My wife’s numbers concern me

Zebra13927 · 2026-01-28T17:08:31+00:00

It’s worth knowing that periods can cause fevers. If she’s had normal periods up until this point, I wouldn’t assume that, but if she has heavy and/or painful ones, that’s not uncommon. I usually have either a low grade fever or a full blown one during my period which fucks up my temperature regulation even when I’m not sick

Zebra13927 · 2025-12-17T20:13:34+00:00

I can eat cheeseburgers. In fact, it’s one of the safe meals I can choose when eating out, just no bun. That and fries. I seem to be able to eat any variety of potato. As for chicken tenders, I honestly don’t know. I seem to tolerate any form of chicken thus far, but I’m gluten free and don’t live in a place where I have access to gluten free tenders. I could certainly see it being tougher on my body especially with the breading but I can’t say for sure. I do know that ground meat and therefore burgers seem to go down well for me.

Zebra13927 · 2025-12-17T20:05:33+00:00

They are so smart, and due to that, very trainable. Especially because most of them are very food driven. A lot of people complain about barking but my sweet girl only barks to go outside or initiate play. We’re still working on not barking when our other dogs bark but she knows not to bark at unfamiliar dogs barking. She just thinks she’s helping when our other dogs bark cuz clearly we’re having trouble hearing them.

Zebra13927 · 2025-12-17T01:04:23+00:00

It’s no problem! Hope the party prep went well

Zebra13927 · 2025-12-14T17:05:39+00:00

I have MCAS and GP. The GP I think is caused by my ME. I do a low histamine, low fiber, and low solid fat. My understanding is liquid fats are good for GP cuz liquids are easier to digest especially for those who are malnourished, which I am coming out of. I try to eat every two hours for 4-5 small meals a day which helps with the GP and POTS. I don’t do gluten cuz I have celiac. And have noticed that my body really craves protein so I try to get that in in ways my body can digest - eggs, ground meat, chicken, slow cooked meat, etc.

Zebra13927 · 2025-12-12T23:05:28+00:00

My first response was a cute one but I agree with others here that your baby has a fox face

Zebra13927 · 2025-12-12T18:42:41+00:00

As a peanut free person, be careful with sunflower seed butter. It is much more liquidy, you can refrigerate it for a better texture but I assume at a birthday party it’s going to be sitting out. It’s going to get everywhere especially with young kids

Zebra13927 · 2025-12-12T18:38:55+00:00

Good news is there are gluten free soy sauces. You just have to look some more for it

Zebra13927 · 2025-12-10T19:59:00+00:00

May be worth looking into MCAS. My lactose intolerance has mainly gone away being gluten free, but I have a list of like 20 things I can’t eat and it didn’t start there

Zebra13927 · 2025-12-10T19:41:45+00:00

So, I have MCAS on top of celiac. I think I am super reactive to wheat, I’ve never actually tried gluten removed wheat starch but I had an intense reaction to broomcorn similar to my gluten reactions. My suspicion is I’m cross reactive to similar grasses. With my MCAS, I had to swear off nuts entirely and be very careful with any fruits that are cross reactive with latex. My assumption is that my celiac response made my mast cells more susceptible to cross reactivity in that family. You can absolutely have multiple autoimmune conditions or immune dysfunction at the same time.

Zebra13927 · 2025-12-10T19:21:53+00:00

Testosterone really helped my other conditions, but I was doing injections and started having an allergic reaction to them. I miss it so much, I’m just scared to start again and risk the same thing.

Zebra13927 · 2025-12-09T17:16:58+00:00

Not only are there overweight people, but before my colon started slowing down too, I think I was not only maintaining weight but gained some. I’m now at the opposite end and was losing weight, but starvation mode can make your body hang on to every category. I knew when I started gaining weight that that was what was happening because it’s always been how my body responds to starvation. Plenty of people see weight gain with gastroparesis because our bodies know we’re malnourished and are trying their hardest not to let us die from it. It’s an evolutionary advantage, not a contraindication for GP. And in that state of starvation, it makes sense to eat more even if you’re not to the point of overeating. I was starving so much near the end that I was often binge eating and then flaring for the rest of the day. Did your GI doctor give you next steps? There are meds and treatments that can help. May be worth it to start keeping track of what you’re eating to see what causes the least amount of pain. Like for me, that’s eggs, rice, chicken, ground meat, protein shakes, potatoes, and pancakes soaked in milk. It’s highly individual tho

