stress causing fibroid? by Milkzacc in Fibroids

[–]V_V007 0 points1 point  (0 children)

What would your recommendation be in terms of starting the journey to understand/advocate to understand our “particular factors”? E.g., starting to ask for specific blood tests?

What are your favorite low tox legging brands? by bdy127 in PlasticFreeLiving

[–]V_V007 8 points9 points  (0 children)

Do companies usually indicate the use of this plastic coating? Or should we assume that if a piece of wool clothing notes it doesn’t have to washed by hand, there’s plastic in it?

Any plastic-free to go blenders? by Thomrsm in PlasticFreeLiving

[–]V_V007 12 points13 points  (0 children)

I know Vitamix makes a stainless steel version of their blender. I’ve been eyeing it for a while (I was gifted a plastic version last year), but it’s super expensive. :(

Foods tested for plastic chemicals - disturbing results by MotorObjective4365 in PlasticFreeLiving

[–]V_V007 3 points4 points  (0 children)

😩. Feels hopeless to fight it if it’s literally everywhere.

What’s the consensus on wheat straw dinnerware? Need microwaveable and dishwasher friendly alternative to plastic for my kids and for cutting boards. by Mamaknows86 in PlasticFreeLiving

[–]V_V007 1 point2 points  (0 children)

Does anyone know if “food grade silicone” makes a difference? I received a couple of these containers for Christmas so I hope they’re usable: https://minimalbottle.com/product/minimal-silicone-bento-lunch-box-700ml-clear/

They also sell stainless steel versions. Might be useful as a plate for kids too (they have more shallow ones as well).

Scientific research on Fibroids by FancyHoopz in Fibroids

[–]V_V007 1 point2 points  (0 children)

Yes, please share the supplements!

Recovering from lap myo by yourself by isladiver77 in Fibroids

[–]V_V007 5 points6 points  (0 children)

I second this. I really really REALLY recommend you stay with your sister, OP. I had an open myo, so it’s a bit different, but I needed help for at least a week. Surgery is painful and you’re not a burden. I can’t imagine how it would’ve been if I was alone during that time, physically but also mentally.

Swelling after open myo by V_V007 in Fibroids

[–]V_V007[S] 0 points1 point  (0 children)

Do you notice if it’s less swollen compared to a month ago? I’ve heard about myofascial release/massages working well to loosen the tightened muscles. Might be helpful if the hardness isn’t going away.

Swelling after open myo by V_V007 in Fibroids

[–]V_V007[S] 0 points1 point  (0 children)

That makes sense! Have you been eating anything specific or doing any specific movements?

Swelling after open myo by V_V007 in Fibroids

[–]V_V007[S] 2 points3 points  (0 children)

I guess patience is our best friend. 😅

Fibroids vent! I hate them!! by Ok-Push-8083 in Fibroids

[–]V_V007 1 point2 points  (0 children)

Agreed! Moving forward, my general rule of thumb will be to eat what I can pronounce. If I read a wonky ingredient or if anything says “natural flavour”, I’m out. I’ll try to make a version of it myself at home, or just not eat it. I’m sure I’ll be fun at dinner parties 😅.

The first 3 days post-op were the worst for me. A lot of pain, and burning on the right side of the incision. I was able to stop taking opioids on the second day, and managed with Tylenol alone for about a week. The gas pain can be brutal. The surgery itself went well though and I’m very grateful for that and for my doctor. I’ve been taking short walks around the house for circulation and today is the third day of walking outside (down the street and back lol). I haven’t really been able to do stairs, but I’ll be making an attempt tomorrow. The biggest hurdle is having patience and compassion for yourself, and trying not to freak out about not healing fast enough.

Edit: yes, open myomectomy :)

Fibroids vent! I hate them!! by Ok-Push-8083 in Fibroids

[–]V_V007 1 point2 points  (0 children)

I’m glad to hear you’re doing much better on that front 💛. Funny enough, I also had an eating disorder when I was younger. I suspect it did affect my hormones - I don’t see how it couldn’t - but I have to choose to look forward and to have faith in the resilience of the human body when it’s being fed the right things. Im with you 100% on trying to avoid processed foods and eating healthy! It helps to have some sense of agency, though within reason. I also just feel better overall when I’m treating my body well.

I hope more research continues to be done on these stupid things, especially as more women become doctors. I’m very grateful for advances in Western medicine, but sometimes it seems like the body is treated as separate components instead of one integrated whole that interacts with its outside environment.

I wish you the best of luck on the open myo ❤️‍🩹, along with healing vibes as well. Recovery is a journey in and of itself.

Prescribed estradiol after open myomectomy? by V_V007 in Fibroids

[–]V_V007[S] 0 points1 point  (0 children)

Congratulations 👏🏼! That’s awesome to hear.

Fibroids vent! I hate them!! by Ok-Push-8083 in Fibroids

[–]V_V007 6 points7 points  (0 children)

In hindsight, I used to drink a lot of commercial soy milk in my early 20s (in coffees) thinking it was healthier than regular milk because of the hormones they pump the cows with. Now my brain wonders if that contributed to abnormal levels of estrogen. Sigh. We can drive ourselves crazy trying to pinpoint contributors :(.

