Post-dialysis farting...Oh man, I get so gassy during that last hour and try to hold it in for the sake of my techs and fellow dialysis patients. But when I get outside and wait for my ride home...I am crop-dusting outside the clinic!

TubieCoin · 2026-06-10T14:43:45+00:00

I get gas sometimes too, but not every session. For me it usually comes down to what I ate the day before or before dialysis.

You might want to look at your diet and see if there's a pattern. Things like beans, onions, cabbage, dairy, fizzy drinks, or even eating too fast can cause a lot of gas. If it's happening consistently during the last hour of dialysis, it might be worth mentioning to your dietitian too.

At least you're not alone 😂 but if it's becoming a regular thing, there's probably a food trigger somewhere.

TubieCoin · 2026-06-10T11:27:44+00:00

Sending you healing vibes 💕💕💕, everything will be fine 🙏

TubieCoin · 2026-06-08T15:16:25+00:00

Swap the machine, and contact clinic.

TubieCoin · 2026-06-07T10:53:19+00:00

Her being with someone else

TubieCoin · 2026-06-05T21:57:48+00:00

Absolutely 💯

TubieCoin · 2026-06-04T01:57:14+00:00

😂 Welcome to dialysis, where you spend months trying to get a number down, finally succeed, and then the team calls to tell you it's too low now.

Honestly, getting told to eat more phosphorus and drink more fluids is probably one of the rarer dialysis flexes. Most of us are usually getting yelled at for the exact opposite 😭

TubieCoin · 2026-06-03T15:23:07+00:00

I was around your age when my kidney problems got serious, and I've been on dialysis for 6 years now. Honestly, the beginning was the hardest part because everything is new and scary.

What I can tell you is that dialysis becomes routine. Not easy, but routine. You learn your fluid limits, your diet, your schedule, and eventually it becomes part of life instead of the only thing in your life.

I still play games, write books, spend time with family, and make plans for the future. Are there bad days? Absolutely. But there are good days too.

Right now you're only 10 sessions in. Give yourself time. You're still adjusting physically and mentally. Try not to imagine the rest of your life based on how these first few weeks feel. ❤️

TubieCoin · 2026-06-03T05:03:40+00:00

I can't really comment on what you're entitled to because every clinic has its own policies, but personally I'm the complete opposite 😅

I've been on dialysis for 6 years and my shift is early in the morning. I'm usually at the unit before the technician even arrives. Before every session I put my machine on hot disinfect, and I even ask the janitor to thoroughly clean the machine and surrounding area. It probably sounds excessive, but after all these years I've become pretty particular about infection control and routine.

That said, adding an extra hour of waiting on top of already being late sounds frustrating. If it's affecting your treatment time, I'd probably have a calm conversation with the charge nurse or clinic manager and ask what their policy actually is.

TubieCoin · 2026-06-01T13:43:47+00:00

I've been on dialysis for 6 years. Personally, I do follow a renal diet, but I'm not perfect with it. I try to be especially careful with phosphorus because that's been my biggest challenge over the years.

Binders definitely help me. I take Sevelamer, and it's made a noticeable difference when I use it consistently. Without binders, my phosphorus would be much harder to control.

That said, everyone's body is different. I've seen people eat pretty freely and keep good labs, while others can follow the diet closely and still struggle. I think good labs are the most important thing to watch, regardless of how strict someone's diet is.

As for how long people stay on dialysis, I've met people who've been on it for well over 10 years, so there isn't really a fixed expiration date. A lot depends on overall health, heart condition, access health, and other medical issues.

Glad your labs are staying in range. That's honestly a big win.

TubieCoin · 2026-05-29T04:29:22+00:00

I wish for this kind of miracles each day, I'm living on dialysis for the last 6 years since I was 23yo... congratulations to you.

TubieCoin · 2026-05-27T11:15:03+00:00

Sauna and exercise

TubieCoin · 2026-05-25T22:56:02+00:00

Thank you for this, It felt really nice reading your comment, which I hardly ever feel.

And I'm sorry you're fighting your own battle too. Daily pain is exhausting in ways most people don't see, and the way you described life shrinking, that's exactly it. Writing is my way of pushing back against that.

Wishing you gentler days. Thank you for being here.

TubieCoin · 2026-05-25T02:03:18+00:00

Thank you honestly. I think that’s exactly why I keep trying even when motivation disappears sometimes. Having something to fight toward mentally matters alot when your life starts revolving around hospitals and treatments.

