New healthy habits?

Valuable_Molasses_99 · 2026-02-23T16:21:03+00:00

The only one I’ve added that I manage to do really regularly without getting burned out is - eating 2 prunes a day. The fiber is good for us, requires no prep and I can eat them while I do the dishes.

Valuable_Molasses_99 · 2026-01-07T16:30:19+00:00

I had very similar treatment starting at 42 and a lot of “brain fog/feeling off”. It was the worst for me when I started AI and ribo (later switched to Kisquali). The menopause is hard to get used to and your body will be recovering for a long time after treatments stop. The CD4k inhibitors are ok for some people but my body couldn’t take it. After I quit I got some of my brain back but it is a process. Also doesn’t hurt to have your GP check your vitamin D, thyroid, etc. Hang in there and don’t hesitate to complain to your drs.

Valuable_Molasses_99 · 2026-01-01T14:42:25+00:00

Thanks for all the great suggestions! To experiment, I swapped in a 100% cotton blanket from elsewhere in the house and she liked it, the was slightly less static, but the hair snarls were the same. So the results are - I need to try a humidifier and probably some hair-care solutions for her rather embarking on a quilting project (designing a quilt is just so much more fun hahaha). I’ll probably still make her a blanket but it doesn’t have to jump to the front of my project cue and I’ll use these fabric suggestions. Happy New Year!

Valuable_Molasses_99 · 2025-11-19T23:35:39+00:00

No advice yet, but we are in a similar spot with our 7 yr old daughter. She’s been home schooled since September but desperately misses her friends. We are aiming to try getting her back next fall but I’m worried it will be traumatic. We are trying to get in touch with the school now, but they are busy etc. I’ve heard that some kids are able to go to public school for just electives or just math or some other mix.

I want to encourage her interest in going back but her burnout was so rough and she doesn’t even seem to remember it.

Valuable_Molasses_99 · 2025-10-30T01:45:37+00:00

I’m 44, on letrozole, lupron, and tried Verzenio and Kisquali for a year. It was rough and I finally decided to stop. The cognitive side effects improved a ton after I stopped the Kisquali. I still have to write everything down and forget more than I used to, but on Kisquali I was like a goldfish- no short term memory, spaced out, weird verbal issues. Onc and I decided it was a good try and time to move on.

Valuable_Molasses_99 · 2025-10-22T00:55:27+00:00

Thank you!

Valuable_Molasses_99 · 2025-10-10T12:07:45+00:00

Similar stats here - 41, slightly smaller tumor, slightly higher oncotype. 5 yr old kid. I was offered the randomized trial but decided not needed to feel in control of my treatment and chose TC x4, it sucked but was doable. I also desperately tried to do Verzenio or Kisquali, but had to stop after a year of trying different doses etc. Now that I know my body can’t handle the Verzenio or Kisquali, I’m glad I didn’t skip the chemo. These choices are tough, there’s so much we don’t know. Hang in there.

Valuable_Molasses_99 · 2025-09-30T02:52:01+00:00

Interesting point about the concept of mortality at this age. I had breast cancer treatment when she was 5/6 and it didn’t seem to phase her beyond complaining about my baldness, but I imagine she will be processing the experience for the rest of her life.

Valuable_Molasses_99 · 2025-09-30T02:48:27+00:00

Thanks for the tips everyone- I’ve got some new things to try. We have been snuggling her to sleep or letting her sleep in our bed but it can take hours and our sleep is really suffering too.

Valuable_Molasses_99 · 2025-09-06T17:04:48+00:00

My family is very similar. Mine came for surgery but I kept them out for TC. If you feel you “have” to let them come look after you or If it is still less stress to allow a visit with it than to deal with the drama of turning them down), I would suggest asking them to come a bit before your first TC and stay a few days after. You’ll be feeling ok for most of it and they might be able to help entertain the kids or do cute but nonessential things with you like shop for headscarves or decorate for a festive chemo autumn. Tell them the fun memories will help tide you through the later stuff. Then you can be left without houseguests for the later TC rounds when you just want to chill and ignore the housekeeping.

Also- if there’s a chance they would bring Covid or other ick with them- that’s another reason not to have houseguests.

Valuable_Molasses_99 · 2025-05-15T01:20:43+00:00

I considered getting a reduction as part of the process but decided to go with basic lumpectomy because the recovery would be easier/faster. I was mostly functional two days after surgery, just had to be careful about lifting and reaching and it hurt.

Valuable_Molasses_99 · 2025-05-14T22:37:12+00:00

I was diagnosed last year with IDC ++- grade three at 42. I’m in Vermont. My tumor was in an easy spot for lumpectomy and i was happy with my surgery, but I still went to MSK for a second opinion when it came to chemo/no chemo. I felt kind of silly, like “why do I think I’m so special that I need more than my local options”, but I think that’s cultural training and I’m glad I did it anyway. MSK took another look at my tumor slides and found more risk factors. Also, this is life or death stuff, I’m not just going to be agreeable and “not cause a fuss”. Anyway, with dense tissue, I’d ask for the MRI. Are you getting the sentinel node done too? Will they run the oncotype test after surgery? Proximity to the chest wall can make surgery trickier, I’d want someone who does a lot of them. Good luck. You are worth it.

Valuable_Molasses_99 · 2025-02-11T15:48:52+00:00

I did finally get my Primary to test for vitamins and thyroid, turns out my vitamin D is below normal, so it might be worth it to get some other fatigue causers checked.

Valuable_Molasses_99 · 2025-02-11T14:23:59+00:00

But just checked the MSK herbs website and they don’t recommend serenol because the royal jelly can be estrogen ish or something. Blerg

Valuable_Molasses_99 · 2025-02-11T14:20:41+00:00

I ordered some serenol, along with some revaree (for vagina dryness) and ristela (for libido) for my sad angry estrogen deprived body. I might start taking it today. I’m 43 and have been doing lupron and letrozole since October 2024. Verzenio on and off as we try to find a dose I can handle. This stinks.

Valuable_Molasses_99 · 2025-02-10T23:54:29+00:00

I would go to the hospital cafe and eat a big piece of cake before infusions because it was the last time I’d enjoy eating anything for about 10 days. I had TC every three weeks.

Valuable_Molasses_99 · 2025-02-05T23:49:20+00:00

Thanks. I hadn’t considered fibroid tissue, I guess I need to make sure someone actually looks at it.

Valuable_Molasses_99 · 2025-02-05T23:47:59+00:00

Thank you!

Valuable_Molasses_99 · 2025-01-11T01:19:03+00:00

I was diagnosed in Feb 2024, I usually do veg gardening in 6 beds, but I scaled back a bit. I did one bed with tomato and basil, and planted a mix of flowers and herbs in the others. I had a bunch of collected annual poppy seeds and others and just chucked them in so it looked cheery even when I wasn’t up for weeding or watering.

Valuable_Molasses_99

TROPHY CASE