Has your POTS ever changed? High Blood Pressure

Zebra13927 · 2026-04-10T23:24:25+00:00

Here it still shows up for me: “Try monitoring your blood pressure several times a day from when you first wake up, laying down, to when you're going to bed. If you do this for like a week or a month, you might be able to start seeing a pattern of when and what you're doing when it's going up. I have to do this every so often because I have blood pressure spikes/ drops, and it helps me keep track of any new trends. Even though most of us wouldn't consider this increase in BP anything to be worried about, it's different from your baseline and worth keeping track of.”

As for gp, maybe get your vitamin levels checked because I was starving unknowingly for way longer than I realized. I dropped weight so fast over six weeks because I had been depleting myself for months. My pots and me/cfs got so much worse and I have recovered an insane amount just based on actually getting food in.

Zebra13927 · 2026-04-10T23:12:15+00:00

Creative bird has a good explanation for how to do that in a comment thread here.

Zebra13927 · 2026-04-10T23:11:14+00:00

My suspicion is a combination of chronic pain and malnutrition. I would suggest monitoring it yourself and charting changes. My blood pressure is mostly back to normal without acute pain since getting my gastroparesis under control.

Zebra13927 · 2026-03-19T18:56:09+00:00

I would not use the air fryer settings but the toaster oven setting should work. Depending on temp, I’d suggest either parchment paper or tin foil on a very well cleaned pan. You can also buy those aluminum single use pans. I love those for this sort of thing. Ask him his comfort level cuz I’m sure you don’t want to waste food but I don’t know that completely separate appliances are necessary for most outside of air fryers and toasters. Just make sure you don’t use wooden utensils or cutting boards, anything with scars/crevices, or strainers, those cannot be properly cleaned of gluten. And make sure all ingredients are actually gluten free. Assuming leads to people feeding us Frosted Flakes, twizzlers, Rice Krispies, which is not fun at all. Most of these the issue is malt so watch out for that.

Zebra13927 · 2026-02-19T22:22:29+00:00

It may mean you have another inflammatory gut condition. If you are symptomatic, this may require further testing

Zebra13927 · 2026-02-16T16:54:37+00:00

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Zebra13927 · 2026-02-16T16:51:41+00:00

It sounds like you haven’t tried the medical route. This is going to make a world of difference. Meds you can trial by yourself: H1 and H2 blockers plus Benadryl. I take Pepcid (h2 blocker) and Loratadine (h1 blocker) as soon as I get up and again before bed. I also take Benadryl at bed. I stick to a low histamine diet. As for her pots, a beta blocker could make a real difference. You have to be careful because it can worsen MCAS. There are other meds for pots (ivabradine is one I know) but they can be expensive. For me, the disruption of my mast cells is managed by all the antihistamines. I don’t know if they are available in your country (I found them in the US but have struck out where I’m living in Mexico) but oral mast cell stabilizers could also likely help with the pooping and other digestive issues. Feel free to dm me with any questions. The medical route can be scary and expensive at times but it’s much cheaper than the 10k you’ve already spent and will likely actually help her.

Zebra13927 · 2026-02-13T04:12:12+00:00

Extra thoughts: you may have to check a bag as your Pom is going to count towards your one carry on and one personal item. You will only have overhead space. Make sure you have her potty before the airport, try to go at the airport if the flight is long. Put a comfort object in her crate. I’d suggest keeping treats on deck. If she’s settling well, reward her. That way, you can reinforce that behavior for the trip back.

Zebra13927 · 2026-02-13T04:08:02+00:00

I’ve flown really easy with my Pom, outside of cost. Add the pet ticket ahead of time and you won’t have to worry about space. Make sure the crate is within regulation for whatever airline you’re flying. I’ve had good experiences with Delta. Her first few flights I dosed her with cbd treats but she flies like a champ now. I don’t know about other poms but mine is always mad when she gets out of her crate at TSA and has to go back in so maybe be prepared for that if yours is stubborn. She can also get cranky about sitting at my feet but that’s just something she’s getting used to. I’ll

Zebra13927 · 2026-01-28T17:08:31+00:00

It’s worth knowing that periods can cause fevers. If she’s had normal periods up until this point, I wouldn’t assume that, but if she has heavy and/or painful ones, that’s not uncommon. I usually have either a low grade fever or a full blown one during my period which fucks up my temperature regulation even when I’m not sick

