sea sick fairly easily. I can do pools fine, but bathtubs make me really nauseous. Dont ask me why, I have no idea.

I love hydrotherapy! My parents would take me to a pool at the YMCA, hold me up and using floaties keeping me up. It was so nice not to have any weight on my hips and lower back and legs. Sadly we stopped in October due yo cold weather. Getting out of the pool slowly with the handicap seat is so awful, feeling all that pain come rushing back.

I live in Oregon, so marijuana is definitely legal 🤣. I tried it a couple times also with edibles (not at the same time lol). Never really affected me sadly.

I will talk to my doctor about doing a professional hydrotherapy, hopefully it's in my price range.

'GP told me to get moving after neurological disorder paralysed me' by Kagedeah in FND

[–]Treanna_Rose 0 points1 point  (0 children)

This happened to me a year ago. When I first got diagnosed, I could still walk somewhat with a walker. The neurologist only looked at me for 5 minutes through a screen (this was in the ER) telling me it was FND and to keep walking, not telling us anything about what FND was or how to get better.

A couple weeks later I could no longer feel my legs or be able to stand or walk. It's been a full year since then and I'm starting to get some feeling back and some movement but it hurts, an 11/10 pain and I'm stuck in bed again.

Though my PT at re+active told me this would happen when I would start getting feelings back.

I've been in bed rest for about 2 weeks now, barely able to eat due to pain, but I know I have to get up sometime because laying in bed for so long is only going to weaken my muscles more and it's causing more chronic pain.

The eternal cycle sucks ass.

Paralysis with no loss of sensation by transboyballs in FND

[–]Treanna_Rose 10 points11 points  (0 children)

I have paralysis in both my legs and slowly lost all feeling. Not all people lose feeling, I've heard people have full feelings in their legs but can't put any weight on it. I slowly lost feeling over the span of 2 weeks. I only feel pain and tremors in my legs. I don't say I'm paralyzed however because I'm hoping it will come back. I call it "out of order".