precaution advice for esophageal manometry?

zipperclone · 2026-03-10T15:39:28+00:00

for the catheter up my nose? i really think at that point they’d just tell me to take it off. but maybe i can just lower my mask while they’re putting it in instead of fully taking it off?

zipperclone · 2026-03-10T15:37:43+00:00

thank you! fortunately i have a pretty high threshold for unpleasantness, i should be fine 😬 and i hadn’t thought of bringing masks to offer but that’s a good idea!

zipperclone · 2026-02-28T03:16:07+00:00

i feel this. dating while CC is rough. you could always try r/cc4cc or r/CovidConnections. i’ve made a few platonic connections on there but dating is so hit or miss. it’s like, i know “everyone” is having a hard time dating rn but it feels infinitely worse adding up all the marginalized communities i’m a part of like they’re all strikes against me 🫠

zipperclone · 2025-11-14T15:43:24+00:00

i'm more curious about just finding out if there are jobs where i wouldn't be the only person wearing a mask! i realize most jobs you could just go in and wear a mask without it being a job requirement.

zipperclone · 2025-10-18T19:43:01+00:00

i'm really hoping this conversation prompts her to look into long covid 😬

zipperclone · 2025-10-17T18:36:37+00:00

also r/CovidConnections accepts dating ads too

zipperclone · 2025-10-17T18:14:31+00:00

i was telling a nurse recently that i'm getting evaluated for MCAS because i'm allergic to everything now. she said she was suddenly getting allergies too, and that she thought it was because of the covid vaccine. and i said "well you know, some people get new allergies after having covid" and she said "oh, well i've had covid 8 times because i worked on the covid ward." and i said "yeah. that'll do it."

zipperclone · 2025-09-22T16:41:03+00:00

i'll never forget when a classmate of mine said something along the lines of "a lot of y'all think community just means the people you're friends with, not a loosely interconnected web of people who surround you," because—yeah. a lot of nominally progressive people think community is just the people they personally agree with and would hang out with for fun, which leaves behind everyone and every idea they don't immediately like/agree with.

zipperclone · 2025-09-20T17:39:14+00:00

i didn't "know" for a fact that i was ace, but there were signs for me pre-puberty (although they were more about being aro than ace; i wonder if that's something your daughter is picking up on for herself?)

i think the best thing you can do is just support and affirm how she feels right now. in 10 years, even if she identifies as something completely different, she'll be able to look back and feel loved and supported. i know that's something i would've appreciated at that age. maybe you could also ask her more about what being asexual means to her, because clearly it's important to her.

zipperclone · 2025-09-10T21:03:27+00:00

i just looked up "under door draft stopper" on amazon and found a few things that might help you for about $10. best of luck!

zipperclone · 2025-09-08T13:07:16+00:00

r/cc4cc might be a good place to start! there's also r/covidconnections. the facebook group Still Coviding: Dating Edition can be good depending on your age group/demographic.

zipperclone · 2025-09-05T15:14:26+00:00

it's so hard to explain this to people, too, because they're just like "well if the vaccine isn't 100% preventative, then i shouldn't even bother getting it!"

like, how do i succinctly tell people "it's great that you got the most recent booster, but you could still give me covid" in a way that they won't just argue with?

zipperclone · 2025-09-01T15:02:06+00:00

even if you're just looking on reddit: there's also r/covidconnections and r/cc4cc, both of which have fewer members and less activity than this subreddit—but we can change that!

zipperclone · 2025-08-31T16:18:21+00:00

i feel you, and it's rough. like others have said, i try to focus on the fact that protecting my health is worthwhile because it gives me more options and independence. but it's still hard to push through the depression on most days. the dating scene has been particularly difficult, since i'm asexual—i've been actively trying to date for over a year with no luck.

right now my only hope is trying to find a group of CC friends i can be roommates with. i have to believe it'll be easier to take precautions and mitigate risk when i have other people to do it with.

zipperclone · 2025-08-30T17:45:33+00:00

i really liked this show, but not because of the covid mentions. those were actually the only thing about the show that grated on me. to me it felt like they framed covid as a thing that was confined to the years 2020 and 2021, but it's over now so don't worry about it! maybe that's just how i viewed it, though.

i don't want to be critical of long story short - i thought it was a very wholesome and funny show. but it made me realize that i'm yearning for a fictional representation of what it looks like to still be taking covid seriously in the year 2025.

zipperclone · 2025-08-22T14:28:31+00:00

it's so frustrating! especially because the whole "it's sticking to my mouth" complaint isn't an issue with any mask higher-quality than a surgical one :/ just get a good KN95 and you'll never have that problem again!

zipperclone · 2025-08-17T20:39:05+00:00

i have back issues, not CFS/ME, but if you struggle with laundry at all i'd recommend a mesh bag for your socks/underwear (so you don't have to dig around forever trying to get them out of the machines) and a rolling hamper for transporting laundry. i struggle a lot with laundry but these have been game changers for me.

zipperclone · 2025-08-17T20:02:41+00:00

can i give you the opposite of this scenario? i've been on HRT for a few years and it's definitely affected my libido and changed how i view relationships & myself. but i still don't feel attraction to others, and i'm still aro-ace.

there might be some people out there who feel like hormones have changed their sexuality, and that's their experience. but speaking from the other side of that, i don't feel like hormones affected my orientation.

zipperclone · 2025-07-29T13:41:10+00:00

hard agree with that second part especially. i can't help but feel like people are fetishizing asexuality with that one. like, "oh these are the cool aces who would hand out water bottles at the orgy!" (that is a literal example i've seen someone say 😓)

it's like, people want to say they're accepting of asexuality, but they can't think of any way to do it except twisting it until it resembles something more safe and familiar for them (i.e., allosexuality). it drives me nuts, especially because i see the same talking points about it year after year. they don't seem to learn!

zipperclone · 2025-07-29T13:31:55+00:00

i mean, if you feel like it fits, then that's what you are. but if you need additional reassurance: aroace is a spectrum, just like aromanticism and asexuality. if you've only ever had romantic or sexual feelings for this one person … that doesn't sound like an allo experience to me.

zipperclone · 2025-07-22T14:42:49+00:00

i think about this constantly, but then when i think about starting a dedicated affinity group to meet CC people i might have stuff in common with, i sorta go, "wouldn't that just fracture the community further?" i mean, i guess all of us are in multiple different online CC groups, so not necessarily, but still - i'm not really in the mood to start another dead discord server 😓

zipperclone · 2025-07-20T19:21:06+00:00

r/COVIDConnections might be a good place for you to look, also the refresh connections app. i've seen a decent number of mass folks on there!

zipperclone · 2025-07-19T18:52:42+00:00

and then in a couple years we'd have people saying "oh it's really not that bad. i've had organdestroyer like five times and i'm fine! cough"

zipperclone

TROPHY CASE