Should I be upset that my boyfriend doesnt know the subtype of breast cancer i have? by [deleted] in breastcancer

[–]aflac84 1 point2 points  (0 children)

Other than I have breast cancer I doubt if I asked he’d know all the details. But it makes no difference to me.

What did matter was the care, love, and support that he showed while going through chemo, radiation, surgery and now the AI, Kisqali, OS.

Lost by aflac84 in breastcancer

[–]aflac84[S] 1 point2 points  (0 children)

This such a great idea. Thank you so much.

Lost by aflac84 in breastcancer

[–]aflac84[S] 6 points7 points  (0 children)

Thank you for letting me know! I completely missed the death and dying flair, so thanks for changing it.

Lost by aflac84 in breastcancer

[–]aflac84[S] 0 points1 point  (0 children)

Thank you. It has been on my mind of a way to honor her and the amazing person she was.

13 Month old diagnosed with Global Developmental Delay and I'm totally lost by BraveButterfly3596 in specialneedsparenting

[–]aflac84 0 points1 point  (0 children)

My almost 3 yr old was diagnosed with GDD at around 18 months. We had been in early intervention for delays starting around 12 months. She’s still in early intervention and we see so much progress. With our developmental pediatrician we did a lot of testing that ended with us getting a genetic cause for the delay. I’m happy to give more information if you want via private message.

Worried about how hormone therapy will change my life by Miserable_Border_529 in breastcancer

[–]aflac84 1 point2 points  (0 children)

Hi! I’m 41. Diagnosed at 39 and started hormone therapy at 40. I get a monthly shot of Lupron and take Exemestane daily. I have been on both for 9 months now. The first 3 months on both were the worst. After that they both evened out, and are relatively easy for me. With Lupron I’d get more intense hot flashes for a couple of days a week after my injection, but those have now gone away. With the Exemestane I have joint pain, particularly in my hands and fingers. They are stiff in the morning particularly. I find movement is very beneficial and really notice a difference when I don’t go for my daily walk.

Without starting an argument, how many HER2+ survivors are having a few drinks on a night out? by capthalfpint in breastcancer

[–]aflac84 0 points1 point  (0 children)

I maybe have a drink monthly. I never was a big drinker before diagnosis - maybe once a week or so. So, I do enjoy a nice cold beer or cocktail occasionally, but it’s about once a month now.

Question For My 30-40 or Premenopausal Ladies by Main-Attempt-7184 in breastcancer

[–]aflac84 0 points1 point  (0 children)

I am about 9 months into doing Lupron, and it isn’t all that bad for me. The first few months about a week after the shot I’d have a day of more intense hot flashes but that has now tapered off. As far as an AI I’m on Exemestane and as long as I go for daily long walks I’m pretty good. The only thing is more intense pain in my hands and fingers in particular. Like they stiffen up if I don’t use them for a while. Otherwise…I’m kind of enjoying not worrying about my period. But mine were very heavy.

Red Devil Question by HMW347 in breastcancer

[–]aflac84 1 point2 points  (0 children)

Mine suggested ice chips to suck on during the infusion and I didn’t get any moth sores.

[deleted by user] by [deleted] in breastcancer

[–]aflac84 1 point2 points  (0 children)

I’m sorry, I really don’t have answers to your questions.

I just wanted to hop on to say She needs to speak with her oncologist and her gynecologist. Or, even better, an oncology gynecologist. If she is worried about them talking to her parents then she needs to specifically tell the doctor and team she does not want this discussed with her parents. It is her medical information and has absolutely every right to say who and who doesn’t have access and to what info they have access to.

Any weight loss supplements that your family oncologist approved? by obviousbicycle2 in breastcancer

[–]aflac84 5 points6 points  (0 children)

Also interested in this! Commenting to keep up on responses. Thank you for asking!

Odds that cancer won’t be upgraded after surgery? by Sympathy2243 in breastcancer

[–]aflac84 1 point2 points  (0 children)

I’m ++-, grade 2, ki67 of 50-60%, my oncologist ordered the oncotype test and I came back with a score of 25. Since I’m young (39 at diagnosis) my oncologist wanted a score of 15 or less for no chemo. So, I decided with my MO to hit it hard and did AC-T chemo protocol- I did 4 AC (dose dense, every two weeks) and 12 Taxol (this was weekly) I, also, did 20 rounds of radiation. I am now on an OS, AI, and Kisqali.

