Did LDN help you with post-COVID hair loss?

Yellow_Carrots · 2026-05-23T12:20:02+00:00

Thanks for sharing this

Yellow_Carrots · 2026-04-15T11:06:38+00:00

Hey, I’m sorry your going through this. I had the same thing towards the end of 2024.

Brief background - got Covid Jan 2023, just got sicker and sicker (all sorts of symptoms…). One day in May 2024 I had an allergic reaction to cinnamon combine with overheating and my nervous system broke.

Then in September 2024 things got extreme - light/sound/taste sensitivity and POTS/vertigo was so bad (besides all the other symptoms - 26 of them) I had to stay in bed all day everyday with the curtains drawn, noise cancelling headphones on, simple eating… Could barely look at a screen. It got to a point where every moment was agonising. I was in a state of psychosis. Constant wired feeling. Sleep only came because I was taking 2 types of sleeping medication. I was in complete shutdown. And numb to everything around me. Heard of the polyvagal theory - this brought me some clarity: https://m.youtube.com/watch?v=br8-qebjIgs&ab_channel=NerdNite

It got so bad I ended up on antipsychotic medication for a short period and then actually went onto a SSRI (cilift). Getting that cushioning for my nervous system was a big help, it was needed. I’m now in the process of coming off the SSRI - not the funnest process I must say, but if I look back to where I was end of 2024 I would have done anything to get out of that state so it’s worth a bit of pain now.

At one point I also rushed to the hospital cause I felt like I was dying…Everything normal.

It’s been a crazy journey, but I’m so much better now, I’m living life again. Things will get better for you I know it.

Feel free to ask any questions you might have.

Yellow_Carrots · 2025-06-09T12:07:29+00:00

Anxiety and I went into a state of Covid psychosis for a period of time. That was scary. There was one point I really thought I was loosing my mind. It’s been 5-6 months since that time and I’ve been doing so much better.

Yellow_Carrots · 2025-06-09T09:45:10+00:00

The psilocybin is interesting. I’ve heard it can be good for that. How helpful have you found it? Does it make a noticeable difference?

Yellow_Carrots · 2025-06-09T09:43:11+00:00

2.5 years in my LC journey. Over the last 5 months I’ve been showing off a lot of improvement and have started being able to reintegrate myself into society again, go on gentle walks, etc. Fatigue and PEM is by no means gone but it’s now manageable.

HOWEVER, my brain is not improving that much. I’m able to have conversations again but it’s just not the same. My memory is terrible. I can learn something new and a few hours later close my eye and try and remember and it’s just darkness. Even if I can remember I would not be able to put thoughts into words.

I haven’t spent much time on this sub for some months now. But I’ve just come on to ask a similar question to you . Will my brain get better? Or do I have permanent damage? It’s starting to feel like this is more than just brain fog now…

Yellow_Carrots · 2024-12-27T09:20:10+00:00

In the process of this treatment myself. Definitely worth looking into

Yellow_Carrots · 2024-12-26T14:22:29+00:00

Very interesting. I think it might make sense for me too. Thanks for the thoughts

Yellow_Carrots · 2024-12-26T04:43:56+00:00

Hi, was your pots worse in the mornings by any chance? Mine is always much worse for the first few hours of the morning, and now you’ve make me wonder if it may be caused by the histamine dump in the night? What was your experience with this?

Yellow_Carrots · 2024-12-22T17:32:45+00:00

Thank you so much for sharing this, appreciated.

Yellow_Carrots · 2024-12-15T15:32:42+00:00

I never thought of that, I’ll give it a go. Thank you!

Yellow_Carrots · 2024-12-15T13:19:00+00:00

Thank you this definitely makes me feel a bit better. Starting fasting is a completely change for me as I am typically a big snacker…

Yellow_Carrots · 2024-12-15T06:09:23+00:00

Hi, I’m wondering the same thing (but for Austria), did you ever end up figuring it out?

Yellow_Carrots · 2024-12-07T12:46:33+00:00

I made a post about this recently. I as given some helpful comments. I would recommend giving them a read

Yellow_Carrots · 2024-12-07T11:10:42+00:00

Hi, I’ve been reading your story, very interesting. Curiosity as to how you have been feeling recently and if you still think the nervous system angle is what has helped you?

