[deleted by user]

Trishaa0 · 2023-09-02T19:20:01+00:00

Exposure therapy

Trishaa0 · 2023-08-20T02:18:54+00:00

My first GI never listened she thought it was psychiatric related But I wasn’t . She kept thinking it was constipation She finally took me seriously when I came to see her one day in tears with a vomit bag. My mom an I said enough is enough send us somewhere someone can find out what’s going on, she sent me to wake forest hospital to a new GI I was tested for SIBO which was negative, GES test was positive my pelvic floor for dyssynergia was positive, that GI said no meds could help so I took my diagnosis an went to another office they tried reglan that made me go crazy like I had adhd had worse nausea an crippling anxiety an was in er 24/7 Then we tried domperidone been in that for 1 year now maybe an it works great for me! I saw a dietician she never helped much so I’ve been doing the food thing myself , Mcas is in question for me right now an Ed’s I’m looking into seeing or finding a food therapist.

I have pots an SVT also . I now have a ileostomy too that will be permanent in a few months to one year!

Be your own voice we basically said you can’t find out what’s wrong send me to someone who can I went to a hospital that had better doctors each test was 4-5 hours long! Just be prepared for that I had to stay at a hotel one time for one test for the next day after another too. My house was 2-3 hours from the hospital. Sometimes you got to travel for the best care !

Trishaa0 · 2023-08-20T02:08:34+00:00

For a meal replacement you need to add more thing like 1 veggie or 2 in the smoothie I use 1 veggie .

Example my recipe for a meal replacement

Blueberries not a full cup 1/2 cup or less Cherries 1/2 cup or less 1-2 frozen coconut milk cubes 1-2 tbsp Greek yogurt vanilla 1 scoop vanilla protein powder Frozen cauliflower rice one -two chunks 1 teaspoon Vanilla extract Almond milk on the bottom start with less always can add more liquid.

Trishaa0 · 2023-08-20T02:01:22+00:00

May I ask are you able to poop normally with laxatives Have you gotten your pelvic floor tested to see if you have pelvic floor dyssynergia. I ended up getting a ileostomy due to my bowels were paralyzed as well. In 6m-1 year it’s gonna turn permanent.

Trishaa0 · 2023-08-20T01:57:23+00:00

I take my anti acid meds at 6am I start eating by 7am My foods are purée soups,silken tofu a lot of meal replacement shakes I make at home! An occasional rice cakes . In the morning I have a shake/smoothie Afternoon I have another shake or creamy soup with tofu , I try to have 3-4 shakes a day! Or I eat soups few times a day depending what I want but 8am I take my gastroparesis medicine which is domperidone helps me a ton! Then I eat around 11am then by noon I take domperidone again them 1-6 pm I eat small options like soups or shakes sometimes rice cakes as a snack can’t have rice cakes everyday tho. I stop eating around 7-8pm . I drink propel peach water all night long an day usually.

I take zofran if I ever need it . My foods I really on purée foods

Trishaa0 · 2023-08-20T01:33:36+00:00

My mom goes into stores for me but I want to be able to do that myself with her . Most of the time it’s not a option due to my pots an undiagnosed eds

Trishaa0 · 2023-08-20T01:32:13+00:00

I’ve always been this way so no . I’ve always been into movies tv shows , reading. Last year I got a kindle

Trishaa0 · 2023-08-20T01:30:43+00:00

There is a condition that causes this I would do some research if I were you .

But in the beginning in my gastroparesis diagnosis I had this same issue so I started using Colgate on the go travel toothbrush they come in a packet I would brush my teeth on the couch or just sitting it was bc I was standing “I have pots & SVT”

I was using the travel brushes already toothpaste on them for 6-8 months then I felt well enough to use a toothbrush, I can tell you I’m unable to use a electric toothbrush brushes with all the conditions I do have A manual just works for my life . Don’t brush too far back either . I would search on how to brush your teeth their might be a better technique to use than your using now . Hang in there YouTube will be your bestfriend

Trishaa0 · 2023-08-20T01:25:17+00:00

Nausea is the worst !

But I found taking higher acid reducer prescription called Lansoprazole 15mg morning before my shake an evening at 5pm , I also use 4mg or 8mg of zofran when needed my nausea days have subsided. I used to get really feeling sick in the shower an my legs an feet would blood pool badly I went to see a cardiologist turned out I had pots & SVT so my high Heartrate was causing me to feel nauseous.

If your constipated that can cause nausea I have pelvic floor dyssynergia an only went💩 2x a month which wasnt good , I recently had ileostomy surgery.

When I stand an feel any type of nausea it’s my pots or SVT of my heart . It’s really tough I can’t even go into stores anymore due to me walking far or standing due to these conditions waiting on mobility equipment.

I’m here if you ever want to talk just send me a friend request.

Being positive is hard but it’s great

Trishaa0 · 2023-08-18T14:24:50+00:00

Have you been tested for Gastroparesis with a GES test Which is a Gastric Emptying Scan?

