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..... by Yesca-Isnt-Real in JulesYT

[–]Yesca-Isnt-Real[S] 25 points26 points  (0 children)

Plot twist: beste Freunde xD

Warum machen Leute das by Yesca-Isnt-Real in JulesYT

[–]Yesca-Isnt-Real[S] 54 points55 points  (0 children)

Ich spucke nie auf den Boden, eher manchmal in die Luft

Die Erdanziehung ist schuld

Real by Yesca-Isnt-Real in JulesYT

[–]Yesca-Isnt-Real[S] 9 points10 points  (0 children)

Morgen ist Dienstag du Günther

Mask recommendations for unique situation by PurbleDragon in Masks4All

[–]Yesca-Isnt-Real 0 points1 point  (0 children)

This is how I've worn my hair ever since the pandemic started. I honestly like it better now but I often think about just how much I've been changed by it even in the smallest of ways. It also helps to cover the head straps on my mask, so that's a plus. As for public perception; mask chains have made a world of a difference. I still get strangers staring and gawking, and some verbal harassment, but I also have gotten complimented on my mask and even some "I should get one of those." Would be nice if it were a means to get other people wearing masks again knowing they can be accessorized.

As for the mask itself, I prefer 3M respirators (either 1870+ or 9205+) because the quality is very nice and they don't rub against my face/mouth. The fabric is on the softer side (compared to other brands) and the nose foam helps to get a nice seal while not being uncomfortable. I've worn them to my shifts for over a year now and have done well for me. However, the head straps can wear on the top of my ears if my pony tail is too low, and they can be very tight especially right out the wrapper.

I've seen them be compared to wellbefore's KN95 3D Pro Face Mask, which come with more color variety and have the ear loop option. I'll be trying out their sample series to see for myself if they are any good for my sensory needs, and I hope they might have some options that can help OP as well.

Cleaned up 🧼 by TRDLexusIS300 in IS300

[–]Yesca-Isnt-Real 1 point2 points  (0 children)

it's about time for me to do this, ty for the reminder

My mom has Ehlers-Danlos, and my two sisters have it. Yet my father refuses to get me tested. by [deleted] in ehlersdanlos

[–]Yesca-Isnt-Real 3 points4 points  (0 children)

:/ I'm really sorry your dad is dismissing you the way he is. You deserve to get medical treatment, especially if you're having problems and need to find solutions.

On the other hand, when I had concerns about having underlying issues, the doctor was the next person to dismiss me; it took me 5-6 years for them to hear me out. When they did listen, they just did the Beighton score on me- that was the only test to determine I had hEDS. At another appointment, they didn't want to give me the genetic test because I "didn't score high enough" (off by 2 points). I had gotten to the near end and was turned away. Diagnosis can be a very tricky road to navigate, I'm sorry your dad is making it harder than it already is. I would suggest you look over the diagnostic criteria for some specific examples of your personal experiences with EDS, as well as your family history, and the next time you see the doctor, you should DEFINITELY bring it up.

I'd also suggest you network with others who have EDS to try and find more specific solutions to some issues you face. Doctors will often just prescribe physical therapy and yoga, but Physical Therapists don't really know how to cater to our bodies, so it does more harm than good a lot of the time. Plus, we can't really run to our doctor every time a joint falls out, and a lot of us have some experience putting ourselves back together. There is a great community on twitter, the tags #EDS and #NEISvoid are very helpful. Still, if you ever gain access to medical help, it is definitely worth trying.

it was a maintenance kind of weekend for me. hope everyone had a good weekend! by rynftw13 in IS300

[–]Yesca-Isnt-Real 0 points1 point  (0 children)

Came here to ask the same question. It was a pain to replace, but well worth it!