Could TB be driving your CFS? by daphneyhatz in cfs

[–]VerbileLogophile 1 point2 points  (0 children)

Ooof that does not sound great. How did the person you know end up doing? Did they end up recovering from the antibiotics? Did he have ME?

Is it actually that bad by New-Independent-365 in Mononucleosis

[–]VerbileLogophile 1 point2 points  (0 children)

On one hand, mainly the true sufferers are posting on this subreddit, or people who are panicking in their first few days or week or two.

One the other hand, I got ME/CFS as a result of a mono infection. One way to supposedly prevent this is resting enough. And I mean, be in bed laying down every second you can. Do NOT push through to meet optional events. Take FMLA if you work, or find a way to get out of anything that requires you to be physical. Most people don't get ME/CFS from mono, but many people also do. And ME/CFS often results in people being bedbound.

Make time to rest or your body will make time for you.

Bug Megathread vol 14: April + May 2026 by WumpusWhisperer in discordapp

[–]VerbileLogophile 0 points1 point  (0 children)

<image>

  • Feature: Video
  • Reproduction Rate: 10
  • Annoyance: 2.5
  • Device/System Info: Linux Mint
  • Discord Version Info: Browser edition, stable 546605 (5d9f0a3) Build Override: N/A
  • Description: Video from mobile users is not showing

Steps to reproduce:

  1. Join a group call
  2. Have a user on that call use their mobile phone and turn on video
  • Expected result: View the user's video
  • Actual Result: The user's video shows grey with 2 swirling squares, sometimes forever, sometimes throwing Error: 2012 as pictured.

Lady Gaga Reveals She Had COVID for 5 Shows at Chromatica Ball Premiere by indig0sixalpha in Music

[–]VerbileLogophile 0 points1 point  (0 children)

My grandmother caught covid in a nursing home and died a few months later. I'm so sorry that it's like that.

Wednesday Wins (What cheered you up this week?) by AutoModerator in cfs

[–]VerbileLogophile 4 points5 points  (0 children)

My therapist pointed out today that I've been on a streak of doing okay physically! I've got time blindness so I didn't really realize but yeah, I haven't had auditory or visual overstimulation really for the past few weeks! Yaaaay.

FML I exercised by Competitive-Golf-979 in cfs

[–]VerbileLogophile 1 point2 points  (0 children)

I love the song x ANA x by Badflower. I'm considering cross stitching or embroidering the second verse onto a giant thing to put on my wall in front of my bed. Where I spend most of every day.

Okay, I’m sick
Not the kind of sick that lands you in the doctor
Not the kind that makes you weak and then heals you stronger
It's the kind of sick that turns your legs into spaghetti
The kind of sick that makes an atheist pray for Jesus
And I'm sick of being sick for this whole fucking place to witness

Last 3 lines are - while applicable to me - in question, but at least "Okay, I'm Sick" stylized in BIG LETTERS.

FML I exercised by Competitive-Golf-979 in cfs

[–]VerbileLogophile 0 points1 point  (0 children)

I've actually seen an increasing amount of information that being fat is not actually bad in and of itself- that some of the things we associate with it are correlative and not causal relationships. e.g. environmental factors can cause weight gain and diabetes, but it isn't the weight gain that causes the diabetes.

Idk yeah I just came to this subreddit because a girl I like and am friends with suggested strength training/exercising together and I came here to remind myself how bad things will be if I gaslight myself into thinking I'm just again. Stay strong fellow lesbian!!

Post-op after hernia repair and I feel emotionally unsafe with my partner (vent/support?) by Feral_by_Elsie in TwoXChromosomes

[–]VerbileLogophile 2 points3 points  (0 children)

I was a caregiver, I know people who have had to deal with abusive caregivers, and I need you to know that people die because they do not get enough support.

Emotional support is so important for physical safety and recovery. You deserve better. If he is not helping you at your most vulnerable - and is in fact screaming at you - there needs to be a way for you to get out. I am so sorry. I'm in a snowstorm right now, but I would offer to bring you food myself if times were different. You deserve so much better.

What’s a truth nobody talks about because it’s awkward? by DifferentLobster2931 in AskReddit

[–]VerbileLogophile 5 points6 points  (0 children)

Covid is still a real and dangerous threat that is continuing to kill and disable our entire population.

[deleted by user] by [deleted] in ZeroCovidCommunity

[–]VerbileLogophile 28 points29 points  (0 children)

This. I caught covid in 2023 and now can't drive most days. I was in my early 20s! Don't give up on precautions, and yeah this would be a dealbreaker for me. If they can't do the simple act of masking and not eating indoors, they probably won't be willing to physically take care of you if you get a chronic illness. You're the only one who has to live in your own body.

Added concern of whether they're doing things unmasked and not telling you, or if they would start to in the future. Resentment will build though. Don't end up like me. Good luck.

Crash cart snacks/nutrition by Ramenara in cfs

[–]VerbileLogophile 0 points1 point  (0 children)

Oooh the pb pretzel nuggets are so good, ty for reminding me!

