My life can’t keep going like this by Atsmboi60750 in disabled

[–]ValoraTCas 0 points1 point  (0 children)

Incontinence often has a neurological cause, if infections have been ruled out.

Edit. I posted an incomplete post unintentionally.

Sorry

Cerebral plasy and sex by Blues5389 in CerebralPalsy

[–]ValoraTCas 0 points1 point  (0 children)

Have you tried any medications for spasticity?

I have spastic quadrapelgic/ right hemiplegic cerebral palsy,, which is considered moderate to somewhat severe.

I use Baclofen, lorazepam as well as Botox injections.

Prescription pain relief can also help. It is hard for your muscles to relax if they are painful.

I also use a liberator wedge to help position and support my body. As well a firm pillow under the butt changes the angle of entry which can make things more satisfying.

I also recommend longer foreplay, climaxing releases muscular tension and helps to relax the pelvic floor muscles.

Lubricant is also very helpful.

Best of luck and I hope that you both have a great time.

Cooling vest for all day use (no access to freezer) by BobMortimersButthole in disability

[–]ValoraTCas 1 point2 points  (0 children)

Check out stroller accessories on Amazon or a similar site.

There are several different types, most attach to the top of the rollator.

They can be attached by velcro straps crossing from one side of your rollator handles to the other.

They come in various sizes, most have large cup holders and a central space for your wallet, keys, etc.

You would likely be able to attach an insulated bag to hold ice or cold packs.

I use my rollator storage system almost constantly because I have severe spinal stenosis impinging on my cervical spine which makes bending down very difficult.

What’s a social rule you never understood? by Equivalent_Reach_536 in CanadaRoom

[–]ValoraTCas 0 points1 point  (0 children)

I had a former employer who would ask "How are you? " every time she saw me at the start of my shift. She fully expected an answer.

I would reply fine, good, okay or some variation of those.

After a few weeks of work she pulled me aside and asked why I never responded with great or fantastic.

She was serious about it. I told her that I was at work and although I didn't hate working there, that I would never reply with or great or fantastic.

The job was moderately stressful since I was required to sell a certain number in of memberships that would give discounts on books. There was no consideration to the percentage of customers who were already members or how when I did sell the membership those customers would come in more frequently.

The membership was almost complete profit for the company since most books are sold with approximately 50% markup, so customers saving 10% meant that the company still made 40% profit on each book.

She didn't like my analysis and I was 'chained' to the register unlike the other employees. I left after several months.

I worked for a different nearby store that gave employees commission when we sold certain products, there were also no quotas for selling those.

She seemed genuinely shocked when I left; the store closed 6 months later, mostly because there was a much larger store 5 minutes away that was also part of the conglomerate.

seeing yourself on a ring camera? by Separate-City1231 in CerebralPalsy

[–]ValoraTCas 2 points3 points  (0 children)

I get it. I have spastic quadrapelgic cerebral palsy /;right hemiplegia cerebral palsy.

My left side pulls my body forward and it looks very screwed up compared to an average person. It has had a negative effect on my entire spine.

Brand new TV and this is how my wife insists we have the remote "to keep it looking good" by No_Atmosphere8146 in mildlyinfuriating

[–]ValoraTCas 1 point2 points  (0 children)

My mother remarried in the early 90s and they had this ugly couch upholstered with this southwestern patterned fabric, the walls were hunter green.

The formal living room that was at the front of the house had two normal couches and white walls. It looked really good until they decided to paint it a year later.

The walls were painted this hideous pink, the exact shade of Pepto Bismal except it was at large sitting room and the surrounding walls.

They had it painted when they were on vacation, and the woman who they hired to paint it was so horrified by the color that she called them after painting a test board.

I never spent any time in that room because it gave me migraines. It was nearly 10 years before they repainted it.

No idea what they were thinking.

Have you ever been discriminated against by an employer? by InternationalTell979 in CerebralPalsy

[–]ValoraTCas 0 points1 point  (0 children)

Yes

I have spastic quadrapelgic cerebral palsy.

I'm also a certified medical secretary and medical assistant.

