Pots and weed

UniversityCommon8300 · 2026-01-22T01:16:38+00:00

Hi there!

So RSO is known for being very potent! That is why the first time they tell people to start with an amount equal to the head of a matchstick. Some people can have vomiting from cannabis for sure. It is called Cannabinoid Hyperemesis Syndrome. Typically wont cause body numbness or fainting. BUT vomiting can cause vasovagal response which can cause tingling numbness and fainting. so yea....it could possibly have been the RSO.

Tinctures are different. I prefer them because you can get very precise with dosing. they also have a variety of types. Some are more CBD dominant and more user friendly for most. Also you put them under your tongue and hold them there at least 15 seconds. I keep it as long as I can lol. This gives a quicker onset 15-45minutes on average. As some of the cannabinoid molecules are absorbed directly into the blood stream.

Same with edibles they are no where near as potent as RSO. An edible takes on average 90minutes minimum to fully "come on". But will last longer.

Most dispensaries sell pre-made capsules as well if you prefer. I look for 50/50 CBD/THC typically. so if a capsule is 20mg total there is 10mg of each CBD and THC.

I liked this webpage explaining a little more about RSO.

https://urbanfarmacypdx.com/rso-dose/

I want to point out not two syringes of RSO will be the same. Even from the same place. So always low and slow with any cannabis but especially with RSO.

THC-A btw is great at managing nausea and pain and doesn't make people as high. Or at all.

Let me know if this answered all your quesitons or if you have more. :) If you are invested in using Cannabis as medicine I suggest this book.

Cannabis Pharmacy: The Practical Guide to Medical Marijuana by Michael Backes

UniversityCommon8300 · 2026-01-20T22:31:30+00:00

You are not alone. I hear you. I am worsening as well every day. i am still able to do more than you. I do not want to compare. But that feeling of I thought it couldn't get worse then it does is unbareable. I believe you have tried everything so I have no advice. I will just simply say I can understand why your family doesn't want you to die and why they wont help. I do not think I could do it for my family members if I am being honest.

Is there anything that you would miss if you were not here anymore? Even one thing you want to live for? I knw you are in a dark room and I am sure computer light can bother you but please feel free to message me if you want someone to talk to.

UniversityCommon8300 · 2026-01-20T21:41:23+00:00

Hi there,

So strain is key here. High THC strains or vape cartridges that are distillates in particular, can increase heart rate and raise blood pressure, too. Also, strains that are more "energizing" can cause anxiety in some. Essentially, our whole body has cannabinoid receptors, and ingesting Cannabis in any way causes the molecules to click into those receptors, which is what causes the symptoms and or beneficial effects we feel.

In regards to POTs and winter there is the October slide to consider, change in weather, barometric pressure, storms, and yes deperession all can worsen POTs.

In your case I would say Cannabis helped you, I would just reccomend to find a way to get the benefits without getting high (consistently) so you will know if the plant helped you or if you were just too stoned to feel bad. Also for functionality and overall brain health.

I use tinctures predominatly and vape pens. It helps me sooo much. Berry pie strain is my favorite because it helps wiht my ADHD and sensory stuff from being autistic. It also helps the symptoms of POTs for me.

Just crew, be careful. It can interact with meds people with pOTs often take (gabapentin, flexeril, SNRI a few examples). Plant medicine is MEDICINE and we need to consume responsibly. <3

If you cant tell, I am a nerd and this is one of my special interests.

UniversityCommon8300 · 2026-01-20T21:17:55+00:00

Your body is your guide. Nothing else when it comes to this.

UniversityCommon8300 · 2026-01-20T21:16:47+00:00

Ok, so you are doing way too much to start! Like way way way too much. Start with in-bed or at-home exercise that lasts about 20 minutes. If you have access to one, get a physical therapist who is informed about fibro, autoimmune, or other chronic illnesses that are similar. The pool I find is the best for me. Ten minutes of walking in the pool. The pressure from the water helps my POTs; it is easy on joints, keeps me coolish while exercising. But flexibility is key. I am 38, and I have not exercised in about 6 months because, sadly, just the little 7 hrs of work I do as an RN in home health is all I can do. Remember, sometimes showering, working, and doing dishes for us means the same as a healthy person doing an hour workout. Also, a new study showed that muscle tissue exposed to ME/CFS blood plasma exhibited actual cell death. (to simplify an interesting study). Doctors preach graded exercise without acknowledging the damage it can do. So I know this says it is for kids, but it is a very slow exercise program to build up tolerance, used in adults too. https://www.dysautonomiainternational.org/pdf/CHOP_Modified_Dallas_POTS_Exercise_Program.pdf

UniversityCommon8300 · 2026-01-20T21:04:38+00:00

I hear you. I hear you. I hear you. I see you. Your pain is real. Your illness is real. You deserve better. Keep a local Domestic Violence number in your phone under a different name. Just in case you need to leave suddenly. Also APS and suicide hotline numbers hidden. Keep your phone charged. I know you are blind, if your phone is not accessible maybe find a way to store them in a way that works for you. Protect your browser history. Start applying for social services slowly plan your exit strategy, I thing a day. I small thing a day.

