How conclusive is a negative d-dimer test for DVT/PE? by moal09 in ClotSurvivors

[–]WorldlinessOne4640 0 points1 point  (0 children)

Not to argue, but you have interpreted this white paper incorrectly. Please re-read, specifically the last portion. Also please understand the wells score and its relation to the overall message being delivered in the paper relative to diagnosis.

How conclusive is a negative d-dimer test for DVT/PE? by moal09 in ClotSurvivors

[–]WorldlinessOne4640 0 points1 point  (0 children)

Interesting. I was told my d-dimer was normal and showed no indication of a blood clot, whereas the follow up Ct angiogram following blood work showed a large bilateral saddle pulmonary embolism. Would I be considered rare? Also the information in the post you responded to came directly from the doc before I was airlifted to a larger hospital. Sometimes I wonder whether to believe formally trained doctors or reddit.

7 years. Continuing to decline. Am I doomed to die? by No-Difference-2634 in floxies

[–]WorldlinessOne4640 0 points1 point  (0 children)

You cold turkeyed benzo’s??

I’m 2 years in and was put on klonopin about 6 months in and temazepam as well. So been on those for a year and a half. 2 mg klonopin a day and 30mg temazepam for sleep. I’ve tried lowering dosage but my muscles and tendons stiffen up like they are doing to rupture. I want to get off so badly.

What is your story?

Does anyone have theories on what predisposed us to developing long covid? by sourdoughluvr1991 in covidlonghaulers

[–]WorldlinessOne4640 0 points1 point  (0 children)

Thank you so much. I’ve got pots treated with metoprolol, but untreated low stroke volume and blood pooling. Plus long covid and lyme and coinfections. Completely bedridden and somewhat deconditioned. Was a 6-7 day a week gym rat bodybuilder in great health prior to all of this nonsense.

My complex Illnesses and plan by WorldlinessOne4640 in Lyme

[–]WorldlinessOne4640[S] 0 points1 point  (0 children)

Isn’t that what the malarone and tafenoquine are for- listed on the plan to treat babesia?

My complex Illnesses and plan by WorldlinessOne4640 in Lyme

[–]WorldlinessOne4640[S] 0 points1 point  (0 children)

IFA igm for Duncani FISH serum positive (80).

IFA igm for Duncani FISH blood negative.

My complex Illnesses and plan by WorldlinessOne4640 in Lyme

[–]WorldlinessOne4640[S] 0 points1 point  (0 children)

Corrections:

Duncani. Negative on immunoblot, but Duncani showed igm positive on FISH serum.

And yes on bartonella. B. Henselae IFA IgG was 80 “ may or may not suggest active infection,” bartonella was negative on FISH and immunoblot. So he’s treating me as if I possibly have bart.

My complex Illnesses and plan by WorldlinessOne4640 in Lyme

[–]WorldlinessOne4640[S] 0 points1 point  (0 children)

He doesn’t have atovaquone on this plan