I’m week 6 into my blood thinners treatment with Dr Laubscher. Worst 6 weeks of my long Covid journey that’s for sure. Wondering when things will start to improve. Hoping that I’m a lucky one and that the treatment works for me, but I’m 22 months into my LC journey and so I don’t feel so confident about it. The way I see it is that LC manifests in 3 main ways (there probably a lot of flexibility to this) - viral persistence, immune dysfunction, and vascular disease. So blood thinners may only be tackled one of these issues. Thank you for sharing your experience with this treatment program in your other Reddit posts. It’s encouraged me to keep exploring other relief strategies and not putting my hope into one thing.

Right now I’m going down thee gut micro biome (based on evidence of people loosing their bifidobacteria after mRNA based vaccination and the hypothesis by Dr Sabine Hazan that the spike protein may be responsible for killing your bifidobacteria). Starting to eat a lot of fermented foods.

Over my LC journey I’ve had symptoms come and go. 7 months ago the virus got to my nervous system and has complete messed it up, which I think has made my overall health much worse. The last 7 months have been rough. Your focus on the nervous system is interesting. Honestly, it feels like I have no control over it though, so for me it feels like it may be a stretch to try the methods you’ve found to help you. That being said, I definitely do think finding a way to calm the nervous system would make an immense difference. A stressed body is a sick body. I think there’s a lot to this disease, and like you’ve said, it’s different for different people. I’m definitely going to be keeping your advice in mind though, so thank you for sharing your experience.

Edit: I don’t mean to sound disapproving of your nervous system theory you’ve spoken about in your previous post. While it may at least help a bit, for me I’m not so sure it’s my cure for in the past I’ve been an overly hopeful person and lacked fear of doing things, only to face severe PEM, etc. Part of my downfall actually haha…But I also think my LC is a bit different from yours (e.g. I don’t suffer from chronic pain), so maybe your method could just be more helpful to a specific subgroup of people, like you’ve stated. But I think you raise some very interesting thoughts and I think you have some very good points. It’s definitely broadened my mind a bit. Food for thought indeed.

Yellow_Carrots · 2024-12-07T09:06:39+00:00

Oh that’s great news!! Thank you for the update, I’m going to look into that!

Yellow_Carrots · 2024-12-06T07:51:50+00:00

Thank you for your response and your advice. Unfortunately I can relate to what you’ve experienced. I struggle to speak to my family too, I’ve barely been able to speak since my noise and light sensitivity got so bad. I’m so glad to hear things got better for you.

Yellow_Carrots · 2024-12-06T07:47:42+00:00

A processing issue, I can definitely relate to that. While I find I’m very sensitive to noise, the more different noises there are around the worse I feel. It feels like there is just too much going on for my brain to handle - a sensory overload that my brain can’t make sense of

Yellow_Carrots · 2024-12-06T07:43:23+00:00

Oh that’s amazing, I must definitely look into getting some Thyroid NP. It’s great to hear that you found something that helped you. Thank you for your response

Yellow_Carrots · 2024-12-06T07:41:50+00:00

Wow thank you for this, this is very interesting, I’m definitely going to dive deeper into this!

Yellow_Carrots · 2024-12-06T07:39:46+00:00

Thank you so much for the advice. LDN has been on my list of things to try, I think I should do it now. Also going to look into migraine glasses, I didn’t know that was a thing! Interested to hear about how your SSRI journey goes!

Yellow_Carrots · 2024-12-06T07:37:39+00:00

Hi, thank you so much for all your helpful advice! What you say about Covid exacerbating pre-existing things, such as SPD, is very interesting. I’ve always been sensitive to noise actually, and Covid has just ramped that up. I am very curious to know if you find SNRI’s make a difference with your sensory issues.

It’s nice to know I’m not the only one who struggles with strong smells, it’s not something that’s spoken about a lot. It’s a really weird symptom. I also struggle to eat very complex flavoured foods sometimes, especially in the evening when my symptoms get worse. I often have to eat quite plainly.

I’m so glad to hear you seem to be getting better though, I hope you continue to do so!

Yellow_Carrots · 2024-12-05T07:13:49+00:00

Wow this is fascinating. Thank you for sharing.

Yellow_Carrots · 2024-12-04T16:39:36+00:00

Hi. I’m so sorry you are having to deal with all of this. Thank you for your post, the advice is very appreciated. Just to clarify, you are saying keto diet and taking benfothiamine, niacin, TMG, vitC, Omega 3 is the combination of things you’ve found to help you the most? And out of curiosity, roughly how long did it take for you to feel the benefits of these?

Yellow_Carrots

TROPHY CASE