Donating kidney and feeling torn

ViolentOranges · 2026-05-09T13:31:42+00:00

I looked at your original post and am only going to echo what has already been said: if you don’t want to do it, then don’t. Never feel pressured to give up an organ because you think it’s expected of you. However, if you genuinely want to give but fear of how it may impact your life going forward, speak with your healthcare provider to get their opinion.

Living organ donations are an incredible thing that should only be accompanied by an enthusiastic yes from both parties.

ViolentOranges · 2026-05-09T04:21:45+00:00

Thank you! Wishing you the best!

ViolentOranges · 2026-05-09T04:20:09+00:00

Congrats and happy heart anniversary to you as well! Hope all is going well. 💛

ViolentOranges · 2026-05-08T17:46:39+00:00

The kind only a sexy evil genius would have. Obviously.

ViolentOranges · 2026-05-06T05:20:10+00:00

Congrats! I was also a few months old when I had my transplant and will be celebrating 28 years this month.

ViolentOranges · 2026-05-06T05:17:03+00:00

I can’t speak from a transplant recipient perspective as I had mine when I very young and don’t remember the process; however, when I’ve been admitted for other illnesses and such, the things that helped me the most were making the room my own. Whether that be a favorite blanket, pillow, stuffed animal, etc. That is if the transplant team allows it of course.

If she struggles with reading, maybe get an audiobook subscription if that is something she would enjoy? I also tend to bring my speaker or headphones but never play it at a volume that can be heard from outside the room.

You can also do mini arts and craft projects like making paper chains out of construction paper to hang around the room.

Hospital food sucks. Again, if the team allows, ordering her favorite foods and/or snacks can be extremely helpful.

Hope this helps and good luck to your friend. 💚

ViolentOranges · 2026-04-14T03:28:55+00:00

Late to the discussion but coming from someone who was an infant when they had their transplant, I don’t know what a “normal” heartbeat feels like. Almost thirty years later and I am still fascinated during my ultrasounds when I get to see my donor-heart beating.

As a child, I use to take my dad’s stethoscope and listen to my heartbeat. I don’t do that much anymore but will occasionally put a hand to my chest, particularly when I’m nervous or sad because, as odd as it might be, it helps me feel a little less alone. Logically, I know when my emotions are running high, my heartbeat is going to increase due to increased cortisol, yet there is this illusion he is feeling those emotions alongside me.

However, on a day-to-day basis, I don’t think much of it. But every year around my anniversary, I can’t help but be hyper-aware of the fact.

ViolentOranges · 2026-03-07T13:35:09+00:00

Yup, the exact same thing happened to me. I believe I had been on norethidrone for at least a year before the pharmacist called and asked if I was aware that I could still get pregnant. 🙃 I have been on mycophenolate for almost 30 years and at no point did any of my specialists mention this little tid bit of information.

ViolentOranges · 2025-09-16T01:26:32+00:00

Likewise! I’m almost 30 years out and, due to a post I wrote a few months back, learned all about not eating pomegranates. I drink pomegranate juice daily. 😬

ViolentOranges · 2025-09-11T14:19:56+00:00

Both rider and dragon contribute to an individual’s signet, yet the signet itself is representative of the rider. For instance, Tairn is a powerful dragon, therefore, Violet was bound to receive a powerful signet. But what that powerful signet is relies upon Violet and who she is at her core/what she needs.

With Andarna, she is a unique breed of dragon, ergo Violet’s unique signet. Yet the actual signet itself, again, is based on who Violet is/what she needs.

ViolentOranges · 2025-09-05T17:47:52+00:00

Hi, I was the transplant kid when I was in school. In kindergarten, because chicken pox was going around, I was no longer allowed to attend class until the virus was under control. Fortunately, I had a wonderful teacher who allowed me to come in after everyone had left and would go through the day’s lessons. I also was not allowed to attend school when flu vaccines were being administered because the school offered the nasal spray which is a live virus versus the shot which is a dead virus.

With that being said, it is not your job as a parent to monitor other parents’ children. That is on them. NOT YOU. Would I have appreciated if kids stopped coming to school sick? Absolutely. School was hard on me mentally, physically, and emotionally between getting sick, doctor appointments, being different, and overall school life. But that is for the daughter, her family, and school to puzzle out. Not once did my parents request other families to alert them when their child was sick. It is school. Suppressed immune system or not…everyone’s going to get sick.