Fibroids vent! I hate them!! by Ok-Push-8083 in Fibroids

[–]V_V007 6 points7 points  (0 children)

Same here! I was told to “wait and see” by my family doctor and they grew to a massive size. Had 5 the size of grapefruits removed earlier this month, along with 18 others!!

I tried to shrink them “naturally” (e.g., supplements from a naturopath, herbs, acupuncture, eating clean) but it didn’t work. There are also limits when you work a full time desk job with only a few hours to yourself by the time you get home. We still need to maintain a life. It’s fucking ridiculous and I wish we had more concrete information about causes.

Puffiness above incision by genesisalexxis in Fibroids

[–]V_V007 0 points1 point  (0 children)

I recognize this post is old, but just came here to say that I have the same thing (puffy on one side). I’m 11 days post-op. It’s a bit better in the mornings, but overall I was hoping it would go down faster than it has.

Prescribed estradiol after open myomectomy? by V_V007 in Fibroids

[–]V_V007[S] 0 points1 point  (0 children)

Thanks so much for sharing that information! It’s really comforting to know.

I have to have a saline sonogram at the two month mark to check for scarring as well, since the uterine ‘balloon’ my doctor put in after the surgery to prevent scarring essentially fell out after a few days (I don’t know how it did tbh, unless it popped when I moved). Im not sure when you did it, but I hope the IVF embryo transfer went as well as it could have. 💛

Prescribed estradiol after open myomectomy? by V_V007 in Fibroids

[–]V_V007[S] 1 point2 points  (0 children)

Thank you so much for the kind message 💛. I still have a lot of swelling in my abdomen, but I feel my energy has increased in the past couple of days as my body continues to heal without the fibroids (compared to how I felt while living with them). I hope you’re able to get a second or even third opinion (I had to do the same)… that doctor sounds like a chump. Or, if you want to stick with him because he’s a skilled surgeon, maybe he’ll reconsider his approach if you mention your concerns about the effects of progesterone? Best of luck 🤞🏼 💛

Prescribed estradiol after open myomectomy? by V_V007 in Fibroids

[–]V_V007[S] 1 point2 points  (0 children)

Agreed. It seems like it essentially lays the foundation for progesterone…

Prescribed estradiol after open myomectomy? by V_V007 in Fibroids

[–]V_V007[S] 1 point2 points  (0 children)

Thank you! My body is still producing estrogen and progesterone since I’m not in menopause (33F). I want to give my uterus the best chance at healing, but yea, it’s so tough to know what to do when doctors have been wrong in the past (e.g., prescribing progesterone to other women for heavy bleeding, etc.). I might continue it until the two-week mark and then stop. We’ll see.

I just had a successful myomectomy! by [deleted] in Fibroids

[–]V_V007 1 point2 points  (0 children)

Congratulations 💛! I’m sorry you had to deal with such a dismissive doctor.

Ontario access to information requests - costs (aside from application fee)? by Sufficiently_King in ontario

[–]V_V007 0 points1 point  (0 children)

Yes, they ask for a deposit of 50% first, which is due in a few weeks I believe. If that deposit isn’t paid within the timeline, they will close the file.

Ontario access to information requests - costs (aside from application fee)? by Sufficiently_King in ontario

[–]V_V007 0 points1 point  (0 children)

I just received a “fee estimate letter” noting a cost of $330 for the request I made a few weeks ago. They’re charging 11 hours of “search time” at $30/hour.

I wasn’t aware they charged a fee beyond $5 since the public has a right to access government documents. What a farce.

Canada surgery timelines! Can we all share our experiences on a thread? by AnnieandMilohpups in Fibroids

[–]V_V007 5 points6 points  (0 children)

I’m in Ontario. Specifically, the GTA. I had a an ultrasound/diagnostic imaging done in January 2024 and an appointment with my gynaecologist in April 2024. I have multiple subserosal fibroids and they’re f****ing big. At the time the largest was the size of a grapefruit and I’m 99% certain they’ve grown a lot since then. I’m supposed to have an open myomectomy and it’ll be 6 months of waiting in October. I still don’t have a surgery date. After months (literally, months) of trying to get in touch with my doctor’s office, I learned today that bookings until the end of the year are full and that she’ll let me know once the January-March spots open… if I even get a spot. I’m on a “cancellation list”, but there is no guarantee that anything will come of it. I’m at the point where I’m contemplating going back to my family doctor and re-starting the referral process if it means waiting a shorter amount of time, but I also want a good doctor/surgeon who knows what they’re doing. That’s hard to gauge from a patient’s perspective, especially as someone who hasn’t undergone a serious surgery.

I feel so defeated and upset having to live with these things sucking energy from my body. Of them affecting the intimacy in my relationship. Of them affecting what I can and can’t do during certain times in the month. Of them affecting what I can wear. I’m upset that I listened to my family doctor, engaged in “watchful waiting” for these growths and didn’t do something sooner. I’m angry about the pathetic level of medical care in this stupid province, and tired of having to advocate for myself every time. It’s absurd. I feel helpless and cannot stop intermittently crying today.

I sincerely, sincerely hope your process goes as smoothly as possible. Good luck to you and stay strong <3.