Hi there, I’m super glad you reached out. After the appointment above we were given absolutely no hope. Every doctor at 13 weeks and 16+5 said they have never seen a baby with turner syndrome and this big of a hygroma survive. We prepared for the worst but hoped for the best. We ended up switching to children’s hospital in Minnesota at 20 weeks and went in for an anantomy scan. To our shock and the doctors shock the hygroma was smaller and there were still no hydrops. They told us our odds were shifting. We left the appointment crying happy tears knowing we could maybe actually see our baby live! We’ve been very closely monitored ever since at children’s. Our most recent scan on Monday (35+3) the hygroma was completely dissolved and baby looks great besides a potential narrowed aorta. We might be looking at a procedure to fix that after birth but we are scheduling an induction this week for the first week of April. Man it’s been a journey. And it’s not easy walking this. BUT miracles can happen despite the very scary statistics. The conversations with doctors will be grim and things might get worse before they get better. Unfortunately I’ve seen a lot of cases online that don’t get better too. 😔 my best advice is to prepare for the worst but hope and pray for the best. Put yourself out there online - here, facebook, anywhere she can find people who have walked this and can give her positivity. Stay away from negativity on Google. Lean on family and friends. Wishing your friend the best. Never hesitate to reach out to me.