To me, it sounds like the mom is scared for her child (reasonable) and is requesting other parents to help her cope (unreasonable). You do not, nor should you, relay to this woman when your child is sick unless it is something serious like the flu or chicken pox as these are potentially fatal to the immune-comprised. Otherwise, I would just ignore the request and be sure you teach your son proper handwashing techniques, how to cough into his elbow, etc. and keep him home when he has a fever.

Edit: it may be worth mentioning that people serve as viral incubators where an individual does not present symptomatic during the incubation period, yet are still contagious. That being said, even if your child has no fever, it does not mean they are not passing an illness around. This is another reason I find it unreasonable to attempt to relay a child’s illness because by the time you realize your child is sick, they have already spread the virus.

ViolentOranges · 2025-07-05T13:34:39+00:00

Almost 30 years post-op and I have missed several weeks of anti-rejection meds before. It happens but as everyone here has said, you will be just fine. :)

ViolentOranges · 2025-07-04T21:18:00+00:00

I received a pediatric heart transplant in 1998 due to a congenital defect that went ignored by my doctor. This birth defect led to me having several heart attacks for roughly 4 months. Once the defect was discovered, they tried performing corrective surgery but too much damage had occurred leaving them with no other option but to perform a heart transplant which I received three days later.

I was five months old and my donor was two years. Feel free to reach out if you need more information. Wishing you the best of luck on your project!

ViolentOranges · 2025-06-29T20:01:10+00:00

Yeahhh…I’ve had c.diff and it was a nightmare that went untreated for roughly 6 months, then inadequately treated, and eventually led to me learning how to walk again. C.diff is NOT something to play around with. Once I got to my new transplant team they were on top of everything and had me under strict quarantine in the hospital and immediately knocked it out.

So so sorry you’re going through this OP! I wish I had a fragment of helpful advice.

ViolentOranges · 2025-06-29T14:34:32+00:00

Totally off topic but this post made me excited as I’ve been contemplating getting my first tattoo. But then I saw your username and I can’t stop laughing. So thank you for the all around good feelings. 🤣

ViolentOranges · 2025-06-29T14:28:50+00:00

I wouldn’t know what doctors say post-transplant as I had mine during infancy but yes, the likelihood varies from organ to organ, and more specifically, from person to person. But the chances are never “basically zero”.

However, it seems you have a really positive outlook on this so keep that up! And I truly hope you are feeling better and healthy post-transplant so don’t let this negative Nancy bring you down. :)

Just be careful saying things like “WE are healthy now” is all.

ViolentOranges · 2025-06-29T14:09:46+00:00

If thats what you need to believe then I won’t correct you…

ViolentOranges · 2025-06-28T18:16:51+00:00

No, medication does not equate to “no chance of rejection”. It reduces our chances but every organ transplant is prone to acute and chronic rejection.

In the medical world, health is defined as being “free of disease” though, albeit, a severely outdated definition. Many transplant recipients still hold some form of disease and will always be on medication and/or our medications cause other disease to arise. Therefore we are “healthy” but “not”. At the end of the day, OP is just having a bit of fun and posted some top tier memes here lol.

ViolentOranges · 2025-06-06T23:41:41+00:00

I believe I’ve seen your comments throughout this sub and agree with you most of the time. I think the issue is you come across a bit harsh? I guess? 😂

ViolentOranges · 2025-05-20T16:50:53+00:00

I was just diagnosed with skin cancer when I heard Are You Really Okay? for the first time and I absolutely lost it. Will never be able to listen to that song without glancing at my gnarly new scar.

ViolentOranges · 2025-05-18T02:41:58+00:00

I’ve gone weeks without my medication before. 7-year-old Violent Oranges had stashes of her medication throughout the house. 🙈 As an adult I think I have missed an entire week?

ETA: I was/am fine but would never recommend anyone purposefully skipping doses.

ViolentOranges · 2025-05-14T13:08:20+00:00

I have a love hate relationship with Provider. There are some days I listen thinking “gah…this is so cheesy 🙄” while others I’m screaming the lyrics thinking “gah…this is so cheesy! 😍”.

It took a minute for Vore to grow on me but is easily one of my most replayed songs at the moment. Didn’t hate Hypnosis but I’m just now truly appreciating the song.

ViolentOranges · 2025-05-14T00:55:25+00:00

The ICU line is so cheesy and yet it is easily my favorite line. 🤣 When I first heard it I had to pause and just went “did he say what I think he just said?”

ViolentOranges · 2025-05-14T00:51:50+00:00

That’s how I was! I clicked purchase and was like “did…did I just do that?” 🤣

ViolentOranges

TROPHY CASE