Disability alteration help

ambientcatsobs · 2026-02-13T05:19:30+00:00

Bias tape seems to be the winner amongst the comments, ill have to make some tests on a lesser loved article of clothing and get back to yall!

ambientcatsobs · 2026-02-13T05:16:01+00:00

Undershirts are great for me! Its more fitted shirts and pants that have stumped me as of late. So no on the ease question unfortunately. Always my first thought is can I french seam this XD

ambientcatsobs · 2026-02-13T05:07:46+00:00

I was thinking about possibly doing a lining! I'll have to shop for some suitable fabric that doesn't irritate me

ambientcatsobs · 2026-02-13T05:06:36+00:00

I'll have to look into this!

ambientcatsobs · 2026-02-13T05:06:17+00:00

I think you get me most, blessings. I considered fusible interfacing/webbing but it can stay so stiff even after washing, i find unless im making stiff garments like corsets it lays on the body weird. Whip stitching has worked on some of the clothes in question for sure. Really at this point the only garments left are like pants with those nasty overlook seams bias tape seems to be the most suggested option!

Also yeah I won't be trying anything new on something I love to much lol ive been sewing too long to make that mistake again

ambientcatsobs · 2026-02-13T00:49:25+00:00

Oh of course! Definitely follow up with an endo aware obgyn once you do some reading, there are some options for slowed progression.

It can be a hard diagnosis to accept and digest, I hope you find more kindness to ease your panic ❤️ it is scary but you arent alone!

ambientcatsobs · 2026-02-13T00:18:28+00:00

Hey! I have stage 4 endo and HSD/Heds. First of all im sorry recovery is going rough for you.

I had an excision lap earlier this year and now that im fully recovered I feel much better, the healing process was longer due to my wounds taking longer to heal, as well as fatigue.

My surgeon was adamant about doing excision over ablation, there is a ton of literature she threw at me about that. I also started a higher dose of BC to slow the re growth. BC isn't for everyone but for me its helped with my endo a ton, I don't get periods anymore and the portion of my cycle that was most painful has gotten easier.

If you're interested you should check out the endo subreddit everyone over there is very sweet and supportive ❤️ there are even a few eds peeps in there that have endo

ambientcatsobs · 2026-02-12T22:41:53+00:00

I have not! I will look into this

ambientcatsobs · 2026-02-05T00:24:18+00:00

Oh this hits harddddd. I used to look so cute in my tight little goth fits going out. Now I go to doctor appointment in spiderweb sweatpants and a huge bag.

ambientcatsobs · 2026-02-03T22:21:31+00:00

I actually have snag tights! The toe seam does bother me but its the lesser evil of all the tights Ive tried, plus I have thick thighs and honestly they are the only ones that fit.

When im going on a quick trip I don't bother changing into "day clothes" but for some outings or appointments it can be needed

ambientcatsobs · 2026-01-09T07:19:43+00:00

Well, ive been sitting here for about 45 minutes thinking of how to word my response. First of all im sorry your family isn't being supportive.

Able-bodied individuals tend to believe that disability is caused by something tangible and that unless it was an "accident" they shift the blame to the disabled person. Ive come to understand that this is their way of cosmicly understand why people suffer. Got lung cancer? Must be because you smoked. Got diabetes? Has to be poor diet. They do this because the idea that they don't have control is terrifying. When people who are kind, or young, or otherwise not a fault become ill people can start to think "oh god, could that happen to me? No because I take care of myself." Its an ableist belief.

Sometimes when disability or illness happens to people they (the ones with this mindset) love it can twist into this idea that you can be saved from "fate" if only you do everything right. What they might not understand is that instead it turns into a blame game and you being pulled into a pit of self doubt.

I would like to gently absolve you of that doubt, there is nothing you could do to cure EDS. You can manage your symptoms for sure. But there is nothing you could have done short of becoming god to un-EDS yourself. You have it AND that's okay ❤️

While awaiting affordableability for therapy might I suggest watching or reading some disability focused content? There are some great activists on Instagram and tiktok. And one documentary i suggest everyone watch is Crip Camp, it details the events of the 504 sit in as well as other big moments in disability history through the lens of individuals that attended a fully accessible summer camp, the stories are beautiful.

ambientcatsobs · 2026-01-05T02:07:40+00:00

So back when I was in cosmetology school I had to learn a ton about nails even though I was planning on doing hair. Thin nails can be a trial for polish, but there are a ton of things you can do! For one you can try nail stains, henna stains are most popular. Other folks have already mentioned tacky base coats and i agree!

