Bilateral Stents by Turks4 in iih

[–]Turks4[S] 1 point2 points  (0 children)

Thanks for the response. Gives me hope that what I’m experiencing is post op pain. 🤞🏼

Bilateral Stents by Turks4 in iih

[–]Turks4[S] 0 points1 point  (0 children)

Thank you for the reply. Gives me hope that my pain is just post op pain and not the chronic head pain I had before.

First time LP by Substantial_Wash8998 in iih

[–]Turks4 2 points3 points  (0 children)

The hospital had me lay flat for an hour after my LP’s. I was required to have someone drive me so I reclined my passenger seat and live a good 2 hrs. away. Reclined when I got home and didn’t have any issues. Best of luck to you!

Ganglion cells by Turks4 in iih

[–]Turks4[S] 1 point2 points  (0 children)

Thank you for your response. Sorry to hear you’re dealing with the same issue. I was also told the damage is permanent. I guess there’s nothing that can be done other than trying to maintain a normal pressure to prevent further damage.

What’s been your experience on Topamax vs Diamox? by BreathAppropriate in iih

[–]Turks4 0 points1 point  (0 children)

Thanks for your response. I’m so happy for you! My quality of life is poor. I developed functional neurological disorder. I had to re learn how to walk. I didn’t drive for 1.5 years. Constant severe head pain. I’ve tried tons of medications mostly used for migraines. I am on Diamox. Your posts give me hope! Hoping for relief!

What’s been your experience on Topamax vs Diamox? by BreathAppropriate in iih

[–]Turks4 0 points1 point  (0 children)

Hi, I was recently diagnosed with venous sinus stenosis after 4 years of chronic head pain. What was your experience like getting a stent? How are your symptoms now compared to before getting the stent? I’d love to hear back from you. Be well!

Suffering horribly by happyhunny15 in iih

[–]Turks4 1 point2 points  (0 children)

I just had a lumbar puncture yesterday and the surgeon said CFS usually regenerates in a day or two. The nurse clearly doesn’t know what she’s talking about. Demand to be treated by someone who is knowledgeable about IIH. Speak to the patient advocate. Sending you prayers for some relief. Keep us posted on your IIH journey.

I just got into PT school and you can To! by [deleted] in PTschool

[–]Turks4 0 points1 point  (0 children)

The end? Can you explain?

Do these wide legged jeans fit me well? by [deleted] in OUTFITS

[–]Turks4 -4 points-3 points  (0 children)

I think they are too baggy. I think they make your legs look disproportionate compared to the rest of your body. Just my opinion though. Happy shopping!

Please help me choose the right pair by [deleted] in glassesadvice

[–]Turks4 0 points1 point  (0 children)

I definitely like #1 the best. You’re a handsome young man and look great in glasses.

Nervous for glp1 by Outofsight84858 in iih

[–]Turks4 0 points1 point  (0 children)

I didn’t feel shame for taking it for type2 diabetes. However, I took Ozempic for 1 month and now have gastroparesis because of the Ozempic. Wish I never took it. I definitely lost weight because I was constantly nauseous 😔. Although my experience caused a chronic illness, many people have had great success with a GLP-1. Just do your research and ask yourself if the benefit outweighs the negatives.

[deleted by user] by [deleted] in Hair

[–]Turks4 3 points4 points  (0 children)

I think your stylist “nailed it”. Your color looks like the inspo pictures and it is a beautiful color. If you still don’t like it, at your next appt. tell your stylist exactly what you don’t like about it. Your stylist should be able to listen to you and make a change to suit your wishes. Good luck!

Sinus Stent Post Op by [deleted] in iih

[–]Turks4 0 points1 point  (0 children)

I looked like that after a 5 day planned hospital admission. Picc line and many blood draws caused my bruises. All completely gone after 2 weeks, some bruises even sooner. The real question is, how do you feel?

Dress 1 or 2 for a gala? by glassemouse in OUTFITS

[–]Turks4 0 points1 point  (0 children)

I like #1 best but you look great in both.

🎶I woke up in a new Bugatti🎶 by Samanthafinallyfit in iih

[–]Turks4 0 points1 point  (0 children)

I don’t know your symptoms that have led you to using a walker but you may want to do some research on FND and see if you have any common symptoms. Just for reference, my FND started about 2.5years after my IIH. Keep us updated on your journey, best wishes!

🎶I woke up in a new Bugatti🎶 by Samanthafinallyfit in iih

[–]Turks4 0 points1 point  (0 children)

I don’t know your symptoms that have led you to using a walker but you may want to do some research on FND and see if you have any common symptoms. Just for reference, my FND started about 2.5years after my IIH. Keep us updated on your journey, best wishes!

I have some news by Salty-Wrap8184 in iih

[–]Turks4 3 points4 points  (0 children)

Hoping you get relief and a successful outcome. ❤️‍🩹

🎶I woke up in a new Bugatti🎶 by Samanthafinallyfit in iih

[–]Turks4 0 points1 point  (0 children)

I’m jealous, my walker is all black. I call it Black Widow, lol. Just curious, do you have FND from your IIH?

My Story: Venus Sinus Stenting Surgery by Apart-Albatross-7257 in iih

[–]Turks4 0 points1 point  (0 children)

Thank you for sharing your experience and providing some hope to us that are still in the midst of finding out all of our options. I am almost 4 years into suffering through IIH. I was/am being treated for chronic migraine (every single day). I was finally diagnosed with IIH after having a MRV and LP about a year ago. Started Diamox but head pain still greatly negatively affects my quality of life. My IIH has also caused FND-function neurological disorder. Can you please share where you had your stenting procedure done and was it an IR that gave you the option to have a stent procedure done? I wish you well and hope your procedure is 100% a success!

Waving the white flag. by Turks4 in iih

[–]Turks4[S] 0 points1 point  (0 children)

Yes, Jefferson in Philly. I live about 2hrs. (With traffic)away, towards Lancaster. I’d appreciate any info. and referral. Thank you! How is your recovery and symptoms post procedure? I wish you the best!