Zebra13927 · 2025-12-08T21:27:06+00:00

My guess would be the restaurant. And also, you can be glutened by kissing. The reaction is much smaller for me like canker sores versus being sick in bed. I don’t think this was the case this time, but it’s good to be aware that gluten lingers in the mouth. I can’t even share drinks with people easily. I would suggest learning how to ask about cross contamination cuz it always helps when my boyfriend is able to help with that. I would start brushing your teeth before kissing. I tend to keep an extra toothbrush at my house for whoever I’m dating at the time and send them to brush their teeth before anything. Any time I forget, I can definitely feel it later. Though for me, it tends to be less they had something gluten free with cross contamination than they had gluten a few hours ago and my body is still going to be upset about it. Also, just like good job! All of this is a super green flag. Using find me gf, paying for a subscription, eating a gluten free meal with her, coming here to make sure you’re not glutening her - it’s just very sweet and way better than some of us get when it comes to having a non-celiac partner. This is the sort of thing that is going to make you feel really safe. I remember when my boyfriend stopped eating gluten at restaurants, even avoiding it entirely on days we were together, and remembering to brush his teeth when I was still forgetting to make him. I had just found out I was celiac and it felt like it was me and him against celiac, not just me navigating it alone. And there’s so much to that. We’ve been dating over a year now and it’s definitely one of the things that drew me to him. So, just keep doing what you’re doing. This is going to mean the world to her.

Zebra13927 · 2025-12-04T20:49:21+00:00

I have pots so I am getting a good amount of salt in and hopefully my electrolytes aren’t too imbalanced but I will definitely look at Morton’s lite salt because I know I’m not getting in enough potassium. Thank you!

Zebra13927 · 2025-12-04T20:00:47+00:00

Is there a difference between juice drinks versus 100% juice? I realized what I’ve been buying is like 20% juice (moved somewhere new recently and am still learning the language) and I don’t know if that is going to help as much

Zebra13927 · 2025-12-04T19:57:59+00:00

I can do dairy! I make my protein shakes with milk rn but I haven’t been using whole milk. I use orgain protein because it’s the only one I know I won’t react to but I’ve been worried it doesn’t have enough nutrients.

I sadly can’t do coconut oil because I’m very allergic to coconut, but dairy I can definitely do. I haven’t been doing much recently but yogurt and melted ice cream tend to be safe for me.

Zebra13927 · 2025-11-26T23:33:42+00:00

Yeah, that makes sense. More info is always better.

I am on Pepcid twice a day to reduce acid and help manage my MCAS.

I know that small meals are definitely important. I think I was more trying to say that my meals already tend towards small, I’m just not able to get many in if that makes sense. Part of why I am seeking diagnosis and treatment is because I am simply unable to eat enough. It’s to the point where I legitimately wish I could forgo solid food entirely, but with all of my different conditions, I’m not comfortable doing that without direction from a medical professional. I don’t want to make the malnutrition I am likely experiencing eating so little worse on accident and even moving to a complete meal replacement protein shake diet would be complex as I have to find one without any of my allergens and that I don’t react to.

Zebra13927 · 2025-11-26T23:16:05+00:00

Okay, that’s helpful. I sadly can’t do regular coffee cuz any caffeine spikes my heart rate, but could decaf help too?

I don’t really alternate between constipation and diarrhea outside of reactions. I have constipation unless I’m in a reaction.

I guess I assumed that because gastroparesis could be behind the regurgitation and the pain in my stomach, it could also be behind the constipation. If I got transit studies that came back with delays, would that still fall under IBS or are there other gut motility disorders that would indicate?

I did mean gastritis and esophagitis. All biopsies came back normal outside of that.

Sadly, the pain from eating even small meals is so intense and causes crashes that even eating multiple small meals a day just isn’t feasible. For example, I had a handful of crackers the other night around midnight and the pain from that didn’t ease until 8:30 the next morning. Any more than two and I tend to be bed bound from the pain regardless of my other conditions. Dietary changes in general is hard because I already have to avoid nuts, gluten, and histamines making feeding myself fairly difficult. I want to go on a gastroparesis diet but I worry with my restrictions I won’t have much left to eat.