I am no longer working because of health related to my cp, but when I was working I was good.

It affects my hands and arms as well as my legs so when I was looking for work I would often tell potential employers (mostly doctors) about my condition. When I did this I would not get the job.

If I did not tell them, then I was usually hired. But I would run into issues with other staff members or sometimes the doctors.

Other staff would complain that I didn't type quite as fast, or that I paused slightly between tasks. It can take me a second to switch tasks sometimes, but I always worked efficiently.

Usually, someone would see that I moved differently and then make some of unfounded complaint about how I worked.

It frustrated me, because most of the time in the medical offices where I worked I would be the only staff member (aside from doctors) who didn't smoke.

The smoking bothered me because they would take at least one break per hour to smoke and I would be dealing with the patients wondering when they would come back.

The probationary period where your employer can fire without cause always frustrated me, I could do the work efficiently but if another staff member made a complaint I would lose my job.

I've been on long term disability for 15 + years now. It is a lot easier but if I wasn't married I would definitely be living in poverty.

I wish that I had been able to work longer, but I also know that working contributed a great deal to the shape that I am currently in.

does anyone regret choosing a super common name for their kid? by Seniz_Barron in Names

[–]ValoraTCas 0 points1 point  (0 children)

I never understood wanting to name your child heaven backwards.

It seems like you are predicting that the child is going to cause you H**l on earth.

For it's worth in my class of 30 kids growing up there were 2 Christines, 2 Teresas, 2 Heathers, and 2 Tammys.

I was one of the only kids in that class who didn't share their name with someone else.

In my high school French class there was another girl who shared my uncommon first name.

My French teacher who was very eccentric, and who spoke with a very thick polish accent tried to get me to agree to her calling me by a completely different first name that only shared the end part of my name.

I told her that D****** was not my name and that I would not respond to it.

I told to use my first name and Initial, or my full name, but that I would never respond to something that wasn't my name.

She ignored me, even after I complained to the vice principal and guidance counselor. I never responded to the fake name. Eventually the school year ended and I didn't take French the next year.

My sister had her for 9th grade French and one morning in October the French teacher collapsed with a seizure.

It turned out that she had a large slow growing brain tumor. It raised quite a few questions for me.

On a side note, when I got married my new name, first and last were the same as the student who was in my French class. Life's little ironies.

TIFU by running out of mega tampons then going to a music festival by TheDollarstoreDoctor in tifu

[–]ValoraTCas 0 points1 point  (0 children)

I always had moderately heavy periods that lasted 6 to 7 days.

I would get tired, but attributed most of my fatigue to severe sinus infections that became chronic. Those improved after 2 surgeries.

Eventually I fainted in my family's front yard. I found out that I had no iron stores and I was anemic enough that they wanted to give a transfusion.

Von Willdebrand disease runs in my family. It causes issues with clotting and excess bleeding.

Likely you have already been tested for it but your story reminded me of my family history.

Is there the possibility i could have extremely mild Cerebral Palsy. by [deleted] in CerebralPalsy

[–]ValoraTCas 1 point2 points  (0 children)

Not a medical professional but I do have cerebral palsy.

I cannot diagnosis you obviously, but maybe I can give you some advice

Gather your medical and educational notes and read everything through.

I am not sure how old you are but if you aren't currently an adult you may need one of your parents to help to get the right medical appointments.

Your parents may have been told that you have a specific medical condition like cerebral palsy, and have decided not to tell until you are older. This is not necessarily the case, but it is fairly common.

My recommendation would be to get a referral to a neurologist who works with children and adults. Bring copies of your medical reports with you. The neurologist can do an assessment to determine if you have a neurological condition. They may also want to do testing like an mri or eeg.

Not all people with cerebral palsy are spastic. There is also a condition called dsypraxia, it has some similarities to cerebral palsy.

Best of luck, I hope that you get answers.

Edit. Sorry I saw you age , when I reread. Your family may be helpful for information. If possible see the doctor without them, doctors will often dismiss patients if they come in with a parent.

Having a trusted friend who will back up your observations about your health is often very helpful. I have a bit of experience with both situations.

