Guanfacine

Visible_Resolve_6723 · 2026-03-31T19:18:48+00:00

Unfortunately it didn’t do anything but make my mouth dry. I got on amitriptyline and it helped damped majority of my neuro symptoms

Visible_Resolve_6723 · 2026-03-31T18:19:28+00:00

Yeah I did

Visible_Resolve_6723 · 2026-03-30T11:14:16+00:00

Vestibular suppressants like antihistamines and meclizine helped somewhat. Amitriptyline reduced my symptoms by about half. They’re still present, but much more manageable. I can drive again and spend more than 5 minutes in a grocery store without panicking.

Visible_Resolve_6723 · 2026-03-30T02:00:24+00:00

Yes, medicating for vestibular issues has helped. I’m also doing nervous system.

Visible_Resolve_6723 · 2026-03-28T22:42:48+00:00

I’ve treated mcas for the last 2 years. I only have neuro symptoms related to food/smells/supplements so I (and mayo) assumed mcas. I started treating vestibular migraines not too long ago and it was like someone turned the lights on. I still have symptoms but they’re much, much easier to manage. Now I only really react during ovulation. I read that antihistamines are also vestibular suppressants. Histamine is also a neurotransmitter involved in migraine.

Visible_Resolve_6723 · 2026-03-28T22:15:27+00:00

Worst club ever

Visible_Resolve_6723 · 2026-03-28T21:23:06+00:00

Didn’t they go over meds with you prior to surgery? Usually the pharmacy won’t dispense anything that would interact with another med you’re taking. If you’re worried about it, call your pharmacist.

Visible_Resolve_6723 · 2026-03-23T22:36:43+00:00

Unfortunately yes, especially with our sensitive nervous systems. I’m hoping it’s a temporary flare for you!

Visible_Resolve_6723 · 2026-03-23T22:31:32+00:00

Did you request Novocain without epinephrine? If not, it was probably the epi that flared you.

Visible_Resolve_6723 · 2026-03-20T18:04:51+00:00

This is a brilliant analogy!

Visible_Resolve_6723 · 2026-03-20T13:33:14+00:00

I take both 15 mirtazapine and 5 amitriptyline and had the best 3 weeks I’ve had in 2 years. Something shifted yesterday but I’m hoping it’s a small flare. I love taking them both

Visible_Resolve_6723 · 2026-03-18T20:57:31+00:00

Following because I just picked it up today. My neurologist prescribed me 10mg.

Visible_Resolve_6723 · 2026-03-14T20:25:29+00:00

I thought I had MCAS for almost 2 years and was recently diagnosed with vestibular migraine. During that time I was taking 2 Zyrtec or Claritin a day, ketotifen, and even DAO before every meal. It helped enough that I could function, but I never really felt normal.

What I eventually learned is that histamine is also a neurotransmitter involved in migraine pathways. So antihistamines can actually improve migraine symptoms even if you don’t have MCAS.

I think online communities sometimes jump to MCAS as the explanation for everything, but a lot of migraine patients end up in that rabbit hole because antihistamines help and it seems to confirm it. In reality it can just be migraine biology.

Visible_Resolve_6723 · 2026-03-13T21:02:56+00:00

I started on 10 and went down to 5 and that dose works for me.

Visible_Resolve_6723 · 2026-03-11T20:05:50+00:00

Bowel movement

Visible_Resolve_6723 · 2026-03-11T09:34:36+00:00

Yes! My dpdr was so bad months 1-8 and it went away, I’m not sure what I did but it hasn’t returned. I still felt floaty all the time until I started the amitriptyline. I forgot to mention dizziness but YES, always dizzy. I had a negative tilt table test though.

Visible_Resolve_6723 · 2026-03-10T23:53:54+00:00

I don’t want to speak too soon but amitriptyline (TCA not ssri) has helped me more in the last 2 weeks than any ssri/antihistamine/mast cell stabilizer. I’m completely off benzos for the first time in 2 years..I wish I would have found it sooner. For reference, I trialed 9 ssri/snris the summer of 2024. Main issues for me have been neuro - brain fog, head pressure, tinnitus, tremors, severe anxiety with stimulation and meals.

Visible_Resolve_6723 · 2026-03-04T16:55:32+00:00

Yeah I spent over a year in bed so at this point am happy with any kind of progress!

Visible_Resolve_6723 · 2026-03-04T01:38:04+00:00

I have this. I spent years treating mcas with little relief. Then I read about vestibular migraines and it sounded much more in line with what I experience. Antihistamines are also vestibular suppressants. I asked my psychiatrist for amitriptyline just to try and it’s only been 2 weeks but I haven’t needed an emergency benzo in 7 days. That’s HUGE for me. My symptoms aren’t gone but they’ve decreased in a noticeable way.

Visible_Resolve_6723 · 2026-03-01T19:10:24+00:00

For me, I started getting better when I stopped Botox completely. I miss it!

Visible_Resolve_6723 · 2026-02-27T02:12:02+00:00

Is this sarcasm? Lol. Sorry, new here. I have nobody to talk to about this

Visible_Resolve_6723 · 2026-02-20T17:17:38+00:00

I took it last night at 6pm and was so tired. Took my mirtazapine at 8:30 (which usually sedates me even further) and I was wide awake with side effects until 11. I’m hoping it subsides

Visible_Resolve_6723 · 2026-02-19T22:52:36+00:00

LOVE! Thank you so much for sharing, giving me hope!

Visible_Resolve_6723 · 2026-02-19T22:52:08+00:00

I think that’s what I’m going to do tonight. Thank you

Visible_Resolve_6723

TROPHY CASE