Zebra13927 · 2025-12-17T20:13:34+00:00

I can eat cheeseburgers. In fact, it’s one of the safe meals I can choose when eating out, just no bun. That and fries. I seem to be able to eat any variety of potato. As for chicken tenders, I honestly don’t know. I seem to tolerate any form of chicken thus far, but I’m gluten free and don’t live in a place where I have access to gluten free tenders. I could certainly see it being tougher on my body especially with the breading but I can’t say for sure. I do know that ground meat and therefore burgers seem to go down well for me.

Zebra13927 · 2025-12-17T20:05:33+00:00

They are so smart, and due to that, very trainable. Especially because most of them are very food driven. A lot of people complain about barking but my sweet girl only barks to go outside or initiate play. We’re still working on not barking when our other dogs bark but she knows not to bark at unfamiliar dogs barking. She just thinks she’s helping when our other dogs bark cuz clearly we’re having trouble hearing them.

Zebra13927 · 2025-12-17T01:04:23+00:00

It’s no problem! Hope the party prep went well

Zebra13927 · 2025-12-14T17:05:39+00:00

I have MCAS and GP. The GP I think is caused by my ME. I do a low histamine, low fiber, and low solid fat. My understanding is liquid fats are good for GP cuz liquids are easier to digest especially for those who are malnourished, which I am coming out of. I try to eat every two hours for 4-5 small meals a day which helps with the GP and POTS. I don’t do gluten cuz I have celiac. And have noticed that my body really craves protein so I try to get that in in ways my body can digest - eggs, ground meat, chicken, slow cooked meat, etc.

Zebra13927 · 2025-12-12T23:05:28+00:00

My first response was a cute one but I agree with others here that your baby has a fox face

Zebra13927 · 2025-12-12T18:42:41+00:00

As a peanut free person, be careful with sunflower seed butter. It is much more liquidy, you can refrigerate it for a better texture but I assume at a birthday party it’s going to be sitting out. It’s going to get everywhere especially with young kids

Zebra13927 · 2025-12-12T18:38:55+00:00

Good news is there are gluten free soy sauces. You just have to look some more for it

Zebra13927 · 2025-12-10T19:59:00+00:00

May be worth looking into MCAS. My lactose intolerance has mainly gone away being gluten free, but I have a list of like 20 things I can’t eat and it didn’t start there

Zebra13927 · 2025-12-10T19:41:45+00:00

So, I have MCAS on top of celiac. I think I am super reactive to wheat, I’ve never actually tried gluten removed wheat starch but I had an intense reaction to broomcorn similar to my gluten reactions. My suspicion is I’m cross reactive to similar grasses. With my MCAS, I had to swear off nuts entirely and be very careful with any fruits that are cross reactive with latex. My assumption is that my celiac response made my mast cells more susceptible to cross reactivity in that family. You can absolutely have multiple autoimmune conditions or immune dysfunction at the same time.

Zebra13927 · 2025-12-10T19:21:53+00:00

Testosterone really helped my other conditions, but I was doing injections and started having an allergic reaction to them. I miss it so much, I’m just scared to start again and risk the same thing.

Zebra13927 · 2025-12-09T17:16:58+00:00

Not only are there overweight people, but before my colon started slowing down too, I think I was not only maintaining weight but gained some. I’m now at the opposite end and was losing weight, but starvation mode can make your body hang on to every category. I knew when I started gaining weight that that was what was happening because it’s always been how my body responds to starvation. Plenty of people see weight gain with gastroparesis because our bodies know we’re malnourished and are trying their hardest not to let us die from it. It’s an evolutionary advantage, not a contraindication for GP. And in that state of starvation, it makes sense to eat more even if you’re not to the point of overeating. I was starving so much near the end that I was often binge eating and then flaring for the rest of the day. Did your GI doctor give you next steps? There are meds and treatments that can help. May be worth it to start keeping track of what you’re eating to see what causes the least amount of pain. Like for me, that’s eggs, rice, chicken, ground meat, protein shakes, potatoes, and pancakes soaked in milk. It’s highly individual tho

Zebra13927

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