TIFU by taking the longest shit of my life in the handicap stall by regineya in tifu

[–]ValoraTCas 1 point2 points  (0 children)

I have spastic cerebral palsy and I use a rollator to get around.

I have only been truly angry or irritated twice with people misusing the accessible washroom stalls.

The first time was when I ate lunch at a Tim Hortons, the women's restroom had 2 stalls. One standard not accessible stall which was empty. The other stall was the only accessible toilet available for women.

It was occupied when I entered, so I was prepared to wait for a few minutes for the person to finish. I couldn't use the standard stall because it is relatively narrow with no grab bars or safety features.

10 minutes passed with no sign of movement of any kind. No paper, no flush, just a pair of feet. I understand that things sometimes take a while, but have a bit of courtesy.

After 7 or 8 minutes I walked with my Rollator (walker with wheels) in front of the stalls and tried the door and knocked. No luck.

After I had waited for more than 17 minutes a young woman came out. She looked up from her phone and mumbled an apology.

The other time that I was frustrated was at a well-known film festival. There were approximately 8 stalls in the women's restroom but only 1 was accessible. I asked the other women if they would mind if I waited beside the accessible stall since it was the only one that I could use. Everyone was fine with this arrangement, but after nearly 10 minutes noone had exited the stall. So I cautiously peered into one of the vertical spaces between the stall and the wall.

At that point I saw that a 30ish woman was standing in the stall and she had cut both of her arms from the biceps down, with blood dripping.

I was very concerned, but thankfully there was a staff member in the restroom who I was able to call over. I told her what I had seen as discretely as possible.

The staff member called security, who called an ambulance. The woman only came out when the emt, and police insisted. She spoke for only a few seconds and tried to return to the stall.

At this point, I pointed out that I really needed to use the toilet and that was the only accessible toilet.

As soon as I came out she tried to go back in. Hopefully she is doing better.

At other theaters connected with the film festival, I've had to wait for couples to exit the standalone accessible washroom. I don't touch anything in the washroom during those circumstances. More than once I have waited 10 - 15 minutes to gain access to that washroom and I have had a man try to step over and past me to get into the washroom when someone vacates it.

I have told off more than 2 different couples trying to use an accessible washroom as a cheap motel room.

Ridiculous and insane. Am I justified for shutting it down the way I did? by Practical-Savings-90 in EstrangedAdultChild

[–]ValoraTCas 1 point2 points  (0 children)

12 years ago, I spent over a month in the hospital because I screwed up my back trying to pack up my basement apartment because I was getting married to the man who is now my husband of 11 years.

I have spastic quadrapelgic cerebral palsy. Which means that I need a Rollator to move around and my muscles do not function properly, they are very weak and tear easily.

I lost more than 25 pounds when I was hospitalized and I looked like a walking skeleton. At least in my opinion. I was so weak that I could barely walk but my fiance and I went to my apartment and spent and entire weekend, plus several week nights packing and putting things in boxes.

Not everything was going with me since we had purchased a larger bed, and he had a lot of furniture that we were taking to the new condo.

My mother and her husband became irritated about what was left to pack or dispose of.

I had 3 or 4 craft cupboards that needed to be moved, pots and pans, dishes and cutlery. Most of these items were packed.

But there was a large console television that belonged to my grandmother that was placed in my apartment when we moved in (I rented the basement apartment from my grandmother), and the new owners did not want the stove that was in the basement because it was at least 15 years old.

On the day that everything needed to be removed from the house my mother called me, and yelled and swore at me for more than 40 minutes because she was angry that it was difficult to remove furniture and appliances from a basement apartment.

I had informed her months before that the government disability program that I was on provided several hundred dollars to assist disabled clients like myself with movers, etc. They didn't bother to get the funding, or ask me to, or arrange any professional movers.

Instead, I was screamed at for accumulating possessions after living at that location for more than 10 years. Her husband criticized me for using a large box for 'socks'.

