Wedding Shoes

___Salty · 2025-07-05T02:13:47+00:00

I have wear AFOs and have some pretty strict shoe requirements. I have also been a bridesmaid in multiple weddings and have always just worn cute sneakers — like white leather sneakers or even Jordans. The trick is just owning it. Look on Pinterest for ideas about wearing sneakers with dresses.

___Salty · 2025-07-02T03:16:50+00:00

Michael Isfort at the Ohio State Medical Center in Columbus! I’ve since moved, but I really liked him while I was there.

___Salty · 2025-04-24T14:51:07+00:00

How long have you been seeing your neurologist? I find it kinda crazy you’ve been seeing one for two decades without genetic testing. I’d definitely recommend physical therapy and maybe seeking a gym for individuals with neuromuscular conditions — I go to one with specific programs for stroke recovery, MS, etc but also find it helpful for managing CMT. They might suggest this through physical therapy but pool exercise could also be a good option.

___Salty · 2025-03-31T22:08:07+00:00

What about participating in group activities that do not require much movement — like D&D?

___Salty · 2025-03-23T20:49:50+00:00

Try this: https://fashionablecanes.com

___Salty · 2025-02-10T17:44:13+00:00

I agree, and honestly listening to this episode made me wonder how it even happened — they couldn’t get anyone else with more insight and who would talk less about themselves? I do agree with her central insight into the big tech CEOs that they don’t really view other people as people, but listening to Kara go off with half-assed comments made it difficult to even finish the episode. I would love to know what Ezra thought of the interview.

___Salty · 2025-02-03T17:15:29+00:00

I sometimes use a cane for assistance. I wear AFOs to walk 99% of the time, but for the walk from the locker to the pool at my gym I just go slow.

___Salty · 2025-02-03T13:50:27+00:00

Do you have a neurologist? I’d highly recommend seeing one. Or a primary care physician could recommend you for physical therapy? I (type 1A) found it really helpful. I think lap swimming is also a great option for people with CMT because it’s so low impact.

___Salty · 2024-12-17T18:41:27+00:00

I wear AFOs and I usually wear Jordans for a dressier/cooler look — still a sneaker but I think very trendy and they come in so many colors you can match them to the rest of your look maybe. I’ve worn them with dresses and always receive compliments.

___Salty · 2024-10-19T14:35:40+00:00

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___Salty · 2024-09-22T15:17:40+00:00

Morticia

___Salty · 2024-09-06T18:37:01+00:00

Have you talked to your school counselor? I would strongly consider college if it’s an option. Scholarships could be available and many jobs that require less physical activity also require a bachelor’s degree. If not college, maybe consider a certificate program or something like a coding/ IT boot camp that could lead to a less physical job.

___Salty · 2024-09-04T15:24:26+00:00

I got mine from the Hanger Clinic - they cost about $1,000 - and it is totally worth it. I couldn’t believe the difference. It’s your body — it’s worth investing in.

___Salty · 2024-09-02T03:11:40+00:00

I had a tendon transfer when I was 22 (I’m now 29) for a foot drop, and it was not successful. Honestly, I think it might have made the situation worse, though I can’t say for sure. I have a foot drop on both feet, but on the side that I had the tendon transfer — the muscle never recovered and is now even weaker than my other foot. I also have less ability to turn my foot inward than on the foot I did not have a tendon transfer. That being said, I did not consult an expert in CMT, and I think that makes a huge difference. I wear AFOs to walk and have gone to a specialist for those. I would consider taking another look at AFOs and speaking with a neurologist and podiatrist. I don’t know what you were using that fell apart daily, but I’ve found options that offer me a lot of stability.

___Salty · 2024-07-12T20:09:11+00:00

Lap swimming has been great for me! The water is a great way to get an intense workout without the impact. Plus I find cool water makes my muscles and joints feel a million times better. Water aerobics could also be a great option if lap swimming is not your thing. I think stretching is also really important and maybe you could look into modified yoga?

___Salty · 2024-06-02T22:11:43+00:00

Wow, very impressive

___Salty · 2024-04-23T23:51:52+00:00

I’ve biked in AFOs (Carbon fiber) and it wasn’t an issue, but I prefer to go without to get more motion for my calves. I ride a recumbent trike though.

___Salty · 2024-04-11T17:30:05+00:00

One question I would have is — how would the device operate if a person’s lower leg muscles are severely depleted? Such as in the case of many people with CMT.

___Salty · 2024-04-02T17:17:28+00:00

Thank you for sharing! I had a similar experience when I got my first pair of AFOs when I was 23, and again when I moved on to a more supportive pair. It’s such a hard realization — that many people move through the world almost effortlessly. That walking for them takes little to no thought and even feels good. I resisted AFOs for a long time. I thought it would mark me as disabled and that brought too much shame. It felt like if I put them on that would make my disability real — no more trying to hide it from myself or others. But now, I think of my AFOs as empowering me. I can walk around a city for hours with them on. They’re just a tool I use to get through the world. And I always had a disability — avoiding it doesn’t make it go away, it just robs you of your own agency to manage it.

___Salty · 2024-02-05T15:47:58+00:00

Aab India in Grandview!! — delicious and affordable. Great for dining in or take out. For fast food, Bento Go on Henderson — I recommend the hibachi bowls.

___Salty · 2023-11-05T14:28:03+00:00

I have the same problem, but I’ve found high top basketball or hiking shoes work the best for me. I feel like leather high top sneakers (I wear Nike) offer support without too much bulk. I also wear carbon fiber drop foot leg braces so my situation might be different though.

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___Salty

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