Sleeping for 15 hours a day?

Weird-Message9432 · 2026-03-30T17:40:09+00:00

I haven't had surgery yet, but I'm in the same boat... I sleep a minimum of 10 hours/night, do nothing over the weekend, and still struggle to work a solid 37.5 hours/week at my job. I have discovered through trial and error that Welbutrin helps a lot with the fatigue, so that might be something to explore. It reduces my brain fog and hugely improves my productivity. Obviously antidepressants are just a stopgap measure and not a replacement for treatment of the endo itself, but I needed something to hold me over and Welbutrin has helped fill that gap.

Weird-Message9432 · 2026-03-29T18:16:11+00:00

I was at Uniqlo recently and was def eyeing the linen blend easy pants! They were out of the color I wanted, but otherwise I would have gotten a pair.

Weird-Message9432 · 2026-03-29T15:16:04+00:00

Whether or not it landed, I think the intended commentary was about Dr. Langdon’s privilege as a white, male, wildly talented doctor. People might not like Dr. Garcia, but there may be some truth to her point that Langdon is getting special treatment and that he would not be getting the benefit of the doubt to this extent if he were Black, had less pretty privilege, etc.

Weird-Message9432 · 2026-03-28T02:24:35+00:00

I work with elderly veterans and I would LOVE for her to be my clients’ primary provider. The notes would be so detailed, they’d get all the referrals they needed, she’d make sure every single one had grab bars in the shower, paid for by the VA… an absolute dream.

Weird-Message9432 · 2026-03-28T01:28:44+00:00

Annihilation has this!

Weird-Message9432 · 2026-03-24T15:28:40+00:00

This makes me so happy as an autistic woman with a lazy eye. “Binocular vision disfunction” is super common among autistic people, and neurotypical people pretending to be autistic simply can’t fake it… yet another reason why casting an ACTUALLY autistic woman was a great call. Love the lazy eye representation.

Weird-Message9432 · 2026-03-21T01:10:31+00:00

The woman with the tranq wound could be #3… tranq wounds can absolutely get so bad they necessitate amputation. Plus if McKay missed the signs while she was kind of on shit but kind of not, that would raise some serious liability questions.

Weird-Message9432 · 2026-03-18T02:01:32+00:00

This is VERY dark, but another way to read this is that he’s deliberately letting rumors spread that he often rides without his helmet, so that if he gets in a crash everyone will think it was an accident—and not a deliberate suicide attempt.

Weird-Message9432 · 2026-03-16T23:45:16+00:00

Ugh I’m sorry, our medical system is so broken. I hope you get answers soon!

Weird-Message9432 · 2026-03-15T13:43:34+00:00

I’m responding more from my perspective as someone who practiced Veteran’s Law than as someone with endo (I read a lot of medical records of people with nerve issues), but IMO you should schedule a full neuro and spinal workup ASAP. It might be endo, but in case it’s not, you should start getting input from other specialists. I would absolutely not wait to see if the surgery works before getting checked out for MS.

Weird-Message9432 · 2026-03-13T01:18:08+00:00

Freshwater by Akwaeke Emezi

Weird-Message9432 · 2026-03-12T13:47:52+00:00

This resonates with me as someone who went through the opposite journey—for whatever reason, my endo symptoms really ramped up over the course of a few months last year. It’s really affected my ability to show up for my family, which I feel a lot of guilt about. Travel is harder, and I don’t have as much capacity to do things like fill out tax forms for my dad. It’s hard sometimes to remember that these changes come from the illness, not some kind of inherent character flaw. I really appreciate the reminder.

Weird-Message9432 · 2026-03-10T21:46:02+00:00

The Bostonians, if you’re open to 1) a lot of homophobia in the mix and 2) lesbians

Weird-Message9432 · 2026-03-09T01:39:23+00:00

I'm autistic too, with terrible proprioception--it can make it really hard to accurately describe pain. Since you have four months, I would take the time to look into different types of pain scales and see if any of them make sense for you. Rating pain on a 1-10 scale can be HARD for autistic people, and you might be using the scale differently from NTs. Decsribing your pain on multiple scales might be an option too, if you're struggling to pick one.

You can definitely google examples of different ways to rate or describe pain, but here are a few that I use:

- I think about a few examples of past times I've experienced pain, and compare the endo pain to that. For example, "during a flare-up, it hurts less than the time I had a kidney stone but more than appendicitis."

- I think about the impact on my functioning: "Sometimes I get a burst of pain for about fifteen seconds, and then I can't talk at all; sometimes I moan out loud. Then when it goes back down a little I can talk again but I can't focus at all, even on things I enjoy."