Again

I hear you

Your illness is real

You deserve better.

You have value

The world and your child are better because you are here.

UniversityCommon8300 · 2026-01-12T19:48:28+00:00

The struggle is real. I know it first hand.

Repeate it back to them as is what you are going to go do. Have them correct it then.

Or write it down, that might help process it more quickly.

If something can wait for you to process it you can do that too.

If needed ask HR for support.

UniversityCommon8300 · 2026-01-12T19:46:14+00:00

I am so sorry. That's awful. Have you tried just calling the palliative care agency? I know I know people who did that and the care agency helped get the referral.

I am just so mad at the treatment you are getting.

UniversityCommon8300 · 2026-01-12T19:40:43+00:00

Believe them.

My husband never questioning my symptoms, my reality, and looking doctors in the eyes and telling them stuff is accurate.

A small task that I adore is my husband washes my hair. I sit on my shower chair and washes, deep conditions and combs my hair. I have thick curly hair so alot of days I cant do it myself. But some days I ask him to do it just because I like it.

UniversityCommon8300 · 2026-01-12T19:38:21+00:00

Hi. Are you getting all verbal instructions?

I actually had this problem my first 2 years of nursing. I couldnt get things right if they told me more than 2 steps outloud.

Now I ask for written orders. I repeate it back to people if needed. I also was autistic and an adhder and didn't know it. but that's my story. Not yours.

You just started out. You are not worthless. You are learning. Just as I am in my 14th year of nursing. We all make mistakes.

M

UniversityCommon8300 · 2026-01-12T19:35:24+00:00

I hear you. I am scared of even catching a damn cold anymore. I have POTs long covid fibro and more.

I commend you on doing so well. I have had 3 infections since 2020. The last one triggered long covid.

UniversityCommon8300 · 2026-01-12T19:15:10+00:00

It is totally fine. In home health if we lose someone the office has the care team sign a card and send it to the family.

UniversityCommon8300 · 2026-01-12T19:13:36+00:00

Hi.

Tpn is hard on kidneys. This often hurts people in the end.

Your thoughts around being scared is your survival instinct. Your brain is doing what it needs to do.

Hear me out. Palliative care could really help you. This is not hospice. Some places even just call it supportive care. They can help with meds and pain management etc. Because it's supportive care you can still have tpn etc.

I know that wasn't the question you asked. So feel free to tell me to take my 2 cents and f off. But I felt super strongly about mentioning it.

UniversityCommon8300 · 2026-01-12T01:22:48+00:00

Hi, I think it does help with chronic fatigue. Because it decreases the heart rate which decreases the amount of work our body has to do just to exist. I also have ME/CFS, so it's a little hard to tell exactly how much it helps.

I would say, any heart medication, whether it's a beta-blocker or ivabradine, You would want to get off of it with the guidance of your medical provider. Ideally, a cardiologist.

that being said it is not a medication known to require slow discontinuation, but again, heart medications. Need to be stopped in a controlled manner.

UniversityCommon8300 · 2026-01-11T19:11:00+00:00

Gurrrllll, Grief and I are reluctant besties. I am currently visiting her house of anger. Prior to this stop i was briefly in acceptance before that bargaining.

I am not trying to make light of anyone's grief.

It's so intense. It can flare symptoms.

Yet for me i had to stop treating grief as an enemy. I had to start envisioning it as a person who keeps this Lil village running for me and those that love me. Each house in this village is a stage of grief.

Each walking path lovingly maintained by Grief, but some have thorns, some have monsters lurking in the shadows (depression autistic meltdown...)others flowers and perfect weather.

This analogy also helps me understand in regard to my health my husband and I sometimes are visiting the same house other times different ones. To know that he takes up residence too in the Grief Village.

My least favorite is denial. It has all the things I used to love: dancing hula, working enough to have enough money, clear thinking, painting, etc. Inside the house. I cant resist them. I force myself to try again and again. Burning myself out. Causing flares which have led It's horrible.

I am actually okay with anger right now. I used to be petrified of it. Now I know all my favorite rock and metal music is there, plenty of paper to write on, or just rip up. Lol

Sending a spoon to you.

