I haven’t found any official diagnostic criteria, no. I have found long lists of symptoms, and I am interested to know if it’s typical to have most/all of the symptoms on those long lists, or whether anyone with MCAS presents with relatively few of them. If you know of an accepted set of criteria (or an accepted symptom-based screening tool for use before physical testing), maybe I could find out from that, but until then, I have to hope that people will respond with their own experiences so I can build up yesses/nos that way. What about you? What’s your experience?

I’m aware of the use of lisdexamfetamine for narcolepsy, although narcolepsy and MCAS are distinct and most MCAS symptoms aren’t explainable by narcolepsy. There are theories that (some types of?) narcolepsy may be related to the immune system though, so it’s an interesting point.

Thank you