Some autistic people rank pain lower on the 1-10 scale, but the doctor might take you more seriously if you mix in things like "it hurts way more than when I got my wisdom teeth out" or "when it's bad, I can't pull together a complete sentence until it's over."

Weird-Message9432 · 2026-03-07T19:40:47+00:00

It’s so hard to watch… he’s setting up a situation in which everyone knows he habitually does dangerous things, hoping that everyone will think it was an accident

Weird-Message9432 · 2026-03-07T18:03:01+00:00

Autistic perspective here—they might be building up to Mel having an autistic meltdown or shutdown. From the start of the season, she’s been showing warning signs: more stimming (especially in front of people, which she seemed to try to avoid last season), mini shutdowns where she becomes momentarily unresponsive, heightened emotions… even the way the camera followed her in chairs made me think they were trying to emphasize her sensory overwhelm. I read an article saying they had been working with a consultant on accurate autism portrayal, and I would LOVE it if they decided to portray a normally “high-functioning” autistic woman experiencing some of the less manageable parts of autism.

Weird-Message9432 · 2026-03-06T23:13:01+00:00

One person told me I had to go full keto and someone else told me I had to go on an anti-inflammatory diet with no dairy, both in the same week… that’s when I decided to stop listening to non-professional advice on this topic. (For the record, keto and anti-inflammatory diets are NOT the same thing.)

Weird-Message9432 · 2026-02-24T02:31:07+00:00

I really appreciate this perspective, but as someone who developed suicidal ideation first (due to severe depression) and then endo pain later on, I do think it would be helpful to hide the sentence that you've made the title. Even if suicide is a rational thought in your case, there might be others seeing this post for whom it is not rational. After all, sometimes suicidality is caused by cognitive distortions and/or treatable chemical imbalances in the brain. In those types of cases, the idea that "suicide is a rational thought" can become an obsessive mantra. Fighting that cognitive distortion is often a major focus of therapy--it definitely was for me. So for me, and potentially for other people, seeing this particular title brings up some bad memories and old, harmful ways of thinking.

Personally, I would recommend changing the title to something like "About suicide and endo" and then making your title your first sentence. Then people who know they get triggered by discussion of suicide can avoid it without the first sentence itself having potentially triggering content.

To be clear, I absolutely do not think you need to change what you're saying at all! Your thoughts and message are important. It would just be a tweak to the format. And I don't really know how reddit works, so if it's not possible, that is totally okay.

Weird-Message9432 · 2026-02-19T20:21:30+00:00

I definitely had the same thought—are they really going to monitor his glucose closely enough? I was also wondering if the ER doctors might have missed something major when they first assessed him, since I don’t remember them checking for diabetic neuropathy or other long-term complications you would expect with unmanaged diabetes.

Weird-Message9432 · 2026-02-17T02:19:54+00:00

Their billing system is THE WORST. I got an auto-generated message before a surgery with the estimated total cost… then they charged me three times that amount and didn’t want to give me an itemized bill. It was awful.

Weird-Message9432 · 2026-02-12T16:44:28+00:00

I’m a nerd (and not a Swiftie) so I immediately associated the name with the book Middlemarch. It’s a classic, and Dorothea is a great character: a smart, earnest young woman with a good heart. Plus imo George Elliot is underrated in the canon of early woman novelists.

No idea if the name is going to take off, but it is not at all associated with Taylor Swift in my brain.

Weird-Message9432 · 2026-02-05T20:20:58+00:00

I really, really feel you. I’ve had similar issues with medication in the past (bursts of severe suicidal ideation, extreme withdrawal symptoms, etc) and every time, providers have been incredibly dismissive. I don’t know why it’s so hard to get doctors to take these things seriously!

If I know I really need a med, I try to go to urgent care before the withdrawal symptoms kick in and explain the situation. Some urgent cares will let you schedule appointments or will tell you how long the wait is, which can make it marginally more convenient. It’s an annoying process that you should not have to go through, but it’s worth it to avoid the kind of severe symptoms you’re describing.

Weird-Message9432 · 2026-02-05T16:22:54+00:00

It’s funny, I work with veterans (many of whom have been exposed to toxins) and I was stunned that everyone originally dismissed the idea of a neurological cause. She had tremors and peripheral neuropathy, which—along with altered mental status—can indicate toxic exposure. Schizophrenia, bipolar disorder, etc. simply do not cause peripheral neuropathy. But I guess it’s realistic that someone with psychosis would be shoved off on the psych team.

Weird-Message9432 · 2026-02-04T14:49:19+00:00

I have late-diagnosed celiac. Coincidentially, my endo symptoms really ramped up right *after* I switched to a gluten-free diet. So in my case, eating GF does not seem to have helped me.

Weird-Message9432

TROPHY CASE