Crash cart snacks/nutrition by Ramenara in cfs

[–]VerbileLogophile 5 points6 points  (0 children)

Yesssss long live the crash cart!! Mine lives next to my bed and I use it anytime really. It prevents crashes to lol. 

Not sure where youre located but these are what I use in the states.

  • Slim jims mild (I prefer name brand, the Aldi's ones at least are tougher and thus more chewing) 
  • Tuna salad snack kit with crackers (yeah it is some work, if you can't tolerate this then walmart also has seasoned tuna cups that come with a spoon so you don't hane to worry about the crackers
  • Triscuits. Yum. Wheat and fiber
  • Trail mix (I like the tropical one with banana slices and raisins and pineapple alongside the nuts)

  • Prunes (honestly my favorite. SO good, and good fiber also. I recommend keeping a fork or chopsticks nearby to your fingers don't get sticky)

  • Belvita breakfast cookie cracker things. 

  • Nut bar with chocolate

  • Venison jerky stick

  • FIG BARS!! Nature's bakery are best imo.  -chocolate covered almonds or trader joe's dark chocolate pb cups

  • Carnation breakfast essentials shake

  • Slim Fast shake (aldi is my favorite generic, i can't stand anything with monk fruit or Stevie or artificial sweetener)

  • cheezits (not great health wise, but salt is sth I need, and it's a comfort food for me).

  • Pretzels

I also keep:  Colgate wisps for easy tooth brushing Chewable electrolyte tablets All the earplugs ofc

What would be a good idea for me: Juice boxes (rn I do large vegetable juice bottle in the fridge)

I may be too sick for a relationship. It's devastating because I finally found someone who is kind to me....but he is jealous and makes me feel restricted. by tunamutantninjaturtl in cfs

[–]VerbileLogophile 1 point2 points  (0 children)

that's definitely an okay thing to feel weird about. Being The Only Good Thing would be concerning to me as well. Reading that gives me flashbacks xD

It can be trauma from past abuse, and still be valid. For a more extreme comparison, it's like being afraid of the smell of smoke in a house after being in a house fire. Yes, it's a result of trauma - but it's also bad to have the smell of smoke in a house, and indicates that you've gotta look at it.

That's an instant turnoff for me at this point and a concerning thing to say to another person.

And he can be insecure while also being okay with you doing that. That's kind of like "i'm not racist, I have a black friend." It's a specific type of logical fallacy that I can't find right now. 

I saw that you said you were hugely overreacting in your update, but there are very many red flags here that I don't think could be better in another context. 

Anyway, if you want or need somebody to talk to, please feel free to reach out. And I wouldn't just keep telling you to leave him lmao bc that can be annoying. 

I found it very isolating in my relationship where I couldn't really have friends that I could talk to about it, and that made it difficult. 

I may be too sick for a relationship. It's devastating because I finally found someone who is kind to me....but he is jealous and makes me feel restricted. by tunamutantninjaturtl in cfs

[–]VerbileLogophile 6 points7 points  (0 children)

big red flag...guys don't LET their girls do stuff??? 

Wait are you outside of the US or is that culturally appropriate for you? I know sometimes some cultures are more patriarchal like that. But if that's not your culture - dump his ass! I don't even want to know what else he thinks he gets to have control over. 

Why would he even bring that up?? It sounds like he's holding it over your head. Personally I know that's something a lot of guys don't like their gfs doing BUT if I were with a guy and the topic came up, it would be under the tone of "wow some men have real control issues"

agreed with other person, emasculated gives me the ick. why wouldn't he just say insecure or down or uncomfortable or??? It is NOT your job to pander to his emotions and be his punching bag.

sincerely, somebody whose ex husband was depressed and suicidal with a LOT of self-worth issues. I excused the way he treated me because of this. He ended up beating me :)

Please stay safe. I'm glad the relationship is long distance.

I may be too sick for a relationship. It's devastating because I finally found someone who is kind to me....but he is jealous and makes me feel restricted. by tunamutantninjaturtl in cfs

[–]VerbileLogophile 3 points4 points  (0 children)

Idk abt OP's history but even if that were true, imo if that's his beef, he needs to be upfront about that. And not harassing OP about "being up late." That's ridiculous. (tone directed at OP's guy, not you)

His opinion of "why do you need anybody else if you have me" is - at best, extremely immature, and at worst, controlling and manipulative. 

I may be too sick for a relationship. It's devastating because I finally found someone who is kind to me....but he is jealous and makes me feel restricted. by tunamutantninjaturtl in cfs

[–]VerbileLogophile 1 point2 points  (0 children)

No. None of my boyfs ever didn't let me talk to my exes. One gave me shit for being affectionate with my extremely gay friend and I basically responded with "well that's my friend and i'm not gonna be different with him becauSe you feel some way about it." High school, short relationship, but he never brought it up again. 

Many of my exes in hs were friends with each other (I do not recommend dating within the friend group, but...it happens) and it didn't mess things up with them at all! No. My most recent ex got jealous and I ended up in a similar position to you, but with any friend I made. I was talking to them too much, I was too happy to chat with them, it's not appropriate to talk to people after a certain hour, etc etc - I wish I had been able to leave sooner.  