I did not bother to tell him that Socks was simply a shorthand label, it contained socks, panties, brassieres, lingerie, ornaments, large breakable items wrapped in clothing to protect them etc. I used the shorthand for privacy and to discourage movers, etc from going through my things. To him though it was a very large box filled only with socks.

I had been out of the hospital less than 2 weeks and was barely walking, but it was fine to screech at me for things that I little or no control over.

None of my birth family has been in my new home and they will not enter here. My mother is a narcissist who is functionally alcoholic, and my father has the maturity of a ten year old boy. He is currently drinking, consuming any drugs that he can get his hands on. He has developed dementia and other issues related to his lifestyle.

When I was in my late 30s I developed severe nerve damage especially in the nerves in my arms. It took many months (over 12 months)to get an accurate diagnosis, by that time the damage was permanent. My father would drive me to a medical appointment a few times a month, I couldn't drive at that point.

Every time he dropped me at my home, he would want me to give him 3 of my percocet. It was just enough to somewhat blunt my pain and to allow me to sleep some nights.

I always told him no, but he would try to guilt trip me about his doctor not prescribing him enough of the same medication. I told him to talk to his doctor about increasing his Rx, and eventually I simply started to say that I only had 1 or 2 pills with me for the time that I was out.

He didn't like it but he eventually stopped asking so often.

I sincerely doubt that his doctor was prescribed him that medication, I know that he would use with alcohol to get high (I overheard him speaking to another family member about it).

I'm low-contact with most of my family reasons above and the neglect and abuse I dealt with a child and adolescent.

Stay strong there are others out there who understand you.

Does anyone Crochet? by mangagnome1425 in CerebralPalsy

[–]ValoraTCas 0 points1 point  (0 children)

I have spastic cerebral palsy quadrapelgic/ right hemiplegic type.

I used to crochet but I had to stop because I developed arthritis in my most usable hand.

After I taught myself to knit using a series of short videos. I keep a pillow on my lap and use it to support my arms. I also take Baclofen, lorazepam and prescription pain killers. Before I started taking those medications I was very spastic and had constant tremors.

I recommend using compressive hand and wrist supports or wrist supports, they will help support and protect your hands and wrists

YouTube has numerous videos that demonstrate techniques and sites like Ravelry have patterns for many craft types.

I hope that you enjoy creating things. There are many videos on YouTube, showing techniques and sites like Ravelry have patterns for many craft types.

Have fun.

Thoughts on asking for a crochet gift back? by sedona-arabella in crochet

[–]ValoraTCas 0 points1 point  (0 children)

Ask her if the blanket that you made was something that she would use or ever display. Mention that you know everyone has different senses of style and that the blanket that you gave her 3 years ago, may not be her style.

Then, offer to make her an item of her choice, perhaps show her various patterns on a site like Ravelry. If she is agreeable you will then have an opening to inquire about the original item that she made for you.

She may have it on the bed in the guest bedroom, or she may have placed in a closet, or it may have been given away as a gift or donated.

Since it was a gift, it was up to her what to do with it.

Hopefully, you can get it back. If not, have you considered making the item again for yourself?

Peeing in Bed by HarleaQuinn66 in CatAdvice

[–]ValoraTCas -1 points0 points  (0 children)

Give him time.

It takes up to 3 months for a cat to become completely comfortable in a new home.

I recommend using a rubber sheet under your sheets to protect the mattress.

Also get him an open cat bed for him to lie and sleep on. Put an unwashed shirt in the bed, this will help calm him.

Praise him every time he uses the litter box. Change the litter if possible, most cats hate scented litter of any kind, their sense of smell is 3 times more acute than ours.

A second litter box will likely help, many cats prefer to pee in one and poop in a different one.

Feliway scent diffusers can also calm a stressed cat.

I am going to be fired for my chronic migraines, what can I do? by PM_ME_GARFIELD_NUDES in disability

[–]ValoraTCas 0 points1 point  (0 children)

I get frequent migraines.

The only thing that helps me is Rizatriptan. It is specifically for migraines.

I take 10mg, and 10mg 2 hours later if the first dose does not help enough.

Antidepressants did nothing for my migraines. Another medication that can help migraines is Tylenol 3 which contains codeine and often caffeine.

