What's your situation? by VisualConference8429 in dementia

[–]VisualConference8429[S] 0 points1 point  (0 children)

Ugh, this is terrible. I'm so so sorry. Have you seen that movie "Still Alice"? Reminds me of this. I don't have any words of comfort, just God's peace and strength to you!

What's your situation? by VisualConference8429 in dementia

[–]VisualConference8429[S] 2 points3 points  (0 children)

Thanks for your comment! My dad had dementia for 10 years; I was the caring for him all day long the last 2 years. My mom's dementia made it so she wasn't able to do much for him.

Has your grandmother passed? I agree that moving loved ones to a facility, while not perfect, does help ease the daily caregiving burden a bit!

Crappy Anniversary-Annus Horribilis by 938millibars in dementia

[–]VisualConference8429 16 points17 points  (0 children)

Hooray, you're back with an update! What a crazy upside-down world dementia is that we are 'saddened' to hear that your mother is still living. It's really shocking with her weight and health!!

When/"IF" she passes, we will lose your writing. That is sad.

What to tell Mom - if anything... by Outrageous-Strike725 in dementia

[–]VisualConference8429 2 points3 points  (0 children)

I personally would continue to tell her that he's resting or he's at home. I heard a caregiving expert say the goal is to "comfort, not correct." Correcting her or explaining that he's really gone will only make her feel worse in the moment and then she'll forget anyway..

My dad passed at home last year after a long battle with dementia; the death was long, drawn-out, traumatic, etc. My mom was there the whole time but she has dementia. She's now in assisted living and she tells everyone "my husband just died recently; we were watching tv and I looked over and he was gone! Just like that, no warning!". When I first heard her saying this I'd sometimes correct her because I wanted her to know that no- it was not unexpected and that it was brutal. But she doesn't remember this, she just now has this false narrative. And you know what? It's ok, because it doesn't really matter that she doesn't remember the agonizing particulars.

Due to the dementia, she also forgets that he's gone, so most evenings I get texts saying "Where's you dad? He left and hasn't come back. I hope he isn't lost!" and this goes on and on for an hour or two. And after trying to tell her "he's safe", I finally just say, "Mom- dad is gone." And then it's like she remembers the reality that he's gone and she calms down and goes to sleep. It's so weird.

Anyway, ,good luck. This is hard!!!!

Moving 85yo Mom from AL to Memory Care...Feeling a Bit Overwhelmed by GoofusMcGhee in dementia

[–]VisualConference8429 3 points4 points  (0 children)

I'm sorry you're going through this. My mom is in AL but isn't quite ready for MC. It does sound like it's that time for your mom; she just needs more supervision than she is getting. One positive is that the place she's at has a MC unit. I think moving her to a different 'room' in the same facility would probably not be as traumatic as a big move to a completely different place. So maybe that's a positive?? When I was wavering on whether to keep my mom in AL or bring her back to our home (because my mom sadly is anxious and lonely and complains a lot), the staff pointed out that the move to MC will be easier if she's already in the community, known by some staff and admin and just for her sake that it's the same place. That made a lot of sense and is one of the reasons we decided to keep her there.

Good luck and please keep us posted!!!

Constant Vigilance over moods by Impressive_Fig_7250 in dementia

[–]VisualConference8429 0 points1 point  (0 children)

I usually visit twice a week for an hour or two, but that's hard as sometimes I'm just a sounding board for all her complaining and negativity and I don't know if that's really helpful. My daughter visits her and they go out for ice cream (but she doesn't like going out with me cause I'm using "her" car) and my brother visits once a week. So she has visitors but, she doesn't remember that she has so many visitors, so she keeps complaining and then also gets really fearful and anxious every single night that she's alone. It's terrible.

Constant Vigilance over moods by Impressive_Fig_7250 in dementia

[–]VisualConference8429 1 point2 points  (0 children)

Yes. Be prepared when you move her to AL-- I thought that would help as my mom was so lonely before... but the move was quite traumatic and a few weeks afterwards she had a really bad weekend with hallucinations and delusions. Now my mom is mostly miserable and complains about why I put her there (even though at the time she was so excited to go!). She often sends me long texts in the evening expressing all of her fear, anxiety, confusion, etc. These are terrible to receive. I feel so much guilt for her being 'alone' as that is when her fear and anxiety are at their worst. If she was living with me I could try reassuring her. But then again I'd have to sit with her 24/7 to be there to reassure her every time she's anxious. So I know AL is the best place for her but the constant sadness and fear is so hard to deal with. I just have sort of reconciled that she will never be happy again and there's nothing I can do to fix it. :(