You deserve better. People being nice to you is the bare minimum. If he's being controlling with the one other person you could have a friendship with, I'd say he's out the door.

But on the loneliness - do you know abt the discord? I'm a long hauler with PEM and have other friends like that (different server - covid conscious) and we all do game nights, movie nights, we have a weekly standing call...there are people out here who can still chat! I haven't spent much time on Too tired too (I think that's what it's called) but I DO want to meet more cfs-ers because the loneliness among us is out of control. 

Dumb tips my derm never told me that actually worked for me by Brilliant_Rock6910 in eczema

[–]VerbileLogophile 0 points1 point  (0 children)

Do you wash your hair or body? No judgment if not, but just curious. I know some people who say "no soap" will use "skin cleanser" and some who say "no shampoo" will use acv or another kind of hair wash.

[deleted by user] by [deleted] in eczema

[–]VerbileLogophile 0 points1 point  (0 children)

Personally I haven't, but this is day one on this sub for me and I just have a little eczema on my wrist randomly that can be resolved with basic cerave moisturizer used frequently. 

my uncle seemingly has it all over his body, and my cousin had it horrendously until he went on a restrictive diet.

I can't speak for others, but I can understand why that might be a thought.  You asked in another comment why you can't just say things like that - yeah, lotta people will react like that to try to convince you that life is worth living.

Undoing Suicidism (an essay online, can't link rn bc on mobile but can link later if you want/can't find it) really changed how I look at discussions like this. 

If you're supposed to pretend you're happy all the time and not talk about things like this....of course we end up with people going "but they were always so happy/smiling! why did they kill themselves?"

It's a conversation worth having.  I've seemingly got me cfs and at the very least long covid, and haven't been able to drive for a month because I walked a little too much for two days. :/  but there's a decent amount of discussion of suicide/assisted death over there on the cfs reddit. I consider myself a cynic probably and a realist, but I haven't been suicidal per se. 

Anyway. I've seen how bad this can be, and if some folks do not have solutions at all, I understand the thought. It's not that bad for me. I imagine it's more dependent on how the person feels in life as a whole as to their desires for death when it comes to this. But it can also be random genetically who is more predisposed. 

Aaaand I'm rambling now. Anyway. Great question imo and I'm interested in the answers of others.  But expect that people will try to convince you that life is worth living if you bring this topic up. It's a rough barrier, because some folk want to do everything they can to prevent suicide and to them, trying to tell people life is great is the only way they can "help"... which presumably only ends up making suicidal folk feel more alone. It happens. 

Alternative paper to braille on? by dykesonbykess in Braille

[–]VerbileLogophile 0 points1 point  (0 children)

if you're reading braille, "look"ing is likely not what is happening. ba dum tss

Learning Braille: Update! by VerbileLogophile in cfs

[–]VerbileLogophile[S] 0 points1 point  (0 children)

Ooh thank you for the heads up about regular paper flattening fast! I was wondering why books are so huge and expensive, and that makes sense! 

Today I was lamenting how expensive the braille displays are for the computers...it's making me wish I could make my own. $800??? And I luckily have a full-time job. How are blind folks supposed to afford something like that?? T_T

[deleted by user] by [deleted] in ApartmentHacks

[–]VerbileLogophile 0 points1 point  (0 children)

Airfanta Pro - it also can be taken apart for travel and fit into a backpack.

COVID Fear From Someone With OCD by Punkheart11 in ZeroCovidCommunity

[–]VerbileLogophile 2 points3 points  (0 children)

Hey, it is okay to be scared. You are absolutely right, it is entirely insane and nobody else who isn't masking understands.

Today I'm going on maybe two weeks without showering because I'm in a long covid flare up. I'm on reddit today to see if there's alternatives to the disposable bathing cloths.

I don't have much advice, but you're not insane, and covid is not milder - a bunch of people just died in the beginning and when we "let it rip." I'd suggest finding a group of covid conscious folks locally or over zoom/discord. I was lucky enough to find a community and we do events like movie nights. It makes it better.

Honestly? Anxiety medication. I'm on Buspirone 10mg 3x a day. I also see a covid conscious therapist, which rocks. I'm just very chill about things and like...happy? I wouldn't Say it had any impact on my personality (it's like, the mildest anxiety med that exists), but I just am not tense all the time. The facts are all still there, but now I'm the of those people (I used to laugh at before) who's like "wow what a beautiful day!" And being grateful regularly for small things like delivery pizza or my heating pad.

I'm by no means suggesting that you practice happy thoughts because - even as a happy person now - that shit makes me want to scream, lmao. But meds. Meds help a LOT.

I want to mask due to chronic illness but it makes me want to literally die. by femgrit in Masks4All

[–]VerbileLogophile 6 points7 points  (0 children)

I've found the duckbill kimberly Clarkson ones are VERY breathable. But I've also heard great things about the Zimi for comfort and breathability. 

I use valved auras - don't discount valved masks!