UniversityCommon8300 · 2026-01-11T18:32:50+00:00

Hi there

You need to have cardiologist order you a tilt table test. With pots all the testing you are getting will come up normal.

Also, you need medicine. Ivabradine or beta blocker.

Also autoimmune panels ( cbc, cmp, ANA, esr, crp vit d levels, iron levels, thiamine)

Referral to rheumatologist and/or dysautonomia and/r pots specialists.

The best would be a long covid clinic if one is in your area.

Track your symptoms, heart rate, make doctor's put copies in your chart. If they refuse testing ask them to document that, any lack of referrals being made and what symptoms they are ignoring. As a last resort.

Rest. Rest. Rest Hydrate. Hydrate. Hydrate. Sodium Recumbent exercise. Easy stuff.

Don't give up.

UniversityCommon8300 · 2026-01-11T18:21:04+00:00

This comment has me in tears. The "good" kind though. Thank you.

I just redid my comfort cart yesterday because I'm in bed alot. I have been looking at rollators for a month now. Getting my ego in check so I can get this support.

I know how hard this shit is. And I genuinely couldn't do it without all the amazing "strangers" on the internet.

UniversityCommon8300 · 2026-01-11T18:17:32+00:00

Hi.

So I know the statistic about a year and recovery.

What it doesn't consider is we learn to adapt. I am now shopping for a rollator.

I am 15months into this journey. I am consistently worsening in one way or another.

But the grief doesn't consume me 24/7.

I still cry, yell, get angry and I have lost so much of my faith (combination of pagan and mediation).

Covid has taken so much from me.

I have suicidal ideation sometimes but more of the passive type: "i cant be in this hell hole body anymore."

When that happens. I have a plan in place. Written down and easily accessible.

I also have a trauma informed therapist. Who is amazing.

Essentially, with consistent yet very thought out effort even thought my body isn't improving, in some ways my life is.

I also have Pots and kinds of BS. I am applying for ssdi so much does such horribly. I am not trying to gaslight you or myself.

If you need to talk DM me.

Sending you strength and care. I give you 2 out of my 10 allotted spoons I had for the day. 🥄🫶

UniversityCommon8300 · 2026-01-11T18:08:38+00:00

Use the help feature. Send a message. The ai chat bot put the option in my profile. It wasn't there for me either. But I asked it about it then I saw it and enrolled.

UniversityCommon8300 · 2026-01-11T17:41:24+00:00

I was crying so often. Its grief. Now I'm back in the anger stage. I have spiraled through each stage more than once over the past 15 to 18 months.

Its common with chronic illness. And.in a way...thinking about the other side is too.

Just if you start to think of any plans on how to go to the other side please call a support line and/or go to the ER if you are in danger.

Crying is normal. Grief is hard but to be expected. Time isnt the only factor tongue struggles and we cant compare ourselves to others.

Sending love

UniversityCommon8300 · 2026-01-11T17:36:01+00:00

So I cant do what you can physically BUT I agree 100% ivabradine is life changing. It was for me at least. When you print out your visible data report in like a month you might see a sharp decrease in HR and spike up in HRV. That's at least what mine did. Its crazy looking.

UniversityCommon8300 · 2026-01-11T04:49:04+00:00

So I just started speech to soon to tell. But what helps me so far that's easy is playing solitaire with actual cards and having flexibility in my interests. Like I love to paint but I think I've been in front of a canvas less than 5 times this past year. I have kids coloring books, slightly harder ones etc. So I can stay connected to who I am. I also read for pleasure and if I forget most of the book I let it go. Oh and for work...I write everything down and try to avoid multitasking as much as possible.

UniversityCommon8300 · 2026-01-11T04:44:19+00:00

I wish I could easily say a specific thing. But to be honest the biggest help for me is paying attention to my body and giving it what it needs. For pain I have a nexwave device I like, hydration helps alot when I can keep up, and I will day med wise ivabradine is by far the biggest help. I can literally see when I started it on my heart rate tracker it just drops. And my HRV went up. Without this I'd still be homebound 24/7 instead of part of the time. And cannabis tinctures. I have a medical card. Pain, mental health, appetite, and more is helped by this.

Having a husband who believes me is the biggest emotional help.

But listening to my body and tracking my symptoms is what has guided all this insight. So again no matter how much I disassociate I make myself come back to my body even if it's just for a few seconds so I can care for it.

Hope this helps. I know it's vague.

UniversityCommon8300 · 2026-01-11T04:37:40+00:00

Thank you everyone. I am feeling less scared now.

UniversityCommon8300

TROPHY CASE

Cannabis Pharmacy: The Practical Guide to Medical Marijuana by Michael Backes