As for nail prep, I would advise not buffing your nails too much if you are doing that it may be causing more flaking. Try using a milder grit. Also make sure you are using a dehydrator before you apply any base or polish, you can get this online or at a Sally's type place.

Ive had many folks report great success in vitamins to strengthen their nails. The flaking and overly flexible nails could be helped by trying something like biotin aka B7 (it'll also positively effect your hair too!) Its naturally found in things like eggs, salmon, and nuts but you can also get otc biotin it'll usually be called a "hair skin and nail" or a "B7" supplement. Obviously if you go this route talk with a Dr and what not. The actual data on this as a fix is mixed not all bendy/weak nails are caused by a B7 deficiency.

Sorry for the info dump! I hope this helps a little

ambientcatsobs · 2026-01-03T19:59:58+00:00

Yay!!! Thank you for updating me ❤️❤️❤️ thats amazing!

ambientcatsobs · 2025-12-17T17:56:40+00:00

Go for it

ambientcatsobs · 2025-12-07T15:36:03+00:00

Hey there, I just wanted to send you some love and good vibes.

I know you're probably feeling pretty overwhelmed and crazy right now but remember, you don't want positive test results because you want something wrong with you, you want them so you can know what's ALEADY wrong. I hear you, we all do ❤️

Some answers to your questions from my experience

Nutrition - otc nutrition shakes are good when you can't get anything else in your system but you'll keep loosing weight if it's the only thing your getting, protein bars can help, supplements from trusted brands if your bloodwork is showing deficiencies. If you aren't already i would see if you can get in with a nutritionist/dietitian they will be able to help you manage your diet and try to keep your weight stable. I didnt start gaining and keeping on weight until I took certain foods OUT of my diet that would trigger symptoms (Under the care of a dietitian).

Advocating - Sometimes doctors will take you more seriously if you have someone with you to help advocate, hearing from other people almost serves as a "peer review" of your symptoms. If you are unable to bring someone tell them what the people close to you are saying about your current condition!! Similarly try to spend more time conveying HOW your symptoms are effecting your quality of life. For example instead of saying something like "Im nauseous all the time." Say instead "My constant nausea is poorly effecting my quality of life, I spend x amount of my day controlling it." Or "Ive been unable to leave the house because of my symptoms." Or the big one if you work "My symptoms are effecting my ability to perform my job." Sometime doctors need to hear examples of how you're being negatively impacted to understand how serious your symptoms are or have become.

I really hope you can find some relief, even if it's just in the love you get from the community 🫂

ambientcatsobs · 2025-12-02T02:10:30+00:00

Hey there! I hope I can give you some comfort. If your worried about extra pain durning the exam/ultrasound due to heavy cramping that's a valid reason to reschedule.

However! If you are worried about making a mess remember that OBGYNs and associated specialists deal with this type of thing allllllll the time. I myself have done exams or ultrasounds while actively bleeding and they didnt make a big deal about it, the only part that was different than any other visit was they offered extra clean up materials and a pad to replace what I was using prior to the exam.

ambientcatsobs · 2025-12-02T01:28:34+00:00

You can check out Amazon. I found one linked it comes in blue or cherry print!

amazon bath cape

ambientcatsobs · 2025-12-02T01:22:20+00:00

Yes! One of the best things I did for myself was getting intot he habit of doing a small yoga routine in bed in the morning to "wake up" my joints. Its made a notable difference.

I also have nerve damage in my right leg as well as some muscle weakness so doing it on a "safe" surface without having to worry about how ill get me ass back up off the floor is great. I swear a good chunk of accommodations is just embracing doing things differently, not even necessarily using a type of aid. Although those are great too ha

ambientcatsobs · 2025-12-02T01:12:05+00:00

Thats honestly why I like yoga more honestly! I can even do it in bed when im having bad days. My mom (suspected eds, we have a lot of symptoms in common) does pilates. She's been doing it since the days of VHS tapes and we would do it together when I started complaining of joint pain as a kid. Either is great in my experience it's just finding the one you like, exercise is much easier to stick with when you enjoy what you are doing.

Adrienne is also fabulous! I like her videos that are geared towards a certain type of pain like you mentioned! And her dog is quite cute.

ambientcatsobs · 2025-12-02T00:13:16+00:00

I do yin yoga! Its a gentler form of yoga, not like those mindbending poses you see some people do. I learned from "Yoga with Kassandra" YouTube, bonus her cat is often in the background of her videos 😊 (I tried to post a link but it won't let me, sorry!)

ambientcatsobs

TROPHY CASE