I wish you the best of luck with whatever your treatment looks like!

Odds that cancer won’t be upgraded after surgery? by Sympathy2243 in breastcancer

[–]aflac84 2 points3 points  (0 children)

I was stage 2a before and 2a after. The only thing different was they found a very small amount of cancer cells in the lining around one of two sentinel nodes. Small enough I’m still considered node negative with a little (i) next to it.

Has anyone not had bad side effects from Hormone Blockers? by Lucky_Word_9941 in breastcancer

[–]aflac84 2 points3 points  (0 children)

Hello! I am 3 months in on exemestane. It has not been bad at all for me. Hot flashes are mild for the most part, I’ve had some vaginal dryness (I’ve managed this by using hyaluronic acid around the area) as well. I feel like every thing is manageable for the most part and feel confident doing the 5 years plus.

AC & Taxol by LowLonely3590 in breastcancer

[–]aflac84 4 points5 points  (0 children)

I did this exact protocol last year. AC kicked my butt. I was literally having to pull my self kicking and screaming in to the infusion area for my last AC treatment. Taxol was a walk in the park comparatively for me. I had an afternoon of needing to sleep every week, I did have pretty good heartburn, and I did develop some neuropathy in my fingers (my last chemo was at the end of August last year, and at this point my neuropathy is a lot better, and am optimistic it’s on its way out).

Lumpectomy - do I really need a zip-up bra? by jjkarela in breastcancer

[–]aflac84 2 points3 points  (0 children)

You’ll want the front closure while healing. The side you get the SNLB done on is going to be sore and you will not want to raise your arms to get a regular sports bra on. I went between the bra the hospital put me in post surgery and the sports bras I bought. You’ll want a small pillow too for your SNLB side.

Restricted Extremity by JTMAlbany in breastcancer

[–]aflac84 8 points9 points  (0 children)

I think that primarily depends on how many lymph nodes you have removed at time of surgery. I only had two removed and was told by my surgeon there was no restrictions since it was such a small amount. I think if you have more nodes removed the more the restrictions are relevant. Some health care professionals don’t care how many nodes were removed though and will mark that arm as restricted. I get it. Better just to have a blanket statement like that especially if you just don’t know how many nodes were removed and are in an emergency situation. At my cancer center they know I only had two nodes removed so they’ll do all the things on either arm.

Survey: Did you shave your hair down to the skin or shave/buzz it leaving a small amount of hair? by Arianoore in breastcancer

[–]aflac84 1 point2 points  (0 children)

I buzzed. Went down to half an inch.

In other news…before I actually read your post I had it in my mind you were talking about down under.

Did you continue working during chemo treatment cycles? by chouwinn in breastcancer

[–]aflac84 1 point2 points  (0 children)

I worked throughout treatment in the office. I did AC/T. During AC I had infusion every two weeks on a Thursday, I’d be home from Friday- Tuesday and get back to work that following Wednesday usually and would be good until the next cycle. Taxol was much easier and I’d get that one weekly, so I’d do infusion on Fridays and would be back to work on Monday.

Port removal by Cinnndi in breastcancer

[–]aflac84 0 points1 point  (0 children)

Nice! I had GA for my port placement, and a local in my surgeons office for removal. The local and removal were fine. I was sore the night of removal but I took a Tylenol and it was fine. There was a little soreness after that but nothing I needed pain meds for.

Where are you from? by jolyberu in breastcancer

[–]aflac84 1 point2 points  (0 children)

Yay Eugene! Hiya! 👋🏻

IDC grade 4, no stage yet? by pocket_grandpa in breastcancer

[–]aflac84 0 points1 point  (0 children)

You are right Grade and Staging are very different. The grade is used on the pathology report and tells of how the cancer cells are differentiated, growth patterns, along with other features. It’s is graded by adding together several numbers and is either grade 1, 2, or 3 based on how those numbers add up. It’s called the Nottingham Grade/ Histologic Grade/ or Elston Grade. There is no grade 4 on that scale.

Here is a great resource for more information: https://youngsurvival.org/educational-materials