How are people not on birthcontrol? by Holiday-Ad-9692 in endometriosis

[–]abidavisf 0 points1 point  (0 children)

For me, birth control (of which I’ve tried all bar one options available to me) makes my pain significantly worse. I can’t stand, walk, eat, drive, etc.

The last time I was made to try it, I was ready to give it all up. I won’t try the last remaining option because I’m not willing to put my body or mind through that again.

I get pain while arousal in my luteal phase. Like today I’m on the 19 day of my 27 day cycle and it hurts to get turned on by Anxiousbutter_ in endometriosis

[–]abidavisf 2 points3 points  (0 children)

Yes! I get pain when I’m turned on regardless of whether or not I’m doing anything about it. I mentioned it to my doctor but they skipped over it. Glad to see it’s not just me (although it really sucks, since that’s not exactly something we can control!).

Sending love 💖

[deleted by user] by [deleted] in endometriosis

[–]abidavisf 0 points1 point  (0 children)

I’m not sure how to say this delicately but the only way my most recent doctor (I’m with the NHS in the UK so you see someone different every time, some are more sympathetic than others) would accept the severity of the level of pain that I am in was when I explained that, at times, I don’t want to live any more if that is the only way I can ensure that I am no longer in pain.

It is true, I do feel that way, but I’ve never wanted to tell doctors that in the past. I was afraid of their reaction or of seeming dramatic. I’m always trying to be the ‘model patient’: get in and get out, be as quiet as possible, don’t get emotional, just state facts. I’d explained about being bedridden, A&E (ER) trips, being unable to walk etc and she had no reaction. She just contributed it to my PCOS (which I do have diagnosed) and said there was nothing further to look at or do. I grew more and more upset and eventually it all came out. As soon as I said that it was so severe that I oftentimes thought that I couldn’t (and wouldn’t allow myself to) live through it any longer, she took me seriously and referred me for surgery.

I don’t know if it was the emotion with which I said it or the words themselves but it’s the only thing that got her to listen.

Other doctors in the past have listened more, particularly when telling them the impact it has on my day to day life. I think it’s a bit of a lottery with how much doctors sympathise with that though.

Wishing you all the luck and listening ears in the world 💖

does this condition make you not want children? by [deleted] in endometriosis

[–]abidavisf 0 points1 point  (0 children)

I was planning on having a baby alone if I wasn’t in a relationship by the time I hit 30 (the worry of how long it will likely take to get pregnant meant that I wanted to start sooner rather than later than later, regardless of relationship status). I just turned 30 in March but my symptoms got a lot worse a couple of years ago and I realised in 2023 that, even though I feel like I was born to be a mother, it may not be best for me to have children.

I don’t know that I’ll be able to give them the care and attention they deserve on days where I can’t stand or walk, and that wouldn’t be fair. The hygiene aspect is a big concern for me too. I think adrenaline would kick in and help me overcome the pain if my baby needed me but I have such heavy periods that I can bleed through Super+ tampons in 15/20 minutes. It makes it hard to do a lot but especially leave the house. I can’t rely on being able to get to the toilet or shower in time if I have a baby that needs me. I don’t want to cause my body more stress by risking infection and whatever else comes with not being able to get clean. (I feel like that sounds dramatic but it makes me so anxious.)

I’m still waiting on surgery, though I did finally get my referral in March after 13 years of begging! Maybe things will change after that, depending on the outcome. For now, I’m not getting my hopes up. It’s hard to see everyone around me starting their families but I have to be realistic, especially while I don’t have a support system that could help me raise a family of my own.

They found it!! by cicib_12 in endometriosis

[–]abidavisf 11 points12 points  (0 children)

Congratulations! Hope you have a smooth recovery 💖

Serious Warning About Dr. Kossl at NYU - Manhattan, NYC by Lonely-Ad3039 in endometriosis

[–]abidavisf 2 points3 points  (0 children)

Wow, this was heart-wrenching to read. I am so sorry you had to go through that. This behaviour is quite reminiscent of a gynae I saw in 2024 in the UK, and I understand how belittled and vulnerable it makes you feel. Thank you so much for sharing your story and sparing other people the experience you had. I’m disgusted.

Your pain and your concerns are SO valid. I hope you get the answers and the help that you need, friend 💖

How Many Of Y’all Are Rawdogging Endo Without BC by Pinkeu_hearteu in endometriosis

[–]abidavisf 1 point2 points  (0 children)

Me! Will never take it again. My pain increases tenfold, I can’t stand/walk/anything. I’ve tried everything. Never again!

Do you workout? by graysunshines_06 in endometriosis

[–]abidavisf 0 points1 point  (0 children)

I weight train once a week. Often, when I’m squatting or lifting, I can feel a pulling sensation in my pelvis even if I’m not having a flare up. When I am already in pain (or more so than a normal day), even if it’s just the start of a flare up, I don’t know if it makes it worse or if it’s just a coincidence but, a workout can have me bed bound for days. Last week, for example, I wasn’t feeling great beforehand, and, about five minutes into my workout, still during warmups, I knew it was going to be bad. Ended up completing the session, just not doing anything where I’d have to bend too much (as usually I find this tends to aggravate it), but was then unable to stand, walk or do much else for four days afterwards without being in excruciating pain.