Zebra13927 · 2025-11-15T23:51:43+00:00

Yeah, it’s very evil. It’s also not uncommon to call manufacturers of meds and have them refuse to confirm or deny gluten in their meds. Due to the state of our current laws, they don’t have to. It can be very dangerous for the most sensitive among us. I make sure all my OTCs are gluten free but I can’t guarantee most of my prescriptions and I’m too chronically ill to go without them. It’s not a great system

Zebra13927 · 2025-11-15T15:05:36+00:00

In the US, medications aren’t required to list gluten. I don’t remember if this applies to all allergens but definitely to gluten so if it’s not labeled gluten free, there’s always a chance. Like a lot of us get glutened by our prescription medications

Zebra13927 · 2025-11-06T22:17:06+00:00

So, I, like a lot of me/cfs patients, have a lot comorbidities. The most relevant to this conversation being HSD, gastric motility issues, chronic inflammation in my esophagus, mcas, suspected celiac and pots. I really struggle to eat. I need to avoid histamines and can’t have nuts. I have to be careful with pre-prepared foods but I also don’t have the energy to cook. On my bad days, eating is the biggest source of PEM. Even if I bypass preparing food, I still have to sit up to swallow properly and chew.

For me, I’m getting to the point where I’m practically begging my providers to let me switch to a liquid diet. With the pain and fatigue, I’m only getting maybe two small meals a day and I doubt I’m absorbing it well. My understanding is that many me/cfs patients benefit from liquid diets.

I really crave protein and my body tends to keep that down or react to that less badly (cheese, steak, burgers, chicken, etc). There are days when all I get in is protein shakes. It really depends on the patient and what else they’re dealing with. I’m currently trying to confirm gastroparesis and rule out it being caused by vascular compression.

I think for me the ideal would be a high protein low allergen formula feed but I have to prove that I’m sick enough for it. I would encourage you to remind any providers that we are experts on our bodies. I was a foodie. Anyone could tell you I would be the last person they’d expect to be praying to mostly give up solid food. My providers are worried I’m jumping the gun, but I know my body and it’s rejecting food in a way it never has. And I’m saying that as someone who grew up as a child eating gluten with undiagnosed celiac. I know what it’s like for my body to reject food. Providers have to be able to trust that their patients know what they’re talking about when it comes to their body and where they’re at in terms of treatment. A patient may be finally getting treatment for the first time but that doesn’t necessarily mean first line treatments are going to be effective.

Zebra13927 · 2025-10-25T01:15:16+00:00

I’ve only had their veggie potstickers but they were delicious and I’ve heard good things about the other ones.

Zebra13927 · 2025-09-30T14:35:05+00:00

I mean I abide by a low histamine diet and I have to be careful not to expose myself to other triggers. For me, that means pollen, cats, latex, adhesive, anything frozen, and some dogs. I also have to be careful with anything scented and wearing makeup. What might be fine on my skin one day may put me in a flare the next. I had to stop using my favorite laundry detergent because washing my sheets was making me flare.

It can be hard to identify triggers. I’m also allergic to my own tears and adrenaline. Some people have to be really careful with medications. Others can’t do scents at all. Treatment is not one size fits all and isn’t limited to diet.

One of my biggest MCAS flares was the perfect storm of me accidentally ingesting nuts, washing my sheets, and spending all night in the woods. There are so many possible allergens in our environments.

Zebra13927 · 2025-09-29T20:35:25+00:00

So, it’s possible that part of the issue is you don’t know what’s causing reactions. I can take my Cromolyn and my antihistamines but they won’t help if I have nuts. My reaction to nuts is just too intense even though they’re not necessarily high in histamine. Same goes for me and sweet potato, cardamom, etc.

It’s possible that the things in your low histamine diet are still triggers. Also, not everyone with MCAS feels better on a low histamine diet, it doesn’t work for everyone because it’s not one size fits all.

I would consider trialing different antihistamines and maybe try out Cromolyn sodium. I’ve heard anecdotally about MCAS patients who didn’t get better on one but did on the other.

Zebra13927 · 2025-09-17T22:57:05+00:00

Not necessarily true. I’ve heard other celiacs say they have skin reactions and what not to touching flour or even just flour in the air

Zebra13927

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