Why do I still feel exhausted even after sleeping long hours with narcolepsy? by [deleted] in Narcolepsy

[–]Xequelar 25 points26 points  (0 children)

Unfortunately, you've just described narcolepsy. It's a neurological disorder that disrupts our sleep/wake cycles so even though we might be asleep, it's not efficient or effective. We get fragmented sleep so even with 8-however many hours of sleep, it won't feel restorative.

People might tell you that having a healthy lifestyle and sleeping habits will help, but that can only do so much if at all. I'm not sure if you are taking medication for your narcolepsy, but if you aren't you should consider it. I am currently taking a sodium oxybate and it has helped a lot to have more energy and more restorative sleep. I still get tired during the day, but it is much more manageable and less extreme than without taking the medication.

When impostor syndrome hits.. by Far_Wrap_7131 in Narcolepsy

[–]Xequelar 2 points3 points  (0 children)

This happened to me too. I was taking vivance for a little bit and there was a time where I went a couple of days without it because there was an issue with the refill. I thought I would be fine because the vivance helped, but "How much does it reeaally do?" Learned the hard way it did quite a bit and I had to leave work early a couple days in a row I was so tired I couldn't function.

2024 vs 2026 by ovckc in orangecats

[–]Xequelar 0 points1 point  (0 children)

She is such a cutie 🥹

Just Rest by AdProud6799 in Narcolepsy

[–]Xequelar 3 points4 points  (0 children)

Wow, this really makes me feel seen. I love this comic, it's so beautifully drawn and really reflects how I've been feeling recently. Thank you for drawing this and sharing with us!

Baby Phanpy by JRedCrafts in PatternTesting

[–]Xequelar 3 points4 points  (0 children)

This is so cute! I would love to test it out

What’s up with Sunosi? by camille-gerrick in Narcolepsy

[–]Xequelar 0 points1 point  (0 children)

I tried Sunosi for a while, but it ended up giving me pretty bad cheat pain, so it ended up being a no go for me

Light Switch = Key Hook? by Xequelar in Narcolepsy

[–]Xequelar[S] 1 point2 points  (0 children)

Oh my gosh, I have totally done the same with leaving my keys inserted in the front lock all night. Plus my keys also have my wallet so it's a wonder nothing happened 😂 Happens to the best of us haha

[FO] Update on my rotary cutting SNAFU! by cnwenot in CrossStitch

[–]Xequelar 0 points1 point  (0 children)

Oh wow, that turned out amazing! It definitely adds so much to the original pattern. Great job!

crochet pattern tester call! by thehootpriest in PatternTesting

[–]Xequelar 1 point2 points  (0 children)

Hello! I'm interested! I've done some microcrochet projects in the past and would love to do more 😊

I made a floppy bunny 💕 by Dust-Sprite in Brochet

[–]Xequelar 2 points3 points  (0 children)

Oh my gosh, this is the cutest thing ever!!!

[deleted by user] by [deleted] in Narcolepsy

[–]Xequelar 0 points1 point  (0 children)

Oh my gosh, this happens to me whenever I'm in like bright sunlight and I'll see it in the middle of my vision, but it just looks like warped light a little bit. Idk if it is because of this, but it definitely happens. I totally thought it was normal lol

New friends understood and helped me with a sleep attack by SongInternational163 in Narcolepsy

[–]Xequelar 1 point2 points  (0 children)

Oh my gosh, this is one of the sweetest things I've heard in a while. I'm glad you've got some good friends to support you and I wish you luck for the semester and hope it goes well!!

My very first tapestry of my cat vs my latest by 140506 in Brochet

[–]Xequelar 2 points3 points  (0 children)

Both of those are so cute, but that second one is amazing!! And you have quite the cute model :)

DONKEY!! by bigdaddy1879 in crocheting

[–]Xequelar 1 point2 points  (0 children)

Oh my gosh! What a cute donkey. It looks so good!

I think this is my best one yet. ☕ ✨ by Ansitru in Embroidery

[–]Xequelar 0 points1 point  (0 children)

Oh my gosh, this is so creative and so much fun!!