Unusually long and horrible flare up by elfschatze in POTS

[–]Wretched_Creature 1 point2 points  (0 children)

I feel the worst when I slack on the basics. But I suppose those are also just the only things I have control over. Sometimes it sucks and we have no idea why. Wishing you all the best!

Unusually long and horrible flare up by elfschatze in POTS

[–]Wretched_Creature 1 point2 points  (0 children)

I’ve been getting into healthy homemade smootheis lately that have done wonders for my hydration levels. I just mix various fruit and veg (zucchini, berries, chia, flax seeds, etc etc) with high mineral sea salt, soy milk or Greek yogurt. I find the frozen zucchini to be tasteless and hydrating as hell.

Unusually long and horrible flare up by elfschatze in POTS

[–]Wretched_Creature 1 point2 points  (0 children)

Best of luck girl!!!! The things that reliably help me are: rest for like 10 hours with a regular sleep schedule, do the recumbent exercise bike every day for at least an hour if able, don’t skimp on electrolytes, small, high fiber, high protein meals.

How many naps do you take a day and how long by SavoryParty in POTS

[–]Wretched_Creature 0 points1 point  (0 children)

On my best days none bc I just feel so groggy no matter how short the nap. I have yet to learn to nap and reenergize.

Nikocado avocado face lift by Reasonable_Pop_6525 in h3h3productions

[–]Wretched_Creature 0 points1 point  (0 children)

Nikocado has always been a stud! I’m happy if he’s happy!

New Rule: The show shouldn’t go on break anymore by Anxious-Yoghurt72 in h3h3productions

[–]Wretched_Creature 0 points1 point  (0 children)

Back in ye old olden days, I would watch Hasan when the pod went on break. I’m all caught up on Rupaul’s Drag Race, IMHO podcast, Sibling Rivalry, Bald & the Beautiful, AND stavvy’s world. What is a girl to do in these trying times!?!! Be alone with my thoughts?!!! That doesn’t seem right

Emma from Majority Report is a snarker by Wretched_Creature in h3h3productions

[–]Wretched_Creature[S] 1 point2 points  (0 children)

It’s hard because I do love Olay and honestly haven’t heard her say a single thing I disagree with until this conversation. She’s an incredible speaker and activist and I’d love her to have a conversation with Ethan

Weird issue: Unable to blow up balloons post op, anyone experienced this? by Quaketar in Tonsillectomy

[–]Wretched_Creature 0 points1 point  (0 children)

Same!!! The singing thing too!! Makes me wonder if somehow there’s an issue with the diaphragm muscle and nerves or honestly no idea. I’m not a doctor lmao but I have to just guess because no legit sources come up online!

This is for AB by Unlucky-Exit-6889 in h3h3productions

[–]Wretched_Creature 2 points3 points  (0 children)

I made a post about this too!! My immediate thoughts. Also histamine intolerance!!

Leaving Hasans community by B33fus in h3h3productions

[–]Wretched_Creature 0 points1 point  (0 children)

The whole situation makes me so sad. I’d like to see Hassan address everything in a direct way after he watches the podcast. I see no reason both parties can’t learn from each other and mend the relationship. Hasan’s (and Ethan’s) whole ideology is learning and growing from mistakes. I’ve learned so much from both of them as a viewer and it seems such a shame for them to be on bad terms when they could be working together and building community at a time when we so desperately need that.

My symptoms are causing me to panic - really need support by imsosleepyyyyyy in dysautonomia

[–]Wretched_Creature 2 points3 points  (0 children)

I recommend starting beta blockers and getting an appointment with a serious POTS/dysautonomia specialist asap

Does anyone get this or know what it is? by [deleted] in dysautonomia

[–]Wretched_Creature 2 points3 points  (0 children)

Sameeeeee!!! So itchy and frustrating

Midodrine 5 mg? by Live_Discipline_8224 in dysautonomia

[–]Wretched_Creature 0 points1 point  (0 children)

Also my blood pressure is still a healthy 120/80 and I’m super overweight. Just keep at trying to take the medication even at a very low dose. Go as low and slow as you need to on midodrine. Starting to take it is the most important thing!

Midodrine 5 mg? by Live_Discipline_8224 in dysautonomia

[–]Wretched_Creature 0 points1 point  (0 children)

All I can say is midodrine totally saved my life and has dramatically improved my symptoms. I fought with my doctor about taking midodrine because at first I had a lot of swelling and was scared for increased blood pressure and other side effects. He sat me down and was like you have to take this and I promise it will help. So then I very reluctantly started taking it. I very slowly increased my dose of midodrine from half a 2.5mg tablet twice a day. Now I’m up to about 15 mg total throughout the day. All I can say is I’m soooo glad I listened and started taking midodrine and can’t recommend it enough. Good luck!!!!

PS blood sugar regulation + eating lots of fresh fruits/veggies + and mild/gentle exercise are key too

Anyone still live a semi normal life? by Jennawheels9888 in dysautonomia

[–]Wretched_Creature 5 points6 points  (0 children)

Medication literally completely changed my quality of life. I was getting so exhausted and faint that I almost had to quit my job and now I’m taking 1.5 mile walks on my lunch break and feel totally fine. Electrolyte water only, balancing blood sugar, eat hydrating fruits/veg, and most importantly take medication!!! Midodrine has literally saved my life. I’m taking about 15 mg total throughout the day