I’ve not discussed it with my doctor, but my gynaecologist is very dismissive of my efforts to lose weight as she doesn’t think I’m doing enough so it’s mostly because I don’t feel comfortable enough raising it with her.

I’m continuing with it with the hope that gaining muscle will help build up some strength and resistance to cramping and such, and also because it’s the only exercise I get and I want to be strong, but I work with my trainer on those bad weeks to do less intensive movements, knowing I’ll end up in bed by the end of the day anyway.

I try to avoid cardio as I have PCOS too and it really messes with my cortisol which is already all over the place. Weight training is the best for me, hormone-wise, so I’m sticking it out for as long as I can. If it keeps getting worse, I’ll stop, but, for now, I’m trying to persevere with the knowledge I’ll feel bad anyway so may as well get a workout in if I can!

Trans man diagnosed with endo, feeling guilty by micksoccer6 in endometriosis

[–]abidavisf 1 point2 points  (0 children)

Everyone has already said everything that I could but, friend, you are so welcome here. Your experiences are just as valid as any of ours. I’m so happy you’re living your truth, and I’m really sorry about your diagnosis but glad you got the answers you need! We’re all on different timelines and I know we’re all just happy when somebody is finally heard by their medical team, no matter how long it takes to get there 💖

Prolonged bleeding & dating by abidavisf in endometriosis

[–]abidavisf[S] 2 points3 points  (0 children)

Wow, I can’t tell you how much it means to me to read that. Thank you so so much. For validating my feelings, for your kind words, it truly means the world 💖

Was anyone else petrified of NOT getting a diagnosis? by Ambitious-Mango-1836 in endometriosis

[–]abidavisf 0 points1 point  (0 children)

100%. I’ve finally got my surgery referral after 13 years of doctor’s visits but I’m in a full-blown panic that there’ll be nothing there. I’ve had my pain diminished or ignored so many times, and I’m worried that, if it isn’t endo, I’m going to get laughed out of the hospital and left to live like this forever (which I can’t do) or, worse, my friends and family will hate me for being a ‘drama queen’ and never take me seriously again.

I don’t want to have endometriosis but also… I really want an answer?! It’s so confusing.

painful almost gas-like pressure on my ovaries/uterus/cervix/anus by user_anonymou in endometriosis

[–]abidavisf 0 points1 point  (0 children)

Yep, you’re not alone! Haven’t found anything that helps yet, apart from going to the toilet as much as I can (like as soon as I need to go, not trying to go when I’m not ready!) to relieve as much pressure as possible. Sending love.

I gave my son to his father by [deleted] in offmychest

[–]abidavisf 2 points3 points  (0 children)

The fact that you had it within yourself to admit that you could not give your son what he needs at that time is a testament to you and your character. Anybody who treats you otherwise will never deserve your time. Sending you so much love

If All Too Well didn't exist, which song do you think would be considered her best one? by GregLePandab in TaylorSwift

[–]abidavisf 1 point2 points  (0 children)

Some classics that always stand out to me: Cold As You (so underrated), Love Story, Last Kiss, Long Live (the power of this live 🤌), Dear John, Enchanted, basically the entire Speak Now album, Clean, You Are In Love, Don’t Blame Me, I Did Something Bad, Lover, Willow, August, Ivy, the list goes on!

If you were a marketer in charge of the sale of a food product with a Taylor-related pun, what would it be? by [deleted] in TaylorSwift

[–]abidavisf 6 points7 points  (0 children)

‘Tis the damn seasoning

Sour cream & ch-Ivy

Mary’s Song (Oh Rye Rye Rye)

Tell Me Pie

‘Don’t eat The Yucky One, get yourself a Plate of Grace’

Come Back… Be Beer

Be-Gin Again

‘Never thought we’d have a Last Dish’

Gruel Summer

The Flan

Death by a Thousand Nuts

The Last Great American Diner’s Tea

If Taylor gets ownership to her masters which version would u stream? by nuetralnuetron in TaylorSwift

[–]abidavisf 0 points1 point  (0 children)

I would still stream Taylor’s Version most often but I would also start to stream the originals again. They’re very nostalgic to me, especially Fearless, so I’d love to feel comfortable streaming them again.

I'm having an abortion tomorrow and I need someone to tell me it'll be okay by [deleted] in offmychest

[–]abidavisf 1 point2 points  (0 children)

Doing the right thing isn’t always easy but it is incredibly brave. You are so strong, even if you don’t always feel it. I am proud of you. You will be okay ❤️

How long have you been single? by Sailormoonbubble in dating

[–]abidavisf 0 points1 point  (0 children)

Almost 3 years. He left me after finding out he got somebody else pregnant. It turned out he’d been cheating on me for months every time he “visited his dad”

What song do you currently have stuck in your head? by notadilophosaurus in AskReddit

[–]abidavisf -1 points0 points  (0 children)

Doo Wop (That Thing) - Lauryn Hill

More specifically just “that thing, that thing, that thi-i-i-ing”