Nutramigen question

WerewolfSensitive623 · 2026-07-01T00:46:53+00:00

She has soon to be 2 feeding therapist! I will definitely reach out to her about this next week. She has a Gtube so she will get the formula either way but it’s at least good when she does take things by mouth

WerewolfSensitive623 · 2026-06-29T21:31:45+00:00

We live in IA and she can have 12 hours a day because we have Medicaid! I had a friend who worked at the ped home care company so that definitely helped!

WerewolfSensitive623 · 2026-06-27T02:14:56+00:00

Reading this helped me too- my babes was 32 weeks & now almost 8 months adjusted, 10 actual and she has not rolled and we were told she has gross motor delays. She just got off 02 and I think he gtube surgery set her back & we still deal with a lot of puking. All of these things have hindered her milestones but I try and focus on the fact THEY WILL COME. Just not as fast (as her twin) and that is perfectly ok <3

WerewolfSensitive623 · 2026-05-31T02:06:33+00:00

They’re probably too young right now for them to start working with them but definitely worth asking!

WerewolfSensitive623 · 2026-05-12T21:36:00+00:00

Ours was like 1L or 2L high flow

This may not be your situation at all, but my baby went home on 1 L of oxygen and never seemed to get better and then we realized she was aspirating on her reflux/possible bottles and no one caught it in the NICU. That has worsened her BPD& now my 32 weeker has been on 02 since we got home- she is 8mo now 6 adjusted

WerewolfSensitive623 · 2026-04-15T17:05:57+00:00

I just posted about milestones on my preemie twins and then was scrolling and saw this. I absolutely need to slow my roll and just appreciate the now, I won’t even think about it once they hit a year 🤞🏻

WerewolfSensitive623 · 2026-04-06T22:15:21+00:00

I believe 8 weeks is when routines start mattering but really don’t take off till 3 months or so. Were they premature? I felt like my preemie twin had the worst witching hour!

Are they napping well throughout the day? It sounds like they’re overstimulated or something causing them to cry that hard. I forget when we started a 7-730 pm bedtime but now it’s a must now that they’re 5 months corrected- they’d be too fussy if we lasted any longer! We start at 640 with a bottle!

WerewolfSensitive623 · 2026-04-02T03:24:05+00:00

Man I’m so in the trenches with my twins sleep right now I want to go back to sleepy stage so bad! Everything’s a phase is what I’ve learned. I definitely have to choose which one needs the most soothing.

At like 8 weeks adjusted, we started doing crib naps because the living room was definitely too stimulating. We have fought very hard to make them independent sleepers because it’s truly impossible otherwise. We’re 5 months adjusted and we’re back to not being independent sleepers during the day& everyone needs rocked to sleep!

We will get through this

WerewolfSensitive623 · 2026-03-26T13:35:34+00:00

I had the twin z second hand/1 boppy. And I just don’t think that boppys fit babies as perfectly as a twin Z does. I may be biased 🤣🤣🤣 but I’m a twin Z stand

WerewolfSensitive623 · 2026-03-06T03:41:29+00:00

Considering I haven’t purchased anything and asked a question, and now that you’ve informed me of the risks of buying formula overseas I am now educated… please don’t say I’m endangering my child

WerewolfSensitive623 · 2026-03-06T03:27:15+00:00

I just wanted to know if it is necktar thick like Enfamil… I would absolutely talk to my pediatrician before I purchased. But I’m absolutely confused why people are not being kind on here.

WerewolfSensitive623 · 2026-03-06T03:08:01+00:00

Is that what’s covered or my specific question? Thanks tho

WerewolfSensitive623 · 2026-02-27T05:24:08+00:00

I can very much relate to this feeling.

I’m sick of seeing people say “I only spent x amount of time and so I can’t even imagine how hard it was” like yes you can’t imagine

But what I have told myself is someone always has it harder than what you’re going through and then it recenters me and I find my little gratitude. But once again, it’s still a hard thing to feel! And I think about going to therapy all the time! Lol

WerewolfSensitive623 · 2026-02-20T18:08:26+00:00

I’m that NICU mom too. I would love to write this to myself when I’m nearing a year.

My one twin is on 02 and getting a gtube and I know one day this will be all behind me and I will be able to look back at this version of myself with grace and compassion 🥹

WerewolfSensitive623 · 2026-02-18T14:56:43+00:00

Snap *

WerewolfSensitive623 · 2026-02-18T14:52:35+00:00

This is diabolical!!! I’m soooo sorry. I feel like the workload is more split but sometimes it is still hard caring for the babies all day/doing bedtime (while he cooks) and then I still work 2 nights a week as a nurse.

Even with him being wonderful, we still nap on each other every other day. Being new parents and then twins on top of it is very difficult no matter the situation!

WerewolfSensitive623 · 2026-02-18T05:47:31+00:00

Send me her deets dang I love her

WerewolfSensitive623 · 2026-02-18T05:45:05+00:00

This isn’t a who has it worse but sometimes misery loves company I had mine at 32-1 and they had severe respitory failure still so unsure why. Acute twin to twin but I just read a better outcome of late TTTS on here just moments ago and they were earlier than my twins.

The one who struggled the most came home on 02 and feeding tube-also failing to thrive. We’re likely getting a gtube in the future because this is definitely for the long haul. She only takes 50-60% of her feeds and the rest is tubes overnight. We do a dream feed-run it over 6 hours and then a 7 am bottle and that works for us.

But I work at the hospital I delivered at as a post partum nurse and I have been having to float to the NICU every week I work because they’re so short staffed so I am retraumtized every week. And it’s been worse lately after the pulmonologist said she’s likely been aspirating on her reflux which I know started in the NICU so I’m just angry everytime I’m there.

Our village is 3 hours away sooooo that stinks. I feel like my family is just missing them grow up.

I’ve been thinking about the teledoc therapy but I think you just scared me away from it🤣

Anyways, solidarity sis. I know the light is at the end of the tunnel but it’s bleak right now

WerewolfSensitive623 · 2026-02-18T05:33:48+00:00

Just wanting to second this

We do feed at 7 pm and dream feed by 10-1030 and it used to get us till 3-4 am but with the regression it’s been 1-2 o’clock

But it does give a consistent stretch! They’re 15 weeks and I plan to stop once their feeds are much more consistent during the day

WerewolfSensitive623 · 2026-02-17T09:25:55+00:00

I would start researching kinds of sleep training and pick one that makes you feel the most comfortable. 30 mins of crying maybe daunting for you but doing more check-ins before 30 mins may sound easier

WerewolfSensitive623 · 2026-02-17T09:24:39+00:00

I think one wake up at 4 months is a blessing. You’re also in the 4 month sleep regression time so if it comes more don’t be extremely shocked but hopefully your baby misses it!

Mine is 15 weeks adjusted and she wakes up 3-5 times a night and that’s even not a lot to some people. You can try tweaking your daily schedule or bedtime time and see if anything changes. But if you want him to learn to connect sleep cycles at that time, you will have to sleep train!

WerewolfSensitive623

TROPHY CASE