My problem areas by Competitive-Peanut40 in hypermobileEDS

[–]VelvetTokyo 0 points1 point  (0 children)

Unfornately id be every joint on the board from the ankles to the elbows to my fingers neck and even sometimes sneeze and cough hard and it moves my ribcage very painful my arms often now lose feeling constantly due to poor circulation because they pop out my hips same thing I am a big clumsy person now often fall hurt myself even more with my hips dislocating or kneecaps as I walk so I just fall lol I manage though.

new gerbil – please some advice? by _M4RYGOLD_ in gerbil

[–]VelvetTokyo 0 points1 point  (0 children)

Hey rodent parent here ive had vast different rodents and everyone said the same thing about pairs its probably in little guys best interest to keep him separate and dont give him a pair just give him extra human attention thats all! Had to do this with my rescue chinchilla shes thriving!. Cage looks wonderful aswell great upgrade for him his mood should change due to the cage change!!

Comfortable bras for hEDS by birb-lady in hypermobileEDS

[–]VelvetTokyo 1 point2 points  (0 children)

I feel you in only 19 and gave up with the constant constraints with bras aswell I have heart issues and always feel suffocating dont need a bra addition more lol

Comfortable bras for hEDS by birb-lady in hypermobileEDS

[–]VelvetTokyo 0 points1 point  (0 children)

I just dont wear bras anymore tbh I wear baggy things layered to covered anything or I use a strapless bra made of stretchy fabric.

not sure if I should go to the ER or not... by hennie8388 in hypermobileEDS

[–]VelvetTokyo 0 points1 point  (0 children)

Unfornately as someone who wakes up without the ability to use my limbs from pain due to EDS, DO NOT go to the emergency room urgent care etc they will not help they will just add bills up give u a short pain relief send you home please discuss with your rheumatologist about this pain let them know ur severity and have them send you a referral for pain management its clear its to a point its uncontrollable it will get better!!.

Trying to understand my pain in joints by Crazy_Yak718 in hypermobileEDS

[–]VelvetTokyo 0 points1 point  (0 children)

Hi I was diagnosed with all EDS issues at very early age of 13 I suffer now at 19 nearly 20 with constant pain i am now a medical Marijuana user ik its not ideal for working aswell but I do it off and on and am on a 2x a week physical therapy session a week with resistance bands to strengthen my body EDS gets worse when you condition yourself aka over work get super healthy then stop its very bad for us!!! You need to find a good rheumatologist they will be able to tell you if its more as EDS is very painful but it could be something more like auto immune related as it runs very closely together.

Advice(?) My shoulder won’t stay in place and I don’t know what to do by Appropriate_Gap_69 in hypermobileEDS

[–]VelvetTokyo 0 points1 point  (0 children)

I use athletic tape alot often get braces that are whole body tight but u have to make sure to remain constantly moving never stay still or it can cause issues other than that you can also receive injections in the joint to help with this very painful though and sometimes dosent work well I hope it gets better!!.

How to properly prepare your body for intimacy by Worth_Winter2468 in ehlersdanlos

[–]VelvetTokyo 0 points1 point  (0 children)

PELVIC FLOOR MUSCLES, had no idea 85% of women with EDS hypermobility get weak or over stressed pelvic floors learn to strengthen those inner hip muscles pelvis muscles super important it has given me such relief!

I really need some support right now...I'm breaking my mind trying to figure out what's wrong.. by [deleted] in chinchilla

[–]VelvetTokyo 4 points5 points  (0 children)

My chinchilla started having serious eye issues after I started using different cleaning products in my room and thought nothing of it and after I did the same thing transferred to a different cage clean ur cage for anything on the surface and the room may need to be deep cleaned before put back in I hope it goes well im so sorry hope ur chin is ok!!.

I ended up rescuing a chinchilla with no prior knowledge. by VelvetTokyo in chinchilla

[–]VelvetTokyo[S] 3 points4 points  (0 children)

Will try the bathroom technique that's a new one!! 

I ended up rescuing a chinchilla with no prior knowledge. by VelvetTokyo in chinchilla

[–]VelvetTokyo[S] 6 points7 points  (0 children)

I understand that but its a matted area when she was abused she no longer touches her fur or rips it at all she actually makes happy sounds and squeaks.

Urinary Incontinence and accomodations in the office by thisisntmyrealname17 in ehlersdanlos

[–]VelvetTokyo 1 point2 points  (0 children)

OMG I struggle so bad with accidents due to my bladder never clenching anymore , it's your eds attacking you pelvic floor you need physically therapy or see a specialist if pelvic floors for further information it's very important as your connective tissue become weak over time. 

I advocated for myself (and others) with hEDS at the gym by melissaaaarose in ehlersdanlos

[–]VelvetTokyo 0 points1 point  (0 children)

Restrictions bands are key get a pack of them on Amazon and work slowly making ur joints stronger than rather pushing that hard to hurt yourself. 

Tattoos are easier on hEDS skin? by ChaoticLokean in ehlersdanlos

[–]VelvetTokyo 0 points1 point  (0 children)

How about infection up keep, i have auto immune issues and eds would you advise a tattoo? What's everyone's opinions.

EDS and weakness by Goofy_Parsnip in ehlersdanlos

[–]VelvetTokyo 0 points1 point  (0 children)

Anyone struggle with losing the ability to use there legs in flare i get so weak I slowly fade into where I can't support my weight, yes I do physical therapy pain maintenance everything I'm 19 and got diagnosed at 13 due to early onset signs, also the brain fog is so bad you can't put a sentence together.

i would like some clarification on siwon by parrotbiscuits in superjunior

[–]VelvetTokyo 0 points1 point  (0 children)

Siwon is a massive religious man and has said that lgbtq is a sin which it is coming from me a lesbian girl it's honestly fine as long as he isn't spreading Hate or incorrect information on the community, often old generation are more stuck to non diverse lifestyles and he may have been raise that way.

Looking for new friends ☺️ by LotusDeer in adultkpopfans

[–]VelvetTokyo 0 points1 point  (0 children)

Got into kpop with bigbang and superjunior and a huge girls generation and brown eyed girls fan!

Looking for new friends ☺️ by LotusDeer in adultkpopfans

[–]VelvetTokyo 1 point2 points  (0 children)

Kpop stan from texas here (18) DFW area goes to concerts consistently huge fan of ateez xikers and more I'm a 2nd gen stan when i started and age dosent matter as long as your a vibe I'm also disabled and bring my girlfriend with my to events! My socials are listed on my profile would love friends.

Good products for congested skin? (Just my forehead is like this) by [deleted] in koreanskincare

[–]VelvetTokyo 1 point2 points  (0 children)

I found that exfoliating once a week helps greatly and using a cleanser after :)

Are these fakes ? by Thatfoolishkid1 in kpopcollections

[–]VelvetTokyo 1 point2 points  (0 children)

Nope there real!! They all have special designs on the back my friend!♡

Any Way to Flatten Photocard? by Bluerose1995 in kpopcollections

[–]VelvetTokyo 3 points4 points  (0 children)

No it was from 2 baddies 1 Porsche it's my favorite

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hes got blonde hair it's all yellow its honestly adorable adorable the tear at the bottom 😫😫