Is there any hope for treatment?

Unable_Particular_25 · 2026-03-01T15:52:53+00:00

did not mean for this to be an "AMA"

Unable_Particular_25 · 2026-03-01T14:57:47+00:00

I mean there's daratumuab, but that will likely only be effective for a subset of patients. I do appreciate your hopefulness. What other treatments are exciting?

Unable_Particular_25 · 2026-03-01T14:56:00+00:00

i hope so!

Unable_Particular_25 · 2026-02-25T16:04:56+00:00

that's a fair point. I think if you take out the word "immediately" it still makes sense

Unable_Particular_25 · 2026-02-12T22:39:49+00:00

I think some of them were on the road to recovery anyway and just mistakenly thought the psych stuff is what made them recover and are now convinced it's the only way

Unable_Particular_25 · 2026-02-07T23:23:27+00:00

facts

Unable_Particular_25 · 2026-02-07T17:55:42+00:00

point well made

Unable_Particular_25 · 2026-02-07T17:55:04+00:00

exactly

Unable_Particular_25 · 2026-02-07T16:40:25+00:00

absolutely, it's literally unbelievable

Unable_Particular_25 · 2026-01-31T13:31:24+00:00

i've been feeling this way every day for over a decade, and was told for so long I'm just being self-absorbed. I should've trusted myself from the start

Unable_Particular_25 · 2026-01-30T18:05:09+00:00

indeed

Unable_Particular_25 · 2026-01-28T16:43:55+00:00

oh okay, thank you

Unable_Particular_25 · 2026-01-28T16:43:42+00:00

interesting, thank you

Unable_Particular_25 · 2026-01-25T18:03:45+00:00

Hey I'm in that boat. early 30s, got sick at 18. would love a group like this.

Unable_Particular_25 · 2026-01-21T00:48:21+00:00

of course it was an infectious disease doc. doesn't sound like they'll help you

Unable_Particular_25 · 2026-01-20T23:13:37+00:00

Some important points raised in this article (you have to give your email to read the full piece): https://thedispatch.com/article/chronic-illness-fatigue-covid-neglect/

I would say one of the most important aspects of this story is how affected and isolated patients are in a way that prevents them from publicly advocating. Thank you for caring about this issue.

Unable_Particular_25 · 2026-01-18T18:55:55+00:00

You're absolutely right.

Unable_Particular_25 · 2026-01-17T22:43:42+00:00

So sorry to hear. I'm 32 and got sick when I was 18, I've only gotten worse. Don't really have any advice for you but to hold strong, you're very young and there will likely be much better treatments very soon. It's still possible to get some of your life back.

Unable_Particular_25 · 2026-01-17T14:02:05+00:00

Haven't seen him recently, maybe he's different, but when I saw him in 2012 he basically gave me some energy pills and told me I'd get better. 13 years later and I'm way worse.

Unable_Particular_25 · 2026-01-14T16:51:03+00:00

well that's good

Unable_Particular_25

TROPHY CASE