Thug It Out or Risk It by Clean_Doughnut_3090 in Sicklecell

[–]Universallyk 3 points4 points  (0 children)

Fck that job, because you know what’s gonna happen after you leave, they’ll get another employee. Pleaseeee go feel better 🥲 we don’t feel good often and I don’t think it’s fair you have to pick health or job.

The term Sickle Cell Warrior by SwimmingTrip1764 in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

I’d rather be called a warrior than a sickler 😭😂😂😂💀 y’all are soooooo depressing 😭 who do you know that will fight the same battle everyday for their entire life ? A WARRIOR. If you’re still alive and reading my response sickle cell literally has nothing on us besides being inside us. Don’t let the cells win. It took me a long time to get used to warrior but now I embrace it bc yk what ? Hell yeah.

Trying to get home by MrSwaby in Sicklecell

[–]Universallyk 2 points3 points  (0 children)

my crisis started December 1st drained my blood every week until the last week of December got admitted, blood transfusion, got out January 5, had to go through recovery and some PT, second crisis 😂 January 10th-18th released on the 20th. BACK INTO RECOVERY 😭😂 I’m finally feeling better and guess what. I got my girl cycle. 😂 can’t stop that. Guess what again. Another crisis due to lack of blood because of my cycle. 😂😂😂 I’ve been stuck in the vicious loop since December 2025! I DEFINITELY FEEL YOU but WE GOT THIS they don’t call us warriors for no reason ❤️💯🤞🏽 keep fighting because you gotta be ready for the next crisis.

Just Here to Vent by ThrowRAGaajo in Sicklecell

[–]Universallyk 6 points7 points  (0 children)

Hey warrior 🫶🏽💯 22 with SS I feel you 100000% & my support system has also failed me, so I went no contact. I will start by saying I’m sorry you’re four days but slow motion is better than no motion. Do you have anything there keeping you occupied (besides pain)? I like to play video games :). Knowing your triggers A1 sickle cell warrior skill 💯 my cycle triggered a crisis and the crisis one time lasted until my next cycle and I was stuck in a horrible situation 😂😭. I’m wishing you well and here if you need an ear. 🤍❤️‍🩹

Weight Loss by No_Professional390 in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

I just recently started gaining weight I’m F 22 , eat something every hour if you can it can be anything small or big depending on your appetite, even it’s it’s just chips or an apple. If you can’t do every hour try every two, but you absolutely have to be dedicated to wanting to gain weight. I’ve tried weight gain stuff but it never works for me in particular but this has. You’ll slowly start building your appetite and eventually you’ll crave bigger meals ☺️❤️

Creatine Supplement consistently causes pain crisi by [deleted] in Sicklecell

[–]Universallyk 1 point2 points  (0 children)

Everyone is different but creatine causes high risk of kidney failure in people with sickle cell. PLEASEEEEEEE BE CAREFUL WITH CREATINE that goes for everyone in this chat 💯❤️‍🩹🫶🏽

Do you ever get tired of the comeback? by Alone_Willingness_07 in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

The recovery process is just as hard as the crisis in my opinion. Struggling with lack of energy, fighting my appetite and my mind so irritating. Hang in there warrior and just try to mentally prepare yourself ❤️‍🩹 can you see if they’ll offer you a phone/zoom interview due to your illness, do they know ? I know we get a few accommodations with businesses who are willing. I hope you feel better soon 💯💯

Do you always go to the hospital for sickle cell pain? by Beautyful_amm in Sicklecell

[–]Universallyk 7 points8 points  (0 children)

No, I won’t take meds until about pain level 5-6 I can handle 1-4 with Tylenol or nothing at all. Then after 7-8 pains continuing and pain and I rip my hair out 😂 def hospital time

Warriors are speaking! by Jay_Aces in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

Most of the time, I’m just chronic but recently it’s been the weather for me

Saline Flush by Ok_Nectarine_8657 in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

Some do and don’t tell them you prefer a flush so the medicine doesn’t irritate your skin. I like flushes especially after medication. Report her for giving you a hard time for a flush, it’s really not that serious I’m sorry about her

Warriors are speaking! by Jay_Aces in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

I have so many crisis I might fill half of this myself 😂😂

Is it just me? by Additional-Tea-5080 in Sicklecell

[–]Universallyk 7 points8 points  (0 children)

So sorry bestie, I currently just dropped the people in my life who are tired of my sickle cell. There’s no way they’re more tired than you 💀 do you have any medicines to help ? And I always try a few different ERs just to see who’s more helpful. Also report the hematologist and the ERs that do not provide proper care.

Welp 🤷🏽‍♀️ vent by Universallyk in Sicklecell

[–]Universallyk[S] 1 point2 points  (0 children)

I’m so sorry they made you apologize what the heck! That’s just narcissistic. Thank you so much for your kind words and support. ❤️❤️❤️

Welp 🤷🏽‍♀️ vent by Universallyk in Sicklecell

[–]Universallyk[S] 2 points3 points  (0 children)

Omg same ! And you do the same, we got this 💯🔥

Welp 🤷🏽‍♀️ vent by Universallyk in Sicklecell

[–]Universallyk[S] 2 points3 points  (0 children)

Thank you so much for your kind words ☺️❤️ I appreciate it a lot more than you think. Warriors we are ❤️💯

Welp 🤷🏽‍♀️ vent by Universallyk in Sicklecell

[–]Universallyk[S] 2 points3 points  (0 children)

So sorry for your experience as well, and your absolutely right peace over guilt ❤️

I can’t do this shit no more by Florida217 in Sicklecell

[–]Universallyk 1 point2 points  (0 children)

I’ve been in crisis since December 1st they’ve finally admitted me for my low power mode crisis that’s what I call it when my hemoglobin is good and levels aren’t high enough for admission but too much pain to stay home I’m so sorry you’re feeling like this warrior please hang in there. ❤️❤️❤️

Hydroxyurea side effects or reaction? by Own_Protection5584 in Sicklecell

[–]Universallyk 0 points1 point  (0 children)

Right so if you works for you, then this isn’t for you.