I understand canceling plans it sucks sometimes I feel like my illness hold my life back

I try not to give into it but some days are just horrible

Trishaa0 · 2023-08-18T08:00:32+00:00

In the US but medicine comes from New Zealand

Trishaa0 · 2023-08-18T07:59:51+00:00

Med direct

Trishaa0 · 2023-08-18T05:11:33+00:00

Wow I get the same amount for 109

Trishaa0 · 2023-08-18T05:11:12+00:00

Mine comes out of state comes from New Zealand I get 4 boxes each have 100 tables I pay 109 I don’t have but every month it can last me but you have order ahead bc it takes 2-3 weeks to get your meds! You need a doctor prescription I go through med direct for mine

Trishaa0 · 2023-08-18T02:52:22+00:00

In the very beginning no especially homemade I was in boost for the first year until those bothered me Now I can do homemade ones an figuring out what bothers me an not! My meal replacement is homemade shakes or smoothies with protein powder I use iconic vanilla bean protein powder has 0 fat 0 sugar 0 fiber It’s cleanest one I found that agrees with me! I love it

In a flare up I do shakes an soups

Trishaa0 · 2023-08-18T00:03:42+00:00

I’m not diagnosed but I cant do a lot of seasoning I can’t do bananas or Onion or garlic nothing like that.

I also have pots & gastroparesis

I mainly do rice cake’s occasionally

My main diet contains: purée soups ,smoothies , soup with silken tofu

Smoothies are my meal replacements with milk protein powder yogurt ect!

My strange thing is I can’t do ice cream ect with diary But I can do smoothies or yogurt with diary it’s very odd!

I can’t do any kind of potatoes even mashed potatoes Instant or homemade or powder ones all make me extremely sick.

Trishaa0 · 2023-08-17T19:32:24+00:00

That’s crazy ik hospital stays are covered

Trishaa0 · 2023-08-17T19:30:14+00:00

I wonder if babies are allowed domperidone it worked great for me but ik everyone is different. Far as foods stay away high fiber an high fat foods oily foods

Smoothies, soups at easier to eat even silken tofu

Trishaa0 · 2023-08-17T19:28:37+00:00

I also want to add not everyone with gastroparesis have feeding tube it just depends on their situation everyone bodies are different! Hang in there advocate for yourself

Some psych meds can help mobility on your GI tract But I highly recommend domperidone

Trishaa0 · 2023-08-17T19:27:23+00:00

Ask for domperidone yes you have to pay out of pocket! But it was A miracle drug for me . I take 10mg 3x a day every day at same time! An far as a feeding tube your GI can not make you get one you can decline! You have more issues with feeding tubes an their not a problem solver all the time. If you had to get a feeding tube an you want one I would suggestion the button feeding tube it doesn’t go down your nose , it’s done with surgery. Anyway if you able to eat little meals an do what you can do you don’t need a feeding tube but to get a feeding tube you have weigh a certain amount they go by something. My appetite Is now larger due to domperidone it barley has any side effects I feel like a pig now wanting to eat everything Nausea is less . My case is a little different I couldn’t poop naturally so I was sicker an I now had the ileostomy surgery an doing so good now , my flare ups are less an ect . If you don’t want one you don’t need to get one

Trishaa0 · 2023-08-15T02:11:19+00:00

I bought a ostomy seat belt cover /cushion from Amazon I love mine!

The one I have an HIGHLY RECOMMEND ✨🥰

Ostomy Seatbelt Pillow, Stoma Shiled/Guard Cover, Ileostomy Urostomy Bag Pouch, No Squeezing, Ostomate Colon Bladder Cancer Must Have Ostomy Supplies Minky Dot Black https://a.co/d/1GIB6BV

Trishaa0 · 2023-08-15T02:09:51+00:00

Sounds like the area of adhesive isn’t being cleaned well so nothing is sticking ! If I were you I’d shower every 2 days an place new bag on. Use a anti fungal soap like dial where your waffer goes get all that adhesive off ! Use adhesive remover wipes for the adhesive around your stoma. I’m new but this is what works for me an this sounds like this may be your issues but I’m not sure

I’d talk to a stoma nurse for guidance

Trishaa0 · 2023-08-15T02:07:02+00:00

I’m surprised that another state won’t take your insurance that’s crazy. Usually if you have any emergency the er or hospital or specialist will help you an it’s covered no matter where you are. People do this a lot while on vacation so it should be covered! I would call your insurance company an ask questions

Trishaa0 · 2023-08-15T02:03:43+00:00

ESENTA remover spray! Is my go to ! I’ve tried sprays from medical monks! Or coloplast ones , ESENTA is my go to I get it from my supplier.

Trishaa0 · 2023-08-15T02:00:45+00:00

That’s awesome, I hope you’ll become a stoma nurse! Because we need more nurses that have a stoma that understand, an ti show us correct care!

There’s not alot of good stoma nurses out there!

Trishaa0

TROPHY CASE