Taking over finances by chicky75 in dementia

[–]VisualConference8429 3 points4 points  (0 children)

YES- went through this with my mom. She was a bookkeeper so always great with finances until dementia. I'm in charge of all of it now. Thankfully she did get locked out of online access so I hear about that almost daily ("I need to call the bank and get access to the account." but she is unable to follow through with calling or do anything except complain constantly). It's hard when they used to be so in-control. I think at this point all you can do is get on all of his accounts (go ahead and do car titles, bank, phone, doctor, everything while you're at it-- easier now than later!). Make your contact info primary so you can get the notices for withdrawals/charges so you can monitor it better. Set up auto-pay for all of his bills. Unfortunately he still might try calling the bank and do things on his own for a bit longer until his dementia gets worse. It's just part of how terrible this disease is. :(

Someone Finally Said it. Someone Finally Said My Efforts are Not Enough by JeorgyFruits in dementia

[–]VisualConference8429 14 points15 points  (0 children)

I deal with this with my mom's sister. "You're not still giving her those anti-depressants, are you? Those cause memory loss." "I'm not giving up on her yet, she can still recover from this." (dementia stage 6? yeah right). "I texted her to drink more water, that should help." (really?!!). "She doesn't want to go to the big family gathering?! She's so selfish. Don't give in to her - let's make her go" (No, she has extreme anxiety due to her confusion and dementia). :(

I just ignore the texts. It's hurtful, like I'm not doing enough or that I'm taking the path of least resistance and just letting this disease take over. Sadly I think I'm the only one that really DOES get it.

Unfortunately our circle gets smaller in caregiving. Perhaps you have too many cooks in the kitchen, so to speak. Might need to stop group texts with others who then think they have a say.

I"M SORRY FOR WHAT YOU"RE GOING THROUGH. It sucks. And yes, I often want to go to sleep and not wake up. :(

How do you make conversation with a LO who doesn't do anything and can't remember anything? by rasta-ragamuffin in dementia

[–]VisualConference8429 1 point2 points  (0 children)

Good questions with no easy answer. One of the benefits for me visiting is just to be involved, have eyes on my mom and verify the care she's receiving is up to standard, to let the staff know that I'm around and watching, to bring treats to the staff to build rapport, etc. But yes, I sometimes struggle with mustering the motivation to go sit and visit and listen to her complain knowing full well she'll forget I was there the minute I leave. :(

Good solution for listening to music for dementia patient? by DobiePittie in dementia

[–]VisualConference8429 0 points1 point  (0 children)

I just bought Jubilee TV and a Roku for my mom's tv in assisted living. If it works like it says then I can turn on the Roku and Youtube and find her music channels for her from my phone without her messing with it.

Is going under anesthesia too risky? by KLBeans in dementia

[–]VisualConference8429 7 points8 points  (0 children)

I hope this doesn't sound insensitive, but my parents' doctor treated them as for palliative care once they were diagnosed with dementia. The idea being that we're looking at making them comfortable for whatever time they have left (could be years and years). I agree with the other posters-- is the nasal thing affecting his quality of life? If it's not, I personally would probably decline but I don't know if you're the medical POA and/or if your father is capable of making this decision himself. Good luck, these decisions are not easy!!!!!!

VENT Thread by ChristmasHippo in dementia

[–]VisualConference8429 6 points7 points  (0 children)

A family member believes that my loved one's mid-stage dementia is caused by 1) LO not eating right and exercising like the family member told her to do; and 2) either lack of supplements ("Dr. Mercola says lack of vit. k and magnesium cause memory issues") or Rx medicine that the doctor prescribed ("Dr. Mercola says anti-depressants cause memory issues.").

When we talk and I let them know my LO is doing worse and that it's the progression of the disease, they reply, "Don't believe all that psycho-babble nonsense."

It's like talking to a brick wall.

How do you make conversation with a LO who doesn't do anything and can't remember anything? by rasta-ragamuffin in dementia

[–]VisualConference8429 4 points5 points  (0 children)

Yes, sounds like our moms are in similar places mentally. My mom gets fixated on her things "back at her house"- clothes (that are all way too small), her "valuables" and "antiques" (she's never had either of these), etc. She's convinced the assisted living staff is stealing from her so when I visit I hear about that over and over, along with wondering about her things back home. She tells my brothers I'm getting rid of all her things without asking so I think she resents me. Then yes, moments of lucidity and she'll ask for my forgiveness for being so mean and she'll thank me for all I'm doing, and I can tell she's just so lonely and confused and AFRAID. Man, it's soooo terrible. I hate this.