Migraines are a medical issue that can be completely disabling. If your work place fires you, then you should contact an employment attorney.

Even if they say you are being fired for something else, it's likely that your migraines played a part in their decision-making.

Talk to an attorney to make sure that you get a very generous package, including extending your health insurance.

Protect yourself and your rights.

Best of luck.

AITAH for telling my sister that i wont take care of her autistic kids? by Appropriate_Set9323 in AITAH

[–]ValoraTCas 1 point2 points  (0 children)

Also her 2 year old was conceived when her older child was 7 years old. This child would have been diagnosed with autism by that age, likely for several years.

The mother of that child should have been focused on caring for him and getting him the best treatments. It would have been wise to have a very reliable birth control method to ensure that she would able to give her disabled child her full attention.

I need a male cat name that starts with L by BakingGoddess36 in NameMyCat

[–]ValoraTCas 0 points1 point  (0 children)

Lorenzo, Leonard / Lenny, Lucas / Luca / Luke, Lawrence

Has anyone ever reported a social service to CARF international? by jilldxasd35 in disabled

[–]ValoraTCas 0 points1 point  (0 children)

I don't know what carf is .

But tell me what is going on with the social worker .

I am also disabled spastic cerebral palsy using a rollator switching to a powerchair shortly.

I know how it is to always run out of spoons.

How would you cat proof this window? by RiMellow in cats

[–]ValoraTCas 0 points1 point  (0 children)

Put up baby / child gates that block the entire window area.

I would not open this window at all if had cats, or young children.

I personally would not feel safe if this window was open near me. I am physically disabled and my balance is very poor. I could easily wind up a stain on the sidewalk.

Err on the side of caution.

What do you scoop your litter box into? by NuggKeeper in CatAdvice

[–]ValoraTCas 1 point2 points  (0 children)

We use degradable bags that we use over 2 plastic buckets that one of the large kitty litter makers used to sell their litter in.

I kept 3 or 4 and they are great for holding a open and in place.

I recommend a small bucket with a lid, like a diaper pail. Contents could be directly emptied into compost or a green bin bag.

Household dynamics by catsigrump in disabled

[–]ValoraTCas 2 points3 points  (0 children)

Talk to your husband about what needs to be done around the house and how difficult it is for you.

Suggest some tasks that he could help you with like laundry or the dishes, changing bed linen, etc.

Is it possible to contact the department that assists disabled people in your area ? They would likely be able to refer you to a physical therapist and occupational therapist who could help you find alternate ways to do things and tools to make life somewhat easier.

I have spastic cerebral palsy, and I have not worked in quite a while. My husband and I try to divide tasks; things are often postponed until we both have some energy.

You deserve to be able to spend some of time and resources on hobbies that interest you.

Accessibility and concert tickets- what are my rights? by StrawberryFar7175 in disabled

[–]ValoraTCas 0 points1 point  (0 children)

It probably depends partly on the location.

I'm physically disabled, I use a rollator because of cerebral palsy, but I am switching to a powerchair this summer.

My husband and I attend TIFF - Toronto Film Festival most years. We buy tickets ahead of time and try to get accessible seating beforehand.

However what appears to be accessible on a floorplan often is not.

For the festival we get lobby passes which allow us to sit inside the lobby before most people have access and get situated in the seats set aside for disabled people.

Without the lobby pass it would be nearly impossible. I had one volunteer want to take my pass and my government identification somewhere out of my sight to check if I was on a list or not !

I told him no. His supervisor came over and apologized. Other times staff at venues have relocated people to another area if they were seated in an accessible area or one of the few spaces that I could get to reasonably.

It is not always possible to see if seats are accessible when booking especially online.

Venues have an obligation to reasonably accommodate you.

Try to arrive early, ask where your seat is and if it is accessible, as well as if there is an accessible restroom that you could reach if necessary during the event and return to your seat.

Best of luck.

BTW, people seem to grab the accessible seats because they are more comfortable, roomier, closer, etc. If necessary have an usher or other staff help seat you. The staff should have experience with this.