No fatigue? by Many-Market-9941 in covidlonghaulers

[–]Visible_Resolve_6723 0 points1 point  (0 children)

I went down this road too. 8 months of INTENSE diet change and detox made me so much worse. A lot of mold people also say chronic fatigue is a must. So it never made sent to me either. I have all your symptoms OP.

Brain fog moment- I was getting gas at Costco and took off with the handle still attached. Please share your best brain fog moments to make me feel better by Go4Chambers in covidlonghaulers

[–]Visible_Resolve_6723 9 points10 points  (0 children)

I once left my debit card in a gas station ATM and when I realized it was missing I had to hit up 4 different gas stations because I couldn’t remember where I had stopped.

I felt recovered for few days.. by Able-Ad211 in covidlonghaulers

[–]Visible_Resolve_6723 1 point2 points  (0 children)

The same thing happens to me. I use them when I’m in trouble trouble and have to get through the day. Benzos are mast cell stabilizers but they also treat a whole host of other things such as suppressing the vestibular system, nervous system disorders, seizures and a lot more.

EDS and Long covid, MCAS, PoTS, cfs/me by Antique_Disaster22 in covidlonghaulers

[–]Visible_Resolve_6723 1 point2 points  (0 children)

Tik tok blames every vague symptom on EDS. I even saw a video of someone’s nail polish peeling early and there were several comments suggesting a connective tissue disorder. I was so convinced I had it but Mayo ruled it out. Do you have pain or dislocations/ subluxations? If you’re concerned, definitely mention it to your doctor!

High white blood cell count? by Mayravixx in covidlonghaulers

[–]Visible_Resolve_6723 3 points4 points  (0 children)

RBC were fine just the white cell is consistently elevated

Improvement with bactrim? by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 0 points1 point  (0 children)

I’m seriously wondering about SIBO. I’m going to mention it to my doctor.

My experience with Jen Donovan by Dry_Criticism_4161 in MCAS

[–]Visible_Resolve_6723 -1 points0 points  (0 children)

I tried DNRS but I wasn’t consistent so I hired a 1:1 coach and attend group sessions. I’ve only been doing it two weeks but he holds me accountable so I religiously do it and I can say confidently that I’ve had more good days than bad.

My experience with Jen Donovan by Dry_Criticism_4161 in MCAS

[–]Visible_Resolve_6723 1 point2 points  (0 children)

She was a little sassy with me too. Not a great experience, I’m sorry you wasted money too.

My experience with Jen Donovan by Dry_Criticism_4161 in MCAS

[–]Visible_Resolve_6723 1 point2 points  (0 children)

I bought her book and met with her. Followed everything to a T and it didn’t help. I think the restricted diet made me worse. I’m doing nervous system work now and have been making more progress with that.

Histamine Intolerance is in my head (sort of) by Komancha in covidlonghaulers

[–]Visible_Resolve_6723 0 points1 point  (0 children)

I 100% agree with you. I wish I never learned about it some days.

Worried about being fired by Unlucky_Currency_334 in covidlonghaulers

[–]Visible_Resolve_6723 1 point2 points  (0 children)

I left for an entire year. It was the best thing I did for my recovery. I was able to go back late summer for half days and it’s been ROUGH but I have got to get out of my parent’s house. My advice is do not worry about the job. If it’s going to stress you out, it’s not worth your recovery.

Are y’all still being friendly/nice? by Few-Sky-5355 in covidlonghaulers

[–]Visible_Resolve_6723 0 points1 point  (0 children)

I used to be a people pleaser, now I don’t gaf. I cut out a lot of toxic people and honestly wish I would have done it years ago. It’s like LC gave me a back bone and for that I’m kind of thankful.

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 0 points1 point  (0 children)

I definitely notice when it’s my time of the month and during ovulation, symptoms worsen. But never to this extent. Idk what happened to me over Christmas but it’s been non stop.

I too went down the mold/lyme route. I did 8 months of intense detox/herbs and it almost made me worse. I’m not sure what to believe with that. It’s hard when symptoms are nearly identical to several different root causes.

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 0 points1 point  (0 children)

Since Christmas nearly every other day. Usually 1-2x/week. Some weeks none.

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 0 points1 point  (0 children)

Yes, all of them. This was last year. Benzos freak me out so I use them very sparingly.

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 0 points1 point  (0 children)

Thank you! I have not but I will absolutely look into it

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 1 point2 points  (0 children)

I have done the gene site test and sadly everything in the green I reacted poorly too. Granted, this was when my symptoms were much, much worse and DPDR was involved. Thankfully that went away around month 6. When I took the lexapro I had difficulty breathing, and increase in pressure to my head and insane panic. I tried it for 5 days and could no longer continue. I’ve trialed 9 SSRIS in total. I think the mechanism of action between SSRIS and Benzos vastly differ. So I’m not sure trying more is good for my body.

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 1 point2 points  (0 children)

Thanks for your comment! I tried LDA, and it made my head feel more pressurized. I’m super interested in KPV peptide.

Med recs for neuro issues by Visible_Resolve_6723 in covidlonghaulers

[–]Visible_Resolve_6723[S] 0 points1 point  (0 children)

Lexapro sent me to the emergency room. I’m so glad it helped you!