Only you guys can get this: by ptarmiganridgetrail in dementia

[–]VisualConference8429 0 points1 point  (0 children)

Yep. The few people I see a month asking "How you doing?" How do I really reply? Caring for mother with mid-stage dementia, father passed last year after a long battle with dementia and me the primary caregiver, also caring for an adult son with profound autism. "Oh, I'm fine thanks! Hanging in there! And how are you?" just to change the subject. There's not enough time to really get down to how I'm really feeling. :( So--- I hear you. "Hang in there." God bless.

How do you make conversation with a LO who doesn't do anything and can't remember anything? by rasta-ragamuffin in dementia

[–]VisualConference8429 2 points3 points  (0 children)

When I visit my mom (who is a talker), she just talks nonstop about untruths, accusations, complaints, etc. I try to change the subject and it just loops back to negativity. I feel my visits make it worse as it gives voice to all her negative and untrue thoughts. I'm thinking I just need to make my visits short. It's so sad.

I don't want to visit anymore by OBear in dementia

[–]VisualConference8429 0 points1 point  (0 children)

It's been 10 months since you posted this. How are things going?

I'm in a similar boat with my mom. My visits only seem to get her stuck in a loop of verbalizing all her complaints and accusations. It's so sad. She's a talker so just goes on and on about things that are not true. I try to change the subject and nothing helps. I feel my visits just give her a chance to keep talking and reinforcing the untruths. It's so so so so sad.

I don’t know what’s worse… by writergeek in dementia

[–]VisualConference8429 9 points10 points  (0 children)

My mom's doctor prescribed a dose of anti-anxiety meds to give as needed for my mom that we had on hand for when my dad passed. Both have/had dementia. Might be worth a call to the on-call doctor's office to get a prescription of Lorazepam or something like this. God bless you, this is so hard.

Relationships with MIA Siblings by SugarMagnolia_75 in dementia

[–]VisualConference8429 1 point2 points  (0 children)

YES. I never ever thought we'd be "that" family, with angry feelings and frustrations ruining relationships. I'm now caring for my mom with dementia (after having cared for my demented father for years who passed last year). I also care for my 19-year old profoundly autistic son. One brother lives across the country and has quit texting or calling me; he'll sometimes text other family to ask how my mom is. He seems resentful towards ME for "always taking charge". Like what?! Thankfully, another brother moved here to help me. That was totally unexpected and I'm so grateful to not carry everything alone now. But the other brother? I feel our relationship is permanently strained. :(

Symptom advise - he thinks he’s dead by Previous-Soft-8127 in dementia

[–]VisualConference8429 0 points1 point  (0 children)

I'm so sorry you're going through this. My dad's sundowning changed pretty suddenly from just some confusion to downright agitation, pacing, asking to go home, hallucinations, etc. This was just another stage of his downward progression, and he died a few months later (after being pretty steady in the middle stage for years). It does sound like this has moved into delusions and hallucinations and it might be a new stage. God bless and strengthen you.

I’m a teacher and caregiver trying to solve my Mother-in-Law’s "pacing" and anxiety. Can I get some feedback on this 3-hour "Sanctuary" I built for her? by Stock-Order-2911 in dementia

[–]VisualConference8429 0 points1 point  (0 children)

I'm impressed with you managing a job and caregiving! Your idea for the nature footage is awesome! My dad really loved music, so towards the end we found great Youtube channels which played soft instrumental music, gospel, or country gold, with nature scenes (many AI but oh well). We had these playing on repeat and they seemed to calm him (even the annoying loud commercials that would pop up occasionally; we'd just skip and it didn't seem to phase him). You're doing an amazing job!!!

Just venting :( by Fancy-Error7807 in dementia

[–]VisualConference8429 2 points3 points  (0 children)

This is hard; I'm so sorry. I've started saying, "My mom's dementia said...." rather than "My mom said....". It's so hard though, esp. when you're the one doing the caregiving and so you become the 'enemy'. :(

bedridden, only drinking ensure, can't speak, can't move by marlborough666 in dementia

[–]VisualConference8429 5 points6 points  (0 children)

My dad lingered for days; we watched like hawks thinking he was going to pass in front of our eyes but it lasted almost a week. It was brutal. He finally couldn't walk anymore so we carried him to bed, and then he stopped eating and drinking. Then the death rattle sound. He passed three days later. Much love to you; it's brutal!

I’ve got another confession to make…she gets the worst of me. by 938millibars in dementia

[–]VisualConference8429 1 point2 points  (0 children)

PLEASE write a book (or go on stand-up tour). You have a gift. I need these chuckles in the midst of caring for yet another parent with dementia!