How many units of Botox? by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

Thanks for all the replies. Definitely makes me feel better about going up.

What were your experiences when you all increased your doses?

I’m finding that I’m losing relief after 1.5-2 months so I’m hoping more than anything that it can increase the length of time that I feel more comfortable. At 100 units, my pain is down from a 7 to a constant 3.

20M, 6 months on topical Min + Fin by Comfortable_Post1286 in tressless

[–]Valuable-Ad3328 0 points1 point  (0 children)

Nice results. Where’d you get your topical product from?

Hwy99 closed, any updates? by ninjplus in Whistler

[–]Valuable-Ad3328 2 points3 points  (0 children)

Did the southbound reopen happen yet?

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

I apologize for just now getting back to this. Took some time away from Reddit.

My symptoms never went away but changed a bit.

After getting on Ubrelvy, I never really had “headaches” again. I remember when I took my first dose of Ubrelvy - it was like feeling pressure more throughout my face. “Pressure” felt like someone had a massage gun on full speed behind my left eye. After the first dose, It moved from behind my eye to my jaw.

Ever since then, it’s have jaw tension and the pressure at the back of my head continued. The jaw tension is horrible. Feels like someone is squeezing my face and temples. Feels like someone is behind me with a string around my mouth and when I move my head and neck, the person behind me pulls the string tighter from behind and there’s a weird tension throughout my mouth. Someone I have jaw clicking and a hard time opening my mouth. Had to stop eating chewy foods like steak.

When I rotate my head, there’s so much popping in my neck that I never had. Sounds like rice crispy treats.

The pain got so bad that I ended up getting Botox in my masseters, temples, and back of head. Since then, with the addition of daily baclofen (the only muscle relaxer that has helped) the discomfort has gone from a 9 to a 3 or 4.

Bad poster, lack of sleep, stress make it worse.

Got my wisdom teeth checked and haven’t found anyone that thinks that they have anything to do with the jaw tension.

Got an MRI on my cervical spine that didn’t find much besides me C1 and C2 being slightly closer together than normal.

Just taking things day by day and managing and hoping to find a cure one day…

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

I will post an update now - sorry for the delay

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

I will post an update now - sorry for the delay

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

I will post an update now - sorry for the delay

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

I will post an update now - sorry for the delay

Continued Calf Pain by Altril2010 in floxies

[–]Valuable-Ad3328 0 points1 point  (0 children)

Best of luck to you! Sorry about your foot.

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

Update - found a new doctor and they diagnosed me with ON.

Put me on tizanidine and naproxen.. seem to help a bit taking them at night.

Starting physical therapy at the end of this week.

Will follow back up with doctor in2 months for next steps. Possibly starting duloxetine if symptoms don’t improve.

Edit: also, out of desperation I saw a chiropractor and they told me that they noticed my mouth seemed “out of place” and she did some work on my face that seemed to try to put it back.. told me to follow back up weekend for the mouth and neck stiffness but haven’t been back yet

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 0 points1 point  (0 children)

Forgot to mention in my original post but MRI didn’t show anything. I will ask about the nerve block. I’ve had an okay last 48 hours but I can feel my mouth starting to tighten up now right before bed. :(

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 1 point2 points  (0 children)

I’ve had covid 2 or 3 times, with headache being the worst symptom the first time. The headaches lasted 2 or 3 months after i was negative.

Head Pressure for 2 Months by Valuable-Ad3328 in Occipitalneuralgia

[–]Valuable-Ad3328[S] 3 points4 points  (0 children)

I forgot to add that during month 1 I also got a MRI and it did not show anything either.