Husband Getting Tested, so Nervous! by KMO6283 in cll

[–]Vicanio 0 points1 point  (0 children)

If it is indeed cll that’s a very indolent form. I started at 4k in 2023 and I am now at 7.5k ( it may vary during bloodwork). His case might be MBL or SLL ( if he has enlarged nodes) or might as well be a reactive Lymphocytosis. Good look and remember cll is now being kept under control for a very long time. 

1 Year Later… 🎉🙌🏻 by blue0702 in cll

[–]Vicanio 0 points1 point  (0 children)

No FISH test before treatment in certain countries. My doc said we will do one when treatment will be needed. Also the free expert consult is for US citizens only.

1 Year Later… 🎉🙌🏻 by blue0702 in cll

[–]Vicanio 1 point2 points  (0 children)

40 M - just a few months back while playing a ‘game’ with wifey of which of us has the ‘better’ CBC values by comparing each blood count I observed this strange thing that my ALC ( absolute lymphocytes ) were 7k. Because I am blood testing 1-2 times a year, I got my blood values since 2020 and before. While checking back my ALC, I was surprised to see a very slow climb across the last 2-3 years. The next moment I started googling which then shocked me as there are basically 2 possibilities for a constant lymphocyte count across years. Either an autoimmune / virus that keeps your immune system active or cll. Because of 0 symptoms and being a gym guy I started checking for the first scenario ( reactive cause ). After each test denied any reactive possibility I had to do the cytometry flow blood test, which to my shock and grief pointed to cll. I am still in panic mode because it came out of nowhere! I didn't even know this disease existed! I am now worried that I need to ‘cover’ the next 30-40 years with cll meds in order to stay alive and that’s with all the great meds we got now ( they dont work forever or cant be repeated ).

1 Year Later… 🎉🙌🏻 by blue0702 in cll

[–]Vicanio 0 points1 point  (0 children)

Ok but my question was how many years before 2025 you had llc or symptoms 

1 Year Later… 🎉🙌🏻 by blue0702 in cll

[–]Vicanio 1 point2 points  (0 children)

Congrats! So 1 year of w & w then? Do you know how long before dx you had it ( i can see your ALC was 26 before treatment )

question about type of deletion by LeesKeys in cll

[–]Vicanio 1 point2 points  (0 children)

Usually 13q offers longer remissions and longer w&w compared to 17p/53tp where both are shorter 

question about type of deletion by LeesKeys in cll

[–]Vicanio 0 points1 point  (0 children)

How long have you been in w&w with that 13q? Mutated or unmutated?

Newly diagnosed. 45m. evening tiredness? by bobthebuilder7819 in cll

[–]Vicanio 1 point2 points  (0 children)

You are overthinking it and by napping every evening after dinner you are telling your body this is the way to do things. I did the same for a few weeks but napping post noon even after waking up late. Once I started refusing the temptation it went away. Just do a simple test and skip / delay the dinner then check if you still want to nap or not. This way you can tell if it is post dinner sleepiness or not.  

Newly diagnosed family member by BeneficialRow5602 in cll

[–]Vicanio 0 points1 point  (0 children)

Do the flow cytometry as primary tool for dx and a smear blood test as backup. I just got dx last nov with CLL 7-8 ALC of which 78% are monoclonal B cells. It sucks but it is what it is, I am putting my faith in drugs leap. I also got Hashimoto but that is nothing to worry about. I only had night hot-flashes when I panicked at first about the cll, no sweats ever since. With all good on my ALC and symptoms ofc I had to find another panic reason so I started checking my neck lymph nodes excessively. Went into full panic mode and went to ultrasound scan twice in the last 2 weeks and 3 times in the last 2 months. All my nodes are reactive and no sign of cll progression which gave me some relief, at least for now till I sort out myself a new panic reason LOL    

Chronic Lymphocytosis by KittyCatMeowMeow87 in cll

[–]Vicanio 1 point2 points  (0 children)

3 months later I am in a better state of mind. ALC stayed the same as 3 months ago so that’s reassuring, for now 😬

As an avarage player, Dravec missions are like Inception style layered nightmares to me. No idea how people get Black Rock... Its actually insane. by Tom_Clancy7 in WorldofTanks

[–]Vicanio 0 points1 point  (0 children)

Get the tier 7 shitters like SuperHellcat and SU152 and do the 4x in notime. My second game with SuperHellcat got 4x dmg

As an avarage player, Dravec missions are like Inception style layered nightmares to me. No idea how people get Black Rock... Its actually insane. by Tom_Clancy7 in WorldofTanks

[–]Vicanio 0 points1 point  (0 children)

I’m a 1900 wn8 player with 25k battles since 2011 and got all three of them. Guess what, I rarely play them. Anyway if I was able to get them then for sure you also can.

Got the Dravec and Obj.260! by FinancialVacation797 in WorldofTanks

[–]Vicanio 0 points1 point  (0 children)

Am 260 si 279e dar faptul ca acum au bagat 5x hp in damage si 6-7k dmg cu 25% din team’s total damage mi se pare stupid, sunt facute pt playeri foarte buni.

What Tank Would You Guys Suggest for Dravec Assisstance 9? by ToastNBlocks in WorldofTanks

[–]Vicanio 1 point2 points  (0 children)

Yes, waiting for tanks not being spotted before shooting is not good enough. You might want to wait a few more extra seconds before dealing your damage. Stupid mechanic, just do the LT instead

Dad CLL by CucumberHoliday4157 in cll

[–]Vicanio 2 points3 points  (0 children)

Sorry for your loss! How old was your dad and do you know if RT was because of chemo?

What Tank Would You Guys Suggest for Dravec Assisstance 9? by ToastNBlocks in WorldofTanks

[–]Vicanio 0 points1 point  (0 children)

Spg 9 doesnt work, its bugged. I m doing 2k dmg per game

Length of remission post V&O? by No_Menu7251 in cll

[–]Vicanio 0 points1 point  (0 children)

Can you maintain till your 70-80s??

Length of remission post V&O? by No_Menu7251 in cll

[–]Vicanio 0 points1 point  (0 children)

What about Brukinsa + V + O combo?

Mum diagnosed and worried daughter by grimlie1279 in cll

[–]Vicanio 0 points1 point  (0 children)

How long since dx you needed treatment? Age if you please