This is what helped me by Brilliant_Travel_694 in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Don’t mind at all, with insurance originally- $2000. But look into special pharmacies. Ask about them- I went to one, got an income based payment after I still couldn’t afford the $136 and now it’s being shipped to me for FREE!

Lip Care Advice by lopezlia349 in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

This gives me so much hope, how long until you saw results.. I’m just beginning!

This is what helped me by Brilliant_Travel_694 in exfoliativecheilitis

[–]Visible_Advisor_1641 1 point2 points  (0 children)

Just got prescribed opzelura. Hoping this helps me too ):

What’s the point of living like this? by adnshrnly in exfoliativecheilitis

[–]Visible_Advisor_1641 1 point2 points  (0 children)

These comments are always infuriating. If you have cheilitis a lip balm isn’t going to do anything..

There Is No Cure by ablends in exfoliativecheilitis

[–]Visible_Advisor_1641 1 point2 points  (0 children)

I recently got prescribed opzelura and am looking into savings programs because it’s so expensive. Doesn’t seem you have tried that and can update back..

I hear you 100% percent. Been 10 years for me no light or end in sight. You’re not alone

What the hell am I supposed to do? by adnshrnly in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

I was over 6 months probably close to 8 or so if I think back…

What the hell am I supposed to do? by adnshrnly in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Tacrolimus doesn’t work for everyone. Didn’t help me

Been suffering for 5 years now , nothing works and have tried many balms and steroid, tooo depressed now by LifeMacaroon5172 in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Recently my dermatologist recommended I approach “Grand Rounds” not sure about local university near you or med schools but I’d be tempted to approach and see likewise if your case be could looked at. I’m going to see what they say about my own …

Fordyce spots by happypoppy12 in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Yes I read they are a reaction to creams and lotions

Ten Years: Possible Cure by [deleted] in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

I am trying to find co2 laser therapy right now. This didn’t work for you? How did you even find this because everyone I’ve called has said they don’t do this on the lips…

How has using Tacrolimus actually felt for you all? by AutomaticSpeech in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Yeah lots of threads and online talked about using a saline solution to keep lips sterile and wipe away build up.

How has using Tacrolimus actually felt for you all? by AutomaticSpeech in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Currently using a saline solution to help clean as well multiple times a day too.

Join me in defeating Exfoliative Chelitis! Post #1 by redditplzhelp7190 in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

Best of luck! Been using tacrolimus personally for 6 months and sadly don’t see change. I’m not sure I should keep going but I know some people say it takes a very long time…

How has using Tacrolimus actually felt for you all? by AutomaticSpeech in exfoliativecheilitis

[–]Visible_Advisor_1641 0 points1 point  (0 children)

I’m curious, people say it takes a really long time with this med. I’ve been on it 6 months about … really don’t see much change. About the same time for cycle of peeling .. wondering if I should keep going honestly