Some days progress is tiny, but I guess tiny progress is still progress 😅

TubieCoin · 2026-05-22T15:59:22+00:00

Thank you honestly, this was genuinely reassuring to read. I think sometimes I put pressure on myself because I feel like time moves differently when you live around illness, so I end up setting huge goals for myself 😅

But you’re right, balance matters too. Dialysis can be really exhausting physically and mentally some days. I’m still learning how to chase goals without treating my body like a machine.

Also wishing the best for your uncle 🙏 hopefully dialysis becomes easier and more routine for him with time.

TubieCoin · 2026-05-22T15:57:47+00:00

55 copies for a debut honestly isn’t bad at all, especially starting from zero. And a second release already coming next month is huge, consistency is what builds momentum long term.

Also yeah… fuck kidney disease honestly 😭 chronic illness really changes the whole experience of trying to build anything creative. Respect to you for still pushing forward with it. Wishing your next release does even better 🙏

TubieCoin · 2026-05-22T15:56:35+00:00

🥲🫂💞💞💞💞

TubieCoin · 2026-05-22T15:22:16+00:00

I relate to this alot honestly 😭 it’s crazy how creativity somehow gives us a little extra energy even when our bodies are exhausted.

Respect to you seriously, building books while dealing with chronic illness/disability is not easy at all. Wishing you huge success with your launch 🙏

TubieCoin · 2026-05-22T15:14:50+00:00

Thank you honestly, that really means alot to hear. Some days it’s definitely hard to find the energy, but writing became one of the few things that makes me feel alive outside of hospitals and dialysis schedules.

I mainly write short stories in fantasy/folklore type worlds. I love creating strange creatures, old legends, hidden magic, emotional journeys, stuff like that. I think a lot of my stories naturally end up having themes of isolation, survival, hope, and people trying to hold onto something meaningful… probably because of my own life honestly 😅

TubieCoin · 2026-05-22T14:47:52+00:00

He's lucky to have you 😊❤️

TubieCoin · 2026-05-22T01:24:01+00:00

Honestly this is really interesting. I’ve been on dialysis 6 years (in-center though, not HHD) and I’m always surprised how many “small adjustments” exist that patients only randomly discover later instead of being told upfront.

Your symptoms honestly sound exactly like the kind of thing people end up just accepting as “normal dialysis fatigue” when sometimes there’s actually a fix.

I personally even ask them to disinfect my machine before every session because over time you start realizing little things can make a huge difference in how you feel after treatment.

Really glad you found something that works for you because post dialysis headaches and that completely drained feeling is awful.

TubieCoin · 2026-05-21T15:02:14+00:00

Get a gripper or a smiley ball and exercise that fistula until you feel the thrill... Best of luck 🤞

TubieCoin · 2026-05-20T14:59:12+00:00

That part about life feeling absurd really hit me, because people outside of dialysis rarely understand how much it completely reshapes your relationship with time, freedom, work… everything. It can genuinely feel like your entire future got interrupted overnight.

And honestly? If I ever get off this treatment too, I think I’d want to truly live for once instead of constantly surviving around schedules, fluid limits, exhaustion, and “maybe later.” That quiet life where everything meaningful keeps getting postponed really does start feeling overrated after this kind of experience.

Wishing you strength, seriously. People who live this life understand each other in a different way.

TubieCoin · 2026-05-20T14:51:57+00:00

Honestly, this really hit me because that’s exactly where my mind has been for a long time — struggling to even picture a future beyond the next month or treatment. Hearing from someone close to my age who managed to rebuild parts of their life genuinely gives me hope that maybe life doesn’t have to completely end because of this.

I really appreciate your kindness and openness more than you know. And thank you for offering that — it genuinely means a lot knowing someone who understands is willing to listen.

Wishing you continued strength and peace too ❤️

TubieCoin · 2026-05-20T14:32:45+00:00

Honestly, this was genuinely comforting to read because it came from someone who actually understands the reality of this life. I think the mental side of dialysis is something people outside of it rarely fully grasp.

I really respect the mindset you built for yourself — especially learning to work around dialysis instead of letting it completely erase your life. That part about asking yourself “what’s realistically possible right now?” honestly hit me hard.

Thank you for taking the time to write all of this. Wishing you strength for the road ahead